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Elaine:

I forgot to tell you last night , that when Fred over heat's we take cold

towels and put it on his head and back of the neck. This seems to help him.

Anyone else have a suggestion for Elaine for taking care of overheating?

Something I can use too?

Hugs Vera

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Vera:

As you know we live at the beach, so we have very few hot days, but of

course, we have no air conditioning because we live at the beach. So, on very

hot days (which we do have sometimes) we aimed the fan right at Ken and put

wet towels on him. I think hot weather is very hard on SDS patients. Ken did

not sweat in the heat although he sometimes did sweat when it wasn't even

warm. The whole sweat mechanism was caput.

Your Las Vegas jaunt sounded both fun and horrendous. You do have to

have a sense of humor when your travel with an MSA patient, and you have to

be very adaptable. After a certain point, all our trips were taken in the

trailer which we packed full of supplies, especially Depends. Of course, I

had a helper along or I couldn't have done it, but the surroundings were

always familiar to Ken no matter where we were parked and that helped. The

first time we went after I had a helper, I arranged for the two of them to

stay in a motel while I stayed in the trailer with a friend and the dogs. Ken

became disoriented and pounded on the walls at night yelling that he wanted

to be saved because he was being held captive in a strange place. After that,

we always had him stay with me in the trailer, and the helper stayed in a

tent nearby. That worked very well. Good luck to you both on future trips.

You are right, the window for traveling together is very short. ken and I

always wanted to go to France together, but it didn't happen. I am going

without him in October, and I recently found some cards he sent me from there

before we were married, so I think his spirit will be with me.

Give me a call and come down for a day if it gets too hot up there.

Love, Barbara

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They sell some things around Vegas here that you soak in cold water and it is like a scarf that you wrap around your neck. That always seems to give me some relief when it's hot. They're about $2.00 a piece. You can get them att about any flea market or dollar store around here. If you want one, let me know, I can get them for you.

Also, I have a little clip that I put in my belt that will hold a bottle of water. It's kind of "L" sshaped with a cut out on the top where a bottle of water top will fit. Then, you walways have water with you. I carry it everywhere. These things too are about $2.00 each.

Check out the pictures I attached. Hope these suggestions help.

\

Dr. Ray

-- Over heating > Elaine

Elaine:I forgot to tell you last night , that when Fred over heat's we take cold towels and put it on his head and back of the neck. This seems to help him. Anyone else have a suggestion for Elaine for taking care of overheating? Something I can use too?Hugs VeraIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

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