Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Bill, Thanks for that feedback. I had my own fears of the weakness of the scientific backing and wanted to hear what people thought since there were some interesting references on the site . I had not noticed the purchase supplements possibility link yet. Did someone call and get a video then get a further sales pitch? So, do any of our British friends know of this Biochemistry Research Institute in the UK where the main paper is from? Or the Nutritional Medicine Research UK? It is great to hear more from the British people on the board, like recently, as new research is undertaken there. Thanks again for the reminder to the board of watching out for people riding the coat-tails of the latest research and preying on any rising hopes. Even the good researchers, as we know, often make things sound better in order to get more funding. Cheers, Zac _________ > Zac > > We have seen that site before and have great reservations about the link to MSA or Shy-Drager. Most of the studies are preliminery and refer to PD not SDS or MSA. The main paper about MSA or SDS is in a journal which is not recognised as a medical journal. > > Scientific studies done in a double blind manner are usually supplied with free supplements to test subjects, as far as we can tell this site sells the supplements. I wish it was true, but I want to see results of a doubleblind study published in a science journal before I would use it. > > Take care, Bill Werre > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Zac, I wrote to the Matheson Trust for Multiple System Atrophy to ask if they could have some MSA experts in the UK give us feedback on that site. Here was the response: Regards, Pam Re: www.shydrager.com > Bill, > > Thanks for that feedback. I had my own fears of the weakness of the > scientific backing and wanted to hear what people thought since there > were some interesting references on the site . I had not noticed the > purchase supplements possibility link yet. Did someone call and get a > video then get a further sales pitch? > > So, do any of our British friends know of this Biochemistry Research > Institute in the UK where the main paper is from? Or the Nutritional > Medicine Research UK? It is great to hear more from the British > people on the board, like recently, as new research is undertaken > there. > > Thanks again for the reminder to the board of watching out for people > riding the coat-tails of the latest research and preying on any > rising hopes. Even the good researchers, as we know, often make > things sound better in order to get more funding. > > Cheers, > > Zac > _________ > > > > Zac > > > > We have seen that site before and have great reservations about the > link to MSA or Shy-Drager. Most of the studies are preliminery and > refer to PD not SDS or MSA. The main paper about MSA or SDS is in a > journal which is not recognised as a medical journal. > > > > Scientific studies done in a double blind manner are usually > supplied with free supplements to test subjects, as far as we can > tell this site sells the supplements. I wish it was true, but I want > to see results of a doubleblind study published in a science journal > before I would use it. > > > > Take care, Bill Werre > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Oh, I forgot to mention that the people at that website had been writing to many of us on the list privately and offering to send a video describing their food supplements. This is what got us suspicious about them. One person did get the videos and the supplement is called Gimmel's Extract. My searches for this on the web haven't turned up anything yet. I'm sure Best at the Matheson Trust in the UK will write again when she has seen the video and has more information. Take care, Pam Re: www.shydrager.com > > > > Bill, > > > > Thanks for that feedback. I had my own fears of the weakness of the > > scientific backing and wanted to hear what people thought since there > > were some interesting references on the site . I had not noticed the > > purchase supplements possibility link yet. Did someone call and get a > > video then get a further sales pitch? > > > > So, do any of our British friends know of this Biochemistry Research > > Institute in the UK where the main paper is from? Or the Nutritional > > Medicine Research UK? It is great to hear more from the British > > people on the board, like recently, as new research is undertaken > > there. > > > > Thanks again for the reminder to the board of watching out for people > > riding the coat-tails of the latest research and preying on any > > rising hopes. Even the good researchers, as we know, often make > > things sound better in order to get more funding. > > > > Cheers, > > > > Zac > > _________ > > > > > > > Zac > > > > > > We have seen that site before and have great reservations about the > > link to MSA or Shy-Drager. Most of the studies are preliminery and > > refer to PD not SDS or MSA. The main paper about MSA or SDS is in a > > journal which is not recognised as a medical journal. > > > > > > Scientific studies done in a double blind manner are usually > > supplied with free supplements to test subjects, as far as we can > > tell this site sells the supplements. I wish it was true, but I want > > to see results of a doubleblind study published in a science journal > > before I would use it. > > > > > > Take care, Bill Werre > > > > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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