Marilyn/ insurence

[Guest guest]

Marilyn, I have the ultimate weapon when it comes to this insurance company. And

it is better then the pointy shoes. Darren (hubby) works for a major corporation

that is championing my medical. When I get to frustrated and tired of their

games I call my personal HR rep and he takes it to his boss and presto things

change. But I don't want to abuse this. And am trying to work with the insurance

company.

Yes the kids have another appointment with him. I need him to finish his testing

and write his report. Hopefully by then we can get him to refer us to MAYO, then

the insurance company will agree to this.

Unfortunately, there is a strong line of RP in my Mom's side of the family. Just

un dxed. When I first got sick, Mom asked all of the family members to send her

their medical history, which is no small task. And it lays out just a bold as

black and white on paper.

One thing we have to remember about RP is that the first mention of this disease

in any medical journal was in 1923 and that was in Vienna. So the medical

profession is really new to this disease. It is comforting to see the explosion

of medical articles being written on this subject. 5 years ago it was believed

that the dx of RP meant that you only had about 5 - 10 years before you died.

Most likely because the disease had spread so much that it was blatantly obvious

that it was RP. But now they are catching it in the beginning stages and with

the medical advancements for most of us it is controllable.

And thanks to Dr. like Jean Buckner, Trentham, Zizzica and Herrom they

are blazing the way for new and more research in this field.

Thanks for all your love and support.

R.

Wow, I hope you let that doctor have it with a pointy toe. You

certainly have a right to vent your frustration. This is ridiculous

what these insurance companies make us do. This doctor sounds like a

real jerk. I hope you don't have to take the kids back to him.

I am curious about this genetic thing. Is there any history of

others in your family having RP? I sure hope and pray that none of

my kids ever get this stuff. Love, Marilyn

[Guest guest]

Thanks ,

My mom had something called chrondo----, she lived in MT where there

weren't many doctors that knew anything about it, (this has been 15

years ago), and now I am wondering if her disease could have

predisposed me to RP.

Marilyn

Marilyn, I have the ultimate weapon when it comes to this insurance

company. And it is better then the pointy shoes. Darren (hubby) works

for a major corporation that is championing my medical. When I get to

frustrated and tired of their games I call my personal HR rep and he

takes it to his boss and presto things change. But I don't want to

abuse this. And am trying to work with the insurance company.

> Yes the kids have another appointment with him. I need him to

finish his testing and write his report. Hopefully by then we can get

him to refer us to MAYO, then the insurance company will agree to

this.

>

> Unfortunately, there is a strong line of RP in my Mom's side of the

family. Just un dxed. When I first got sick, Mom asked all of the

family members to send her their medical history, which is no small

task. And it lays out just a bold as black and white on paper.

>

> One thing we have to remember about RP is that the first mention of

this disease in any medical journal was in 1923 and that was in

Vienna. So the medical profession is really new to this disease. It

is comforting to see the explosion of medical articles being written

on this subject. 5 years ago it was believed that the dx of RP meant

that you only had about 5 - 10 years before you died. Most likely

because the disease had spread so much that it was blatantly obvious

that it was RP. But now they are catching it in the beginning stages

and with the medical advancements for most of us it is controllable.

> And thanks to Dr. like Jean Buckner, Trentham, Zizzica and

Herrom they are blazing the way for new and more research in this

field.

>

> Thanks for all your love and support.

>

> R.

>

> Wow, I hope you let that doctor have it with a pointy toe. You

> certainly have a right to vent your frustration. This is

ridiculous

> what these insurance companies make us do. This doctor sounds like

a

> real jerk. I hope you don't have to take the kids back to him.

>

> I am curious about this genetic thing. Is there any history of

> others in your family having RP? I sure hope and pray that none of

> my kids ever get this stuff. Love, Marilyn

>

>

>

>

[Guest guest]

Hi, sure wish I had some....I could use a good fight now and then...Sue