Re: Belinda and weakness>Deborah

[Guest guest]

Deborah,

Ok girlfriend, I am totally lost but then what is new? LOL What was

the pun about forgetting you mean? I am so excited about meeting you

face to face how in the world could I forget you? Did I forget to

answer an email or a message? If I had I didn't do it on purpose. I

don't have a clue????? boo hoo LOL As far as the bed thing,well Glenn

doesn't get up period. I get up and go to bed all night long. I bump

into his foot hanging off the bed and he doesn't budge. I sleep so

much better in the afternoon then I do at night. It is 1:40am and I

should be in bed now but I am so far behind in everything I am trying

to catch up at least a little bit. I can't believe how far behind I

am! I will suffer for it tomorrow but who doesn't. You know I love

ya at least you better know it! I would hate to have to whip up on ya

when I get to NC especially to someone who knows pain so well. Don't

worry though, my son said my slaps on the butt don't hurt. He said I

couldn't kill a fly with the strength I have in my arms and hands.

Such is life.....

Lots of love and gentle hugs,

Belinda

> Belinda,

>

> I did not realize that I was so easily forgotten... LOL! I know,

I'm a

> pain (pun intended).

>

> You asked about muscle weakness and I think that mine is more

perceived

> muscle weakness than actual weakness. Because of the (pain) I have

in my

> arms, hands, legs and feet, I don't think that I try to lift heavy

things or

> hold onto stuff like I used to. I bet if I could get the pain to

roll over

> that I would find my body to be quite strong. It could be the

steroids too

> that are keeping me muscle bound instead of fat bound.

>

> I've gained 40 lbs. since January on the steroids but when I look

in the

> mirror, I look more like a football player than an over weight

lady. Put

> clothes on me then I just look plain fat. Oh well, just goes to

show that

> you can't judge a book by its cover.

>

> I think and I are playing musical beds without letting the

other

> know we are playing. He fell asleep at 7:30 last night and woke at

11 PM

> when I turned the tv off to go to sleep. I woke at 3:30 this

morning (as

> usual) and he was still up. I went back to bed and woke at 6:30

this

> morning only to find him snoozing away. I'm betting by the time I

can't sit

> up anymore and start feeling bad, around 9:30 or 10:00, I'll go

back to bed

> and he will get up.... Hummm. Wonder if he is trying to tell me

something.

>

> Hugs,

> Deborah aka Tenacity

> ------------------------------------------------------------------

> Marg,

> I had an EMG done by my present neurologist. It was not normal but

he

> didn't think I had ALS but rather CBGD. I do not have strength in my

> arms, hands, legs, or feet. Do the rest of you? I am just curious. I

> know I have muscle pain and the rest of you don't but then again I

> don't have MSA. I am just curious about the strength part and also

> the EMG. Thanks for bringing this up Marg. I am curious also.

>

>

>

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