Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 HI BILL. MY DOC DESIRED I TAKE A BETA BLOCKER. I HAVE A HISTORY OF HEART PROBLEMS. PLUS, I HAVE MIGRAINES. THE BETA BLOCKER IS SUPPOSE TO HELP BOTH. PLUS, APPEARS IT HAS HELPED TO ALLEVIATE (AT LEAST SOME OF) MY ORTHOSTATIC BP PROBLEMS. AT LEAST, IT SEEMED TO HELP - BUT NOW... NOT SURE. SEEMS THAT PROLEM IS LOOMING IT'S UGLY HEAD AGAIN. ANYWAY, MY DOC IS DOING THE BEST SHE CAN. WE ARE BOTH 'NOVICES' AT THIS. SHE DOES KNOW QUITE A BIT - JUST NOT AN EXPERT ON MSA. SEEMS THERE ISN'T ONE OUT HERE - AND I'VE PRETTY WELL EXHAUSTED MY RESOURCES JUST TO GET THIS FAR ON THE PATH OF LIFE :-) AS I THINK I MENTIONED, I WILL MOST LIKELY CALL HER UPON RETURNING HOME AND TELL HER I'M READY TO START ON THE SIMENTEL. WHILE IT WAS BAD ENOUGH IN HER VIEW BEFORE - IT'S NOW BAD ENOUGH IN MY VIEW. YOU MENTIONED MEDS, SO I WROTE YOU ABOUT THEM. FROM WHAT I UNDERSTAND, FOR THE MOST PART, THERE IS NOTHING MEDS CAN DO ABOUT MOST OF WHAT I'VE GOT GOING ON. NO MED HAS BEEN ABLE TO TOUCH THE VOMITING. NO MED CAN TOUCH THE PHANTOM PAINS I GET. NO MED CAN ADDRESS THE OTHER NEUROPATHY-ORIENTED PAINS OR NUMBNESS. APPARENTLY, NO MED (OR AT LEAST NONE TRIED THUS FAR) CAN ADDRESS MY MIGRAINES. BUT, IT'S PROBABLY FOR THE BEST ANYWAY, AS I'M SO SENSITIVE TO MEDS ANYWAY - THAT I'D PROBABLY JUST HAVE SIDE-EFFECTS GALORE IF THERE WERE SOME MAGIC BULLET. CATCHA LATER. RIGHT NOW, I'M GOING TO GO TO SLEEP. WHEN MY 'VACATION' IS OVER, I WILL RESUME A 'GET UP WHEN CAN - AND DO WHEN CAN' ROUTINE. RIGHT NOW, THERE IS A BIT OF A PRESS INVOLVED ON SOME DAYS - LIKE TOMORROW - WHEN WE ANTICIPATE LEAVING AT A CERTAIN TIME. MY FAMILY HAS BEEN VERY PATIENT THUS FAR THOUGH - INCLUDING MISSING 1 DAY OF OUR FAMILY REUNION DUE TO MY BODY JUST PLAIN NOT COOPERATING (AND WE WOULD HAVE MISSED IT ALL IF IT WEREN'T FOR MY FAMILY BEING FLEXIBLE, AND ALLOWING SOME THINGS TO BE PUT OFF UNTIL THE RETURN TRIP HOME.) ANYWAY, NEED TO GO TO SLEEP. FEEL FATIGUE. PERHAPS THE VOMITING WILL HAVE SUBSIDED SOON (MAIN REASON I'M UP STILL). BY THE WAY, I DID TAKE YOUR ADVICE, AND MY WIFE WAS PROUD OF ME. I TOOK THE RECOMMENDED SIESTA TODAY - LATE - BUT I TOOK IT. USED TO BE THAT DOING SO WOULD WIRE ME FOR THE NIGHT - BUT SIMPLY NOT THE CASE ANYMORE. NOWADAYS, DOESN'T MATTER HOW MUCH SLEEP I GET DURING THE DAY, I'M STILL READY FOR BED AT NIGHT. THANKS FOR THAT ADVICE THOUGH. I'LL TRY TO BE NICER TO MYSELF - AND ALLOW MYSELF TO SLEEP WHEN I FEEL THE NEED (OF COURSE, IT DOESN'T MATTER WHAT I 'ALLOW' MYSELF TO DO - BECAUSE I WILL CRASH IF I DON'T - MY BODY WILL BE VICTORIOUS - OR SO IT SEEMS!) PAUL PAUL > , > > You seem to be on pills I take for my heart rather than those my wife took for MSA. I also take Toprol XL and aspirin. > > Take care, Bill Werre Quote Link to comment Share on other sites More sharing options...
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