Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 , Yes, I would like to be included in the survey. Thought I sent you my name and address since you said this latest one was to be by mail. Think you mentioned you needed 100 to participate in it. I don't ever remember my mom having the flares on her ears or nose, but then I lived away from MT for many years when she first got sick. I do remember that when she passed a way, the doctors sent a sample of some of her tissue to Walter Army Medical center and for the life of me, I do not know why. Always thought that was rather odd. Love, marilyn Marilyn, I firmly believe that RP is genetic. Or at least has the tendencies of running in families. Your Mom could very eaily have had Rp and it was not dx. > As for doctors knowing much about RP very few do. It is about three paragraphs in the medical school texts and what is published in their medical journals. > I haven't looked by are you part of the study that I am running? If not lets getting included. > > R > > My mom had something called chrondo----, she lived in MT where there > weren't many doctors that knew anything about it, (this has been 15 > years ago), and now I am wondering if her disease could have > predisposed me to RP. > Marilyn > > > > Quote Link to comment Share on other sites More sharing options...
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