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Re: Sandy/Janet

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Thank you Sandy for the explanation. Brett has been inflamed around his

eyes a lot these past months. He just saw the eye doctor and got a clean

bill of health. I sometimes think that the Eye dr. doesn't know what to

look for when it comes to RP....even the Rheumy for that matter...do I

sound cynical or what?

>In regard to your question about eyes and RP.

>The prednisone is the culprit -

>I have cateracts on both eyes that are prednisone induced!!!

>The right has become so bad that I am having surgery to remove the

>cateract!!

>Also there is cartilage in the orbits and etc and when that becomes

>inflammed - you have pressure and that in turn causes lots of eye pain!!

>and headache!!

>

and Janet,

Sorry to hear about Pete's eyes. I hope that the Dr. in Boston will give

you some good advice. Keep us posted !

B.

> From: Baaboo19@...

>Subject: Re: Re: eyes -RP

>

>In a message dated 06/09/2001 7:57:28 AM Eastern Daylight Time,

>bklyn1429@... writes:

>

>

>> Hospital/Harkness Pavilion in NYC named Dr. Weiss and after a very

>> thorough exam ( even ultrasound of the eyes!) he found that my

inflamations

>>

>

>Hi- Pete went to Harkness Eye Pavillion too...he saw a Dr.Trokel who was

very

>nice and very thorough but admitted he knew nothing about RP..I brought some

>info about the eyes and RP which he took the time to read...so now we are

>trying to set up an appointment with C. in Boston who is

>knowledgeable in RP and the eyes. Pete's eyes are getting worse and the only

>thing that seems to help is the pred which makes the eyes worse at the same

>time...very frustrating. Janet

>

>

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