Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 Hi everyone. I have not posted nor had time to read most of your emails. has been very ill and has been diagnosised with Wegener's. It is a form of vasculitis and has attacked her lungs. The doctors think it caused her hearing loss. One of the symptoms of Wegener's is chondritis of the ear. Wegener's is very much like RP but it attacks the lungs and kidneys. So far her kidneys are not involved. They have started her on a drug called Cytoxan and it is making her very nauseated. She also became jaundice and her GI doctor went in a opened a bile duct up some. He was not sure if that was the problem, but her bili is going down, so maybe this fixed that. Anyway, and I have joined the Wegener's support group and we are going to leave this group. Thank you for all your support and prayers. You will always be on my mind during my search for answers for 's problems and in my prayers. Your friend, Cindy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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