Re: [MSA]To All with ..gastric fullness...

[Guest guest]

Hi All

Will ALL those suffering lack of appetite, PlEASE, PLEASE get a

gastric emptying test done! This is essential if you cannot eat what

you should be, or used to. This kind of fullness I have seen written

about is not normal. Gastroparesis is not an uncommon symptom. I got

this myself, and before this test was done I nearly starved to death!!

I lost all appetite in the end, and felt so full after the tiniest

amount could eat no more. With neuro disease this can happen because

simply brain messages dont get to the stomach to tell it to work, so

it becomes paralysed. I lost weight to dangerous levels and was given

days or perhaps if lucky a few weeks to live. I had lost all fat and

my body was stealing from my muscles to fuel the body which is very

weakening. In my case it should have been seen to earlier but had a

gastro when mine was away that DID NOT do this test. As soon as my own

gastro came back to Aussie it was the first test he did. Two weeks

later I had a gastric pace maker, and then and since could eat

normally. It saved my life and I have put on weight and regained a

lot more strength now.

Ice cream wont cut it!!!!!! You cannot live on that! The reason you

can manage that is because it is liquid.

So I am pleading that you at least have this confirmed or ruled out!!

Dont wait as I had no choice but to do because I didn't know what was

wrong, until you could be in deep trouble.

Frequent small meals help yes, but if you have gastroparesis it will

not eventually be enough as the stomach slows down to maintain weight.

I was drinking Sustegan but eventually could not even take enough of

that to help. With gastroparesis food stays in the stomach for a long

time. It is like trying to put food in a still full stomach. IT

DOESN'T WORK!!

I am sorry if this sounds a bit heavy but I have good reason to want

you to be tested so you don't get as I was. It was horrible and so

easily fixed

Love from Aussie Anne still batling flu.

> Dodie,

>

> The best solution, which I forgot to mention, is frequent small

meals. This

> helps with the OH and the fullness.

>

> Rob always makes sure one of his " small meals " is ice cream :-).

> His favorite is Ben and Jerry's -- pretty much any flavor will do

but he

> does like Cherry , World's Best Vanilla, and Chunky Monkey.

(But not

> my favorite, Chubby Hubby!)

>

> Carol & Rob

> Lexington, MA

> ..gastric fullness...

>

>

> > Carol L., your explanation sure made sense to me. I started to cut

back as

> > the OH was a real problem after I ate. Then I noticed that

whenever I ate,

> > hours later I still felt as if I had just eaten. Then the gastric

reflex

> > began and I really began cutting back. Now I just eat a fraction

of what I

> > used to and I'm satisfied. (LOL, wish I could have eaten this was

before,

> > I'd never had a weight problem). Dodie in MO

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >

> >

[Guest guest]

I've added Anne's great note to our bookmarks section

under " Symptoms " " Stomach & Digestive Problems " . I'll also find the

link for the gastric pacemaker she had installed.

Hugs,

Pam

> > Dodie,

> >

> > The best solution, which I forgot to mention, is frequent small

> meals. This

> > helps with the OH and the fullness.

> >

> > Rob always makes sure one of his " small meals " is ice cream :-).

> > His favorite is Ben and Jerry's -- pretty much any flavor will do

> but he

> > does like Cherry , World's Best Vanilla, and Chunky

Monkey.

> (But not

> > my favorite, Chubby Hubby!)

> >

> > Carol & Rob

> > Lexington, MA

> > ..gastric fullness...

> >

> >

> > > Carol L., your explanation sure made sense to me. I started to

cut

> back as

> > > the OH was a real problem after I ate. Then I noticed that

> whenever I ate,

> > > hours later I still felt as if I had just eaten. Then the

gastric

> reflex

> > > began and I really began cutting back. Now I just eat a

fraction

> of what I

> > > used to and I'm satisfied. (LOL, wish I could have eaten this

was

> before,

> > > I'd never had a weight problem). Dodie in MO

> > >

> > >

> > > If you do not wish to belong to shydrager, you may

> > > unsubscribe by sending a blank email to

> > >

> > > shydrager-unsubscribe@y...

> > >

> > >

> > >

> > >

> > >