Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 The very first flare I had on my nose was devasting to me, along with very painful, and I didn't have a clue what was happening to me. I called my PCP, and he was out that day so they said for me to come in and see the nurse practioner. She took one look at my nose and said, " have you been under a lot of stress " . I said, " well, no more than usual, why? " She said, " you have shingles and it's caused from stress. " I honestly believed her until I had my first ear flare. Has anyone else ever been told they had shingles on their nose or ears? Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 I just wanted to say while the subject of shingles has come up, I had very severe shingles the year before last which lasted about 10 months (I was planning the first birthday party!) I was not given the anti viral treatment in the beginning as when I saw a doctor (not my own) she said I had had the blisters too long to be of any benefit. When I saw my consultant after having shingles for 6 months he was furious, and said it is VITAL that anyone immunocompromised is given this treatment. He said it can be life threatening if don't get it. So please, anyone unfortunate enough to get shingles, insist on the right treatment (I was given acyclivir by him) I hope everyone is doing ok. I am off for two weeks on Sat. (Going to Loch Ness to look for Nessie!) I will be in touch when I get back Take care Anne >From: godave@... >Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Shingles >Date: Wed, 13 Jun 2001 01:46:43 -0000 > >The very first flare I had on my nose was devasting to me, along with >very painful, and I didn't have a clue what was happening to me. I >called my PCP, and he was out that day so they said for me to come in >and see the nurse practioner. She took one look at my nose and >said, " have you been under a lot of stress " . I said, " well, no more >than usual, why? " She said, " you have shingles and it's caused from >stress. " I honestly believed her until I had my first ear flare. >Has anyone else ever been told they had shingles on their nose or >ears? Marilyn > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 Dear Anne, Thanks for the input on shingles. In my case, it was probably an RP flare, but hadn't been dx by the rhumatologist at that time. It was only after the flare with my ears that they figured out that was probably what had happened to my nose. The nurse didn't give me any meds at the time I was in there. Thanks for letting me know. I never did get any blisters, it was gone in a couple of days but " Boy " was that ever painful. Hope you have a great vacation. Sounds like a lovely place to go for some R & R. Hope you are doing well. Love, Marilyn I just wanted to say while the subject of shingles has come up, I had very > severe shingles the year before last which lasted about 10 months (I was > planning the first birthday party!) I was not given the anti viral treatment > in the beginning as when I saw a doctor (not my own) she said I had had the > blisters too long to be of any benefit. When I saw my consultant after > having shingles for 6 months he was furious, and said it is VITAL that > anyone immunocompromised is given this treatment. He said it can be life > threatening if don't get it. So please, anyone unfortunate enough to get > shingles, insist on the right treatment (I was given acyclivir by him) > I hope everyone is doing ok. I am off for two weeks on Sat. (Going to Loch > Ness to look for Nessie!) I will be in touch when I get back > Take care > Anne > > > >From: godave@c... > >Reply-To: Rpolychondritis@y... > >To: Rpolychondritis@y... > >Subject: Shingles > >Date: Wed, 13 Jun 2001 01:46:43 -0000 > > > >The very first flare I had on my nose was devasting to me, along with > >very painful, and I didn't have a clue what was happening to me. I > >called my PCP, and he was out that day so they said for me to come in > >and see the nurse practioner. She took one look at my nose and > >said, " have you been under a lot of stress " . I said, " well, no more > >than usual, why? " She said, " you have shingles and it's caused from > >stress. " I honestly believed her until I had my first ear flare. > >Has anyone else ever been told they had shingles on their nose or > >ears? Marilyn > > > > ______________________________________________________________________ ___ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 Anne , Mom had the shingles about 15 years ago . They out her in the hospital , we had to wear mask and gowns to keep from catching it . Wonder if there is a connection .Sherry --- godave@... wrote: > > Dear Anne, > > Thanks for the input on shingles. In my case, it > was probably an RP > flare, but hadn't been dx by the rhumatologist at > that time. It was > only after the flare with my ears that they figured > out that was > probably what had happened to my nose. The nurse > didn't give me any > meds at the time I was in there. Thanks for letting > me know. I > never did get any blisters, it was gone in a couple > of days but " Boy " > was that ever painful. Hope you have a great > vacation. Sounds like > a lovely place to go for some R & R. Hope you are > doing well. > Love, Marilyn > > > > I just wanted to say while the subject of shingles > has come up, I > had very > > severe shingles the year before last which lasted > about 10 months > (I was > > planning the first birthday party!) I was not > given the anti viral > treatment > > in the beginning as when I saw a doctor (not my > own) she said I had > had the > > blisters too long to be of any benefit. When I > saw my consultant > after > > having shingles for 6 months he was furious, and > said it is VITAL > that > > anyone immunocompromised is given this treatment. > He said it can be > life > > threatening if don't get it. So please, anyone > unfortunate enough > to get > > shingles, insist on the right treatment (I was > given acyclivir by > him) > > I hope everyone is doing ok. I am off for two > weeks on Sat. (Going > to Loch > > Ness to look for Nessie!) I will be in touch when > I get back > > Take care > > Anne > > > > > > >From: godave@c... > > >Reply-To: Rpolychondritis@y... > > >To: Rpolychondritis@y... > > >Subject: Shingles > > >Date: Wed, 13 Jun 2001 01:46:43 -0000 > > > > > >The very first flare I had on my nose was > devasting to me, along > with > > >very painful, and I didn't have a clue what was > happening to me. I > > >called my PCP, and he was out that day so they > said for me to come > in > > >and see the nurse practioner. She took one look > at my nose and > > >said, " have you been under a lot of stress " . I > said, " well, no more > > >than usual, why? " She said, " you have shingles > and it's caused > from > > >stress. " I honestly believed her until I had my > first ear flare. > > >Has anyone else ever been told they had shingles > on their nose or > > >ears? Marilyn > > > > > > > > ______________________________________________________________________ > ___ > > Get Your Private, Free E-mail from MSN Hotmail at > http://www.hotmail.com. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hi lin If this happens again and they think they are shingles make sure you get the treatment OK? Yes, they are painful, but I'm so pleased you didn't end up with blisters etc. It is horrendous, and we can do without extras like that! I am looking forward to some R & R definitely. Take care Love anne >From: godave@... >Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Re: Shingles >Date: Wed, 13 Jun 2001 22:28:13 -0000 > > >Dear Anne, > >Thanks for the input on shingles. In my case, it was probably an RP >flare, but hadn't been dx by the rhumatologist at that time. It was >only after the flare with my ears that they figured out that was >probably what had happened to my nose. The nurse didn't give me any >meds at the time I was in there. Thanks for letting me know. I >never did get any blisters, it was gone in a couple of days but " Boy " >was that ever painful. Hope you have a great vacation. Sounds like >a lovely place to go for some R & R. Hope you are doing well. >Love, Marilyn > > > > I just wanted to say while the subject of shingles has come up, I >had very > > severe shingles the year before last which lasted about 10 months >(I was > > planning the first birthday party!) I was not given the anti viral >treatment > > in the beginning as when I saw a doctor (not my own) she said I had >had the > > blisters too long to be of any benefit. When I saw my consultant >after > > having shingles for 6 months he was furious, and said it is VITAL >that > > anyone immunocompromised is given this treatment. He said it can be >life > > threatening if don't get it. So please, anyone unfortunate enough >to get > > shingles, insist on the right treatment (I was given acyclivir by >him) > > I hope everyone is doing ok. I am off for two weeks on Sat. (Going >to Loch > > Ness to look for Nessie!) I will be in touch when I get back > > Take care > > Anne > > > > > > >From: godave@c... > > >Reply-To: Rpolychondritis@y... > > >To: Rpolychondritis@y... > > >Subject: Shingles > > >Date: Wed, 13 Jun 2001 01:46:43 -0000 > > > > > >The very first flare I had on my nose was devasting to me, along >with > > >very painful, and I didn't have a clue what was happening to me. I > > >called my PCP, and he was out that day so they said for me to come >in > > >and see the nurse practioner. She took one look at my nose and > > >said, " have you been under a lot of stress " . I said, " well, no more > > >than usual, why? " She said, " you have shingles and it's caused >from > > >stress. " I honestly believed her until I had my first ear flare. > > >Has anyone else ever been told they had shingles on their nose or > > >ears? Marilyn > > > > > > > >______________________________________________________________________ >___ > > Get Your Private, Free E-mail from MSN Hotmail at >http://www.hotmail.com. > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
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