test results

[Guest guest]

Dear Sharon & Glenda, okay you talked me into it...ha. I'm hurting pretty

good today so tomorrow I'll start to take it. Right now a little constipation

would be a good thing, kinda runny lately...back to gross stuff. Thanks

alot...Sue

[Guest guest]

In a message dated 6/14/01 12:18:27 PM Pacific Daylight Time, grandm4@...

writes:

<< I will check on that...even if its two hours that's fine

as long as the stomach isn't upset the rest of the day. I used to hate

taking

Pred because it messed up my system so bad but with the Zantac it didn't

bother me. I sure appreciate your input....Thank you again...Sue

>>

Sue, I feel the same way. We should all protect our stomach's. The meds we

are on can do quite a bit of damage if we aren't careful. You might want to

just call your pharmacist and ask them Sue. You know, sometimes the drs. are

wrong. LOL so I might have it all mixed up. Just thougt I'd let you know

what I was told. Hope you are feeling as good as you can... Know I'm

thinking of you.

hugs

[Guest guest]

Hi, I'm going to vent for just a moment here.

As many of you know both myself and both of my Kids have a confirmed case of RP

(MAYO) (yes it is not suppose to be genetic, but let face it. The first report

of RP into the medical journals was in 1923 so they really don't know).

My " wonderful " Insurance company refused to let the kids go to my specialist.

Had to go see their highly train top in his field " authority " on RP. Which made

me laugh uncontrollably for a lengthy period of time. Like right, In AZ! I don't

think so.

Well we made the appointment, drove the 500 mile round trip to be patronized by

this authority that it could not be RP. After all its not genetic and their is

no outer ear involvement. But to humor the " sick " and " phobic " mother (written

on the medical recorders) he was having multiple labs done. AND after a lengthy

discussion about running kidney and liver functions ( which of course where not

needed) the test where ordered, ran and we got the results back today. The

doctor called somewhat embarrassed. Matt's kidney and liver panel came back way

out of bounds. Like I already knew this. But it was fun listening to him with

his hat in hand and apologize because he just thought I was being a historical

Mother. Now we go for round two on testing. No we do not know at this time what

the problem is. This is why we wanted to go to Mayo instead of piece mauling his

medical. But at last, I'm only hysterical! Not to be taken seriously.

And this RP " authority " has only seen 3 RP patients in his 16 years carrier. Yup

3. I am hoping he was not referring to Desi, Matty and I. If so I'm now really

laughing.

Thanks for letting me vent.

Have a wonderful day.

R.

[Guest guest]

Hi :-)

Score one for the Mom!! and a big zero for the doctor....but...now

that you have his attention, maybe he would agree to order the PCR

mycoplasma tests through one of Nicolson's labs?? For, if this

disease surely can't be genetic (his words) then it must be

contagious, right????

.....and I think you're right...the names of his three patients are

Desi, Matty and :-) Oh dear.....

Keep us posted, OK?

Connie H.

> Hi, I'm going to vent for just a moment here.

> As many of you know both myself and both of my Kids have a

confirmed case of RP (MAYO) (yes it is not suppose to be genetic, but

let face it. ]

[Guest guest]

, I'm sorry I didn't get this post on your dr. visit. Darn Yahoo is

still only sending part of the posts. UGGHH...

Sorry to hear that you had to go through all of that. Don't you just want to

wring some of these insurance companies neck.???

I hope you get some answers soon and this isn't drawn out too long.

Know that I'm keeping you and your family in my thoughts and prayers. Bad

enough for us adults to have this, but breaks my heart for the children.

Also to the group, if I haven't responded to you, I'm not ignoring you. I'm

not getting all my mail...... Think I'll go write Yahoo another letter... My

turn to vent now. LOL

hugs

[Guest guest]

--- grandm4@... wrote:

> Dear Sharon & Glenda, okay you talked me into

> it...ha. I'm hurting pretty

> good today so tomorrow I'll start to take it. Right

> now a little constipation

> would be a good thing, kinda runny lately...back to

> gross stuff. Thanks

> alot...Sue

>

Go for it Sue! Good luck, Sharon

=====

__________________________________________________

[Guest guest]

Sue, I also take Ultram and don't know what I'd do without it. It has no

ill effects for me (sometimes constipation and sometimes if I take for a few

days, a stomach ache)

My Dr. is really liberal with it and I don't take it on a daily basis, only

when I can't stand the pain any longer. LOL I have heard that it does work

better if it is in your system at a constant level. This is a choice for

you and your dr.

I never feel drugged from it. It kind of give me energy, but if I take two

it does make me a little sleepy sometimes. At those times, I think I've

waited too long to take it.

Hope it works for you... Good luck.

hugs

[Guest guest]

Thanks , I have to go to pharmacy today so will ask the pharmacist. I

get alot of useful advise from them. Sue

[Guest guest]

Hi ,

Wow, I hope you let that doctor have it with a pointy toe. You

certainly have a right to vent your frustration. This is ridiculous

what these insurance companies make us do. This doctor sounds like a

real jerk. I hope you don't have to take the kids back to him.

I am curious about this genetic thing. Is there any history of

others in your family having RP? I sure hope and pray that none of

my kids ever get this stuff. Love, Marilyn

Hi, I'm going to vent for just a moment here.

> As many of you know both myself and both of my Kids have a

confirmed case of RP (MAYO) (yes it is not suppose to be genetic, but

let face it. The first report of RP into the medical journals was in

1923 so they really don't know).

>

> My " wonderful " Insurance company refused to let the kids go to my

specialist. Had to go see their highly train top in his

field " authority " on RP. Which made me laugh uncontrollably for a

lengthy period of time. Like right, In AZ! I don't think so.

> Well we made the appointment, drove the 500 mile round trip to be

patronized by this authority that it could not be RP. After all its

not genetic and their is no outer ear involvement. But to humor

the " sick " and " phobic " mother (written on the medical recorders) he

was having multiple labs done. AND after a lengthy discussion about

running kidney and liver functions ( which of course where not

needed) the test where ordered, ran and we got the results back

today. The doctor called somewhat embarrassed. Matt's kidney and

liver panel came back way out of bounds. Like I already knew this.

But it was fun listening to him with his hat in hand and apologize

because he just thought I was being a historical Mother. Now we go

for round two on testing. No we do not know at this time what the

problem is. This is why we wanted to go to Mayo instead of piece

mauling his medical. But at last, I'm only hysterical! Not to be

taken seriously.

> And this RP " authority " has only seen 3 RP patients in his 16 years

carrier. Yup 3. I am hoping he was not referring to Desi, Matty and

I. If so I'm now really laughing.

>

> Thanks for letting me vent.

> Have a wonderful day.

>

> R.

>

>

>