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Posted
Posted

Hi -Jane, I remember I read your note the other day and was a bit

confused because I thought pure table salt was the chemical NaCl (Sodium

Chloride) and therefore salt itself did not contain the element Potassium...

(but maybe salt TABLETS have Potassium included? Anyone know?)

Regardless, I'm guessing that maybe the doctor meant that she should eat

prepackaged salty foods which would also have lots of sodium and

potassium... things like canned soups or bouillon for instance.

This subject of taking Potassium when on Florinef has been mentioned before.

It has also been mentioned that another side effect of Florinef use is that

it will also deplete Calcium and can lead to osteoporosis.

We have this link saved in our bookmarks

SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF

http://www.geocities.com/HotSprings/Resort/4554/diet.html

An adult requires between 1,600 to 2,000 mg of potassium per day to maintain

health. However, those who are taking Florinef will have a higher need

because the drug depletes potassium. Unlike sodium, manufacturers are not

required to list the amount of potassium on food labels. For this reason, it

is important that you become familiar with the food items listed below.

Generally, good sources of potassium include milk, meats, and fruits, and

vegetables. Below is a more complete list of potassium content of various

foods.

Beans/Peas -- mg of Potassium:

Pork and Beans (1/2 cup) -- 335

Lima Beans (1/2 cup) -- 480

Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350

Cereals:

Bran buds, All Bran (1/2 cup) -- 380

Fiber One, Grape Nuts (1/2 cup) -- 240

Raisin Bran (1/2 cup) -- 175

Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380

Dairy Products:

Milk (1 cup) -- 400

Yogurt (1 cup) -- 400-500

Instant Breakfasts -- Carnation, Delmark,

Slimfast, made with milk (1 cup) -- 600-800

Hot Cocoa made with milk (1 cup) -- 600-800

Instant Chocolate Pudding (1/2 cup) -- 200-300

Simple Pleasures frozen desert (1/2 cup) -- 200-300

Ice Cream/Ice Milk (1 cup) -- 200-400

Miscellaneous:

Molasses, Blackstrap (1 Tbsp) -- 585

Spaghetti Sauce (1/2 cup) -- 475

Cream soups made with milk (1 cup) -- 300-450

Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300

Split Pea Soup (1 cup) -- 400

Fruits:

Apple juice/Applecider (1 cup) -- 300

Apricot Nectar (1 cup) -- 286

Avocado (1/2) -- 550-750

Banana (1 Banana) -- 451

Honeydew melon/Cantelope (1 cup) -- 460-500

Kiwi (1 Kiwi) -- 250

Nectarine (1 Nectarine) -- 288

Orange or Grapefruit juice (1/2 cup) -- 200

Orange (1 Orange) -- 240

Pineapple (1 cup) -- 270

Plum (1 medium) -- 110

Prunes, cooked (1/2 cup) -- 370

Raisins (1 oz. box) -- 220

Strawberries (1 cup) -- 250

Meats:

Beef, Chicken, Pork, Lamb, Fish, and Shellfish

(except imitation crab, 3 1/2 oz. cooked,

about the size of a deck of cards) -- 200-400

Chili with beans, 1 cup -- 500

Enchiladas (chicken, 8.25 oz. entree) -- 624

Hamburger helper, 1 serving -- 440

Lasagna, Stouffers, 8 oz. entree -- 363

Pizza, Lean Cuisine, 5.1 oz. entree -- 300

Vegetables:

Asparagus (1/2 cup cooked) -- 280

Broccoli, Carrots or Mixed Vegetables,

frozen, cooked (1 cup) -- 300-350

Brussel Sprouts, Zucchini, Collards, Kale,

Parsnips, frozen, cooked (1 cup) -- 450-600

Carrot, 1 whole, raw -- 233

Cauliflower, Corn, Peas, and Carrots,

frozen, cooked (1 cup) -- 200-300

Cucumber, 1 whole -- 430

Tomato, 1 medium, raw -- 270

Potato, 1 large, baked -- 600

Sweet Potato, 1 large, baked -- 400

V-8 Tomato juice cocktail (1 cup) -- 570

Re: vacation

> Hans:

>

> How interesting about needing potassium when taking florinef. Perhaps

> that's why my mother's dr. told her to be sure to use salt because she

> needs the potassium. It's certainly something she's remembered amongst

> all her other forgotten facts. :))

>

> -Jane

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Posted
Posted

Pam,

She mentioned " Lite salt " which here in the USA is 50% NaCl and 50% KCl. I am

not sure that is the best combination for someone with autonomic failure. The

should have blood work done often anyway to check on the chemistry.

Take care, Bill Werre

=============================================

>

>

> Date: 2002/07/18 Thu AM 11:38:45 CDT

> To: " sds " shydrager >

> Subject: Re: Potassium / Salt / Florinef

>

> Hi -Jane, I remember I read your note the other day and was a bit

> confused because I thought pure table salt was the chemical NaCl (Sodium

> Chloride) and therefore salt itself did not contain the element Potassium...

> (but maybe salt TABLETS have Potassium included? Anyone know?)

>

> Regardless, I'm guessing that maybe the doctor meant that she should eat

> prepackaged salty foods which would also have lots of sodium and

> potassium... things like canned soups or bouillon for instance.

>

> This subject of taking Potassium when on Florinef has been mentioned before.

> It has also been mentioned that another side effect of Florinef use is that

> it will also deplete Calcium and can lead to osteoporosis.

>

> We have this link saved in our bookmarks

>

> SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF

> http://www.geocities.com/HotSprings/Resort/4554/diet.html

>

> An adult requires between 1,600 to 2,000 mg of potassium per day to maintain

> health. However, those who are taking Florinef will have a higher need

> because the drug depletes potassium. Unlike sodium, manufacturers are not

> required to list the amount of potassium on food labels. For this reason, it

> is important that you become familiar with the food items listed below.

> Generally, good sources of potassium include milk, meats, and fruits, and

> vegetables. Below is a more complete list of potassium content of various

> foods.

> Beans/Peas -- mg of Potassium:

> Pork and Beans (1/2 cup) -- 335

> Lima Beans (1/2 cup) -- 480

> Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350

> Cereals:

> Bran buds, All Bran (1/2 cup) -- 380

> Fiber One, Grape Nuts (1/2 cup) -- 240

> Raisin Bran (1/2 cup) -- 175

> Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380

> Dairy Products:

> Milk (1 cup) -- 400

> Yogurt (1 cup) -- 400-500

> Instant Breakfasts -- Carnation, Delmark,

> Slimfast, made with milk (1 cup) -- 600-800

> Hot Cocoa made with milk (1 cup) -- 600-800

> Instant Chocolate Pudding (1/2 cup) -- 200-300

> Simple Pleasures frozen desert (1/2 cup) -- 200-300

> Ice Cream/Ice Milk (1 cup) -- 200-400

> Miscellaneous:

> Molasses, Blackstrap (1 Tbsp) -- 585

> Spaghetti Sauce (1/2 cup) -- 475

> Cream soups made with milk (1 cup) -- 300-450

> Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300

> Split Pea Soup (1 cup) -- 400

> Fruits:

> Apple juice/Applecider (1 cup) -- 300

> Apricot Nectar (1 cup) -- 286

> Avocado (1/2) -- 550-750

> Banana (1 Banana) -- 451

> Honeydew melon/Cantelope (1 cup) -- 460-500

> Kiwi (1 Kiwi) -- 250

> Nectarine (1 Nectarine) -- 288

> Orange or Grapefruit juice (1/2 cup) -- 200

> Orange (1 Orange) -- 240

> Pineapple (1 cup) -- 270

> Plum (1 medium) -- 110

> Prunes, cooked (1/2 cup) -- 370

> Raisins (1 oz. box) -- 220

> Strawberries (1 cup) -- 250

>

> Meats:

> Beef, Chicken, Pork, Lamb, Fish, and Shellfish

> (except imitation crab, 3 1/2 oz. cooked,

> about the size of a deck of cards) -- 200-400

> Chili with beans, 1 cup -- 500

> Enchiladas (chicken, 8.25 oz. entree) -- 624

> Hamburger helper, 1 serving -- 440

> Lasagna, Stouffers, 8 oz. entree -- 363

> Pizza, Lean Cuisine, 5.1 oz. entree -- 300

>

>

> Vegetables:

>

> Asparagus (1/2 cup cooked) -- 280

> Broccoli, Carrots or Mixed Vegetables,

> frozen, cooked (1 cup) -- 300-350

> Brussel Sprouts, Zucchini, Collards, Kale,

> Parsnips, frozen, cooked (1 cup) -- 450-600

> Carrot, 1 whole, raw -- 233

> Cauliflower, Corn, Peas, and Carrots,

> frozen, cooked (1 cup) -- 200-300

> Cucumber, 1 whole -- 430

> Tomato, 1 medium, raw -- 270

> Potato, 1 large, baked -- 600

> Sweet Potato, 1 large, baked -- 400

> V-8 Tomato juice cocktail (1 cup) -- 570

>

>

>

> Re: vacation

>

>

> > Hans:

> >

> > How interesting about needing potassium when taking florinef. Perhaps

> > that's why my mother's dr. told her to be sure to use salt because she

> > needs the potassium. It's certainly something she's remembered amongst

> > all her other forgotten facts. :))

> >

> > -Jane

>

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

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Posted
Posted

Hi,

The salt tablets that my husband uses have 15 mg of Potassium in them.

Beth

On Thu, 18 Jul 2002 13:38:45 -0300 " Pam Bower " pbower@...>

writes:

> Hi -Jane, I remember I read your note the other day and was a

> bit

> confused because I thought pure table salt was the chemical NaCl

> (Sodium

> Chloride) and therefore salt itself did not contain the element

> Potassium...

> (but maybe salt TABLETS have Potassium included? Anyone know?)

>

> Regardless, I'm guessing that maybe the doctor meant that she should

> eat

> prepackaged salty foods which would also have lots of sodium and

> potassium... things like canned soups or bouillon for instance.

>

> This subject of taking Potassium when on Florinef has been mentioned

> before.

> It has also been mentioned that another side effect of Florinef use

> is that

> it will also deplete Calcium and can lead to osteoporosis.

>

> We have this link saved in our bookmarks

>

> SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF

> http://www.geocities.com/HotSprings/Resort/4554/diet.html

>

> An adult requires between 1,600 to 2,000 mg of potassium per day to

> maintain

> health. However, those who are taking Florinef will have a higher

> need

> because the drug depletes potassium. Unlike sodium, manufacturers

> are not

> required to list the amount of potassium on food labels. For this

> reason, it

> is important that you become familiar with the food items listed

> below.

> Generally, good sources of potassium include milk, meats, and

> fruits, and

> vegetables. Below is a more complete list of potassium content of

> various

> foods.

> Beans/Peas -- mg of Potassium:

> Pork and Beans (1/2 cup) -- 335

> Lima Beans (1/2 cup) -- 480

> Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350

> Cereals:

> Bran buds, All Bran (1/2 cup) -- 380

> Fiber One, Grape Nuts (1/2 cup) -- 240

> Raisin Bran (1/2 cup) -- 175

> Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380

> Dairy Products:

> Milk (1 cup) -- 400

> Yogurt (1 cup) -- 400-500

> Instant Breakfasts -- Carnation, Delmark,

> Slimfast, made with milk (1 cup) -- 600-800

> Hot Cocoa made with milk (1 cup) -- 600-800

> Instant Chocolate Pudding (1/2 cup) -- 200-300

> Simple Pleasures frozen desert (1/2 cup) -- 200-300

> Ice Cream/Ice Milk (1 cup) -- 200-400

> Miscellaneous:

> Molasses, Blackstrap (1 Tbsp) -- 585

> Spaghetti Sauce (1/2 cup) -- 475

> Cream soups made with milk (1 cup) -- 300-450

> Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300

> Split Pea Soup (1 cup) -- 400

> Fruits:

> Apple juice/Applecider (1 cup) -- 300

> Apricot Nectar (1 cup) -- 286

> Avocado (1/2) -- 550-750

> Banana (1 Banana) -- 451

> Honeydew melon/Cantelope (1 cup) -- 460-500

> Kiwi (1 Kiwi) -- 250

> Nectarine (1 Nectarine) -- 288

> Orange or Grapefruit juice (1/2 cup) -- 200

> Orange (1 Orange) -- 240

> Pineapple (1 cup) -- 270

> Plum (1 medium) -- 110

> Prunes, cooked (1/2 cup) -- 370

> Raisins (1 oz. box) -- 220

> Strawberries (1 cup) -- 250

>

> Meats:

> Beef, Chicken, Pork, Lamb, Fish, and Shellfish

> (except imitation crab, 3 1/2 oz. cooked,

> about the size of a deck of cards) -- 200-400

> Chili with beans, 1 cup -- 500

> Enchiladas (chicken, 8.25 oz. entree) -- 624

> Hamburger helper, 1 serving -- 440

> Lasagna, Stouffers, 8 oz. entree -- 363

> Pizza, Lean Cuisine, 5.1 oz. entree -- 300

>

>

> Vegetables:

>

> Asparagus (1/2 cup cooked) -- 280

> Broccoli, Carrots or Mixed Vegetables,

> frozen, cooked (1 cup) -- 300-350

> Brussel Sprouts, Zucchini, Collards, Kale,

> Parsnips, frozen, cooked (1 cup) -- 450-600

> Carrot, 1 whole, raw -- 233

> Cauliflower, Corn, Peas, and Carrots,

> frozen, cooked (1 cup) -- 200-300

> Cucumber, 1 whole -- 430

> Tomato, 1 medium, raw -- 270

> Potato, 1 large, baked -- 600

> Sweet Potato, 1 large, baked -- 400

> V-8 Tomato juice cocktail (1 cup) -- 570

>

>

>

> Re: vacation

>

>

> > Hans:

> >

> > How interesting about needing potassium when taking florinef.

> Perhaps

> > that's why my mother's dr. told her to be sure to use salt because

> she

> > needs the potassium. It's certainly something she's remembered

> amongst

> > all her other forgotten facts. :))

> >

> > -Jane

>

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

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Posted
Posted

Sheesh, Pam! You made me crawl into the back of the cupboard to find

our table salt so I coculd compare it with Mom's.

Mom uses HALF SALT " 1/2 the sodium of table salt - a free running

mixture of iodized salt and potassium chloride "

Our regular table salt has sodium, calcium silicate, potassium iodide,

and sodium thiosulphate.

Not being a chemist, I'm not sure what the difference is (if any)

between potassium chloride and potassium iodide. Anyone know?

I was always assumed her dr. meant for her to not jump on the no-salt

bandwagon as she doesn't have any medical reason to cut it entirely out

of her diet. So he suggested the half-salt since she needed potassium.

Is salt a big provider of potassium? I have no idea about this at all.

:))

She's been taking calcium for a number of years - since before she was

diagnosed with PAF. Osteoporosis doesn't run in the family, but she's

taking it to keep her bones as healthy as possible.

-Jane

Pam Bower wrote:

>

> Hi -Jane, I remember I read your note the other day and was a bit

> confused because I thought pure table salt was the chemical NaCl (Sodium

> Chloride) and therefore salt itself did not contain the element Potassium...

> (but maybe salt TABLETS have Potassium included? Anyone know?)

>

> Regardless, I'm guessing that maybe the doctor meant that she should eat

> prepackaged salty foods which would also have lots of sodium and

> potassium... things like canned soups or bouillon for instance.

>

> This subject of taking Potassium when on Florinef has been mentioned before.

> It has also been mentioned that another side effect of Florinef use is that

> it will also deplete Calcium and can lead to osteoporosis.

>

> We have this link saved in our bookmarks

>

> SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF

> http://www.geocities.com/HotSprings/Resort/4554/diet.html

>

> An adult requires between 1,600 to 2,000 mg of potassium per day to maintain

> health. However, those who are taking Florinef will have a higher need

> because the drug depletes potassium. Unlike sodium, manufacturers are not

> required to list the amount of potassium on food labels. For this reason, it

> is important that you become familiar with the food items listed below.

> Generally, good sources of potassium include milk, meats, and fruits, and

> vegetables. Below is a more complete list of potassium content of various

> foods.

> Beans/Peas -- mg of Potassium:

> Pork and Beans (1/2 cup) -- 335

> Lima Beans (1/2 cup) -- 480

> Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350

> Cereals:

> Bran buds, All Bran (1/2 cup) -- 380

> Fiber One, Grape Nuts (1/2 cup) -- 240

> Raisin Bran (1/2 cup) -- 175

> Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380

> Dairy Products:

> Milk (1 cup) -- 400

> Yogurt (1 cup) -- 400-500

> Instant Breakfasts -- Carnation, Delmark,

> Slimfast, made with milk (1 cup) -- 600-800

> Hot Cocoa made with milk (1 cup) -- 600-800

> Instant Chocolate Pudding (1/2 cup) -- 200-300

> Simple Pleasures frozen desert (1/2 cup) -- 200-300

> Ice Cream/Ice Milk (1 cup) -- 200-400

> Miscellaneous:

> Molasses, Blackstrap (1 Tbsp) -- 585

> Spaghetti Sauce (1/2 cup) -- 475

> Cream soups made with milk (1 cup) -- 300-450

> Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300

> Split Pea Soup (1 cup) -- 400

> Fruits:

> Apple juice/Applecider (1 cup) -- 300

> Apricot Nectar (1 cup) -- 286

> Avocado (1/2) -- 550-750

> Banana (1 Banana) -- 451

> Honeydew melon/Cantelope (1 cup) -- 460-500

> Kiwi (1 Kiwi) -- 250

> Nectarine (1 Nectarine) -- 288

> Orange or Grapefruit juice (1/2 cup) -- 200

> Orange (1 Orange) -- 240

> Pineapple (1 cup) -- 270

> Plum (1 medium) -- 110

> Prunes, cooked (1/2 cup) -- 370

> Raisins (1 oz. box) -- 220

> Strawberries (1 cup) -- 250

>

> Meats:

> Beef, Chicken, Pork, Lamb, Fish, and Shellfish

> (except imitation crab, 3 1/2 oz. cooked,

> about the size of a deck of cards) -- 200-400

> Chili with beans, 1 cup -- 500

> Enchiladas (chicken, 8.25 oz. entree) -- 624

> Hamburger helper, 1 serving -- 440

> Lasagna, Stouffers, 8 oz. entree -- 363

> Pizza, Lean Cuisine, 5.1 oz. entree -- 300

>

> Vegetables:

>

> Asparagus (1/2 cup cooked) -- 280

> Broccoli, Carrots or Mixed Vegetables,

> frozen, cooked (1 cup) -- 300-350

> Brussel Sprouts, Zucchini, Collards, Kale,

> Parsnips, frozen, cooked (1 cup) -- 450-600

> Carrot, 1 whole, raw -- 233

> Cauliflower, Corn, Peas, and Carrots,

> frozen, cooked (1 cup) -- 200-300

> Cucumber, 1 whole -- 430

> Tomato, 1 medium, raw -- 270

> Potato, 1 large, baked -- 600

> Sweet Potato, 1 large, baked -- 400

> V-8 Tomato juice cocktail (1 cup) -- 570

>

> Re: vacation

>

> > Hans:

> >

> > How interesting about needing potassium when taking florinef. Perhaps

> > that's why my mother's dr. told her to be sure to use salt because she

> > needs the potassium. It's certainly something she's remembered amongst

> > all her other forgotten facts. :))

> >

> > -Jane

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

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Posted
Posted

Bill:

Thanks for the tip. Can you elaborate on why you think it might not be

a good combination. I'd be interested in hearing what you have to say.

I did just ask Mom about which dr. recommended the Half-salt, but she

couldn't remember if it was before or after she was diagnosed with PAF.

I would contact her dr. with your information to see what his thoughts

were. Since her PAF dr. is actually a pharmacologist, he is extremely

knowledgeable about medications and such.

I was also wondering what amount of Florinef you all take for your MSA?

My Mom's is 0.1mg. She takes 2 a day, or 3 if she feels she needs

another " hit " . :))

Take care,

-Jane

b.werre@... wrote:

>

> Pam,

>

> She mentioned " Lite salt " which here in the USA is 50% NaCl and 50% KCl. I am

not sure that is the best combination for someone with autonomic failure. The

should have blood work done often anyway to check on the chemistry.

>

> Take care, Bill Werre

>

> =============================================

> >

> >

> > Date: 2002/07/18 Thu AM 11:38:45 CDT

> > To: " sds " shydrager >

> > Subject: Re: Potassium / Salt / Florinef

> >

> > Hi -Jane, I remember I read your note the other day and was a bit

> > confused because I thought pure table salt was the chemical NaCl (Sodium

> > Chloride) and therefore salt itself did not contain the element Potassium...

> > (but maybe salt TABLETS have Potassium included? Anyone know?)

> >

> > Regardless, I'm guessing that maybe the doctor meant that she should eat

> > prepackaged salty foods which would also have lots of sodium and

> > potassium... things like canned soups or bouillon for instance.

> >

> > This subject of taking Potassium when on Florinef has been mentioned before.

> > It has also been mentioned that another side effect of Florinef use is that

> > it will also deplete Calcium and can lead to osteoporosis.

> >

> > We have this link saved in our bookmarks

> >

> > SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF

> > http://www.geocities.com/HotSprings/Resort/4554/diet.html

> >

> > An adult requires between 1,600 to 2,000 mg of potassium per day to maintain

> > health. However, those who are taking Florinef will have a higher need

> > because the drug depletes potassium. Unlike sodium, manufacturers are not

> > required to list the amount of potassium on food labels. For this reason, it

> > is important that you become familiar with the food items listed below.

> > Generally, good sources of potassium include milk, meats, and fruits, and

> > vegetables. Below is a more complete list of potassium content of various

> > foods.

> > Beans/Peas -- mg of Potassium:

> > Pork and Beans (1/2 cup) -- 335

> > Lima Beans (1/2 cup) -- 480

> > Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350

> > Cereals:

> > Bran buds, All Bran (1/2 cup) -- 380

> > Fiber One, Grape Nuts (1/2 cup) -- 240

> > Raisin Bran (1/2 cup) -- 175

> > Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380

> > Dairy Products:

> > Milk (1 cup) -- 400

> > Yogurt (1 cup) -- 400-500

> > Instant Breakfasts -- Carnation, Delmark,

> > Slimfast, made with milk (1 cup) -- 600-800

> > Hot Cocoa made with milk (1 cup) -- 600-800

> > Instant Chocolate Pudding (1/2 cup) -- 200-300

> > Simple Pleasures frozen desert (1/2 cup) -- 200-300

> > Ice Cream/Ice Milk (1 cup) -- 200-400

> > Miscellaneous:

> > Molasses, Blackstrap (1 Tbsp) -- 585

> > Spaghetti Sauce (1/2 cup) -- 475

> > Cream soups made with milk (1 cup) -- 300-450

> > Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300

> > Split Pea Soup (1 cup) -- 400

> > Fruits:

> > Apple juice/Applecider (1 cup) -- 300

> > Apricot Nectar (1 cup) -- 286

> > Avocado (1/2) -- 550-750

> > Banana (1 Banana) -- 451

> > Honeydew melon/Cantelope (1 cup) -- 460-500

> > Kiwi (1 Kiwi) -- 250

> > Nectarine (1 Nectarine) -- 288

> > Orange or Grapefruit juice (1/2 cup) -- 200

> > Orange (1 Orange) -- 240

> > Pineapple (1 cup) -- 270

> > Plum (1 medium) -- 110

> > Prunes, cooked (1/2 cup) -- 370

> > Raisins (1 oz. box) -- 220

> > Strawberries (1 cup) -- 250

> >

> > Meats:

> > Beef, Chicken, Pork, Lamb, Fish, and Shellfish

> > (except imitation crab, 3 1/2 oz. cooked,

> > about the size of a deck of cards) -- 200-400

> > Chili with beans, 1 cup -- 500

> > Enchiladas (chicken, 8.25 oz. entree) -- 624

> > Hamburger helper, 1 serving -- 440

> > Lasagna, Stouffers, 8 oz. entree -- 363

> > Pizza, Lean Cuisine, 5.1 oz. entree -- 300

> >

> >

> > Vegetables:

> >

> > Asparagus (1/2 cup cooked) -- 280

> > Broccoli, Carrots or Mixed Vegetables,

> > frozen, cooked (1 cup) -- 300-350

> > Brussel Sprouts, Zucchini, Collards, Kale,

> > Parsnips, frozen, cooked (1 cup) -- 450-600

> > Carrot, 1 whole, raw -- 233

> > Cauliflower, Corn, Peas, and Carrots,

> > frozen, cooked (1 cup) -- 200-300

> > Cucumber, 1 whole -- 430

> > Tomato, 1 medium, raw -- 270

> > Potato, 1 large, baked -- 600

> > Sweet Potato, 1 large, baked -- 400

> > V-8 Tomato juice cocktail (1 cup) -- 570

> >

> >

> >

> > Re: vacation

> >

> >

> > > Hans:

> > >

> > > How interesting about needing potassium when taking florinef. Perhaps

> > > that's why my mother's dr. told her to be sure to use salt because she

> > > needs the potassium. It's certainly something she's remembered amongst

> > > all her other forgotten facts. :))

> > >

> > > -Jane

> >

> >

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe

> >

> >

> >

> >

> >

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Posted
Posted

Ann,

I am thinking that the ratio of sodium to potassium for a SDS patient should be

more like 65% sodium, 35% potassium - I don't know why this is stuck in my head.

Stick with what your doctor tells you though. I take it that your doctor checks

your mom's blood chemistry 3-4 times a year to keep an eye on what is going on

as someone said today.

Salt seems to be good for most patients with OH. So I would concentrate on

sodium until you know that potassium is needed, unless the doctor has told you

otherwise. BUT if the Lite salt is working, stick with it.

I have had heart problems (bypass surgery in 1996) but they seem to be under

control now. I use a mixture of about 50% Lite salt and 50% regular salt which

gives me about 25% potassium and 75% sodium. Seems to work for me. Getting my

blood work tomorrow, so will know by next Wednesday if it is still working.

Take care, Bill Werre

===========================================

>

>

> Date: 2002/07/18 Thu PM 07:38:09 CDT

> To: shydrager

> Subject: Re: Potassium / Salt / Florinef

>

> Bill:

>

> Thanks for the tip. Can you elaborate on why you think it might not be

> a good combination. I'd be interested in hearing what you have to say.

> I did just ask Mom about which dr. recommended the Half-salt, but she

> couldn't remember if it was before or after she was diagnosed with PAF.

> I would contact her dr. with your information to see what his thoughts

> were. Since her PAF dr. is actually a pharmacologist, he is extremely

> knowledgeable about medications and such.

>

> I was also wondering what amount of Florinef you all take for your MSA?

> My Mom's is 0.1mg. She takes 2 a day, or 3 if she feels she needs

> another " hit " . :))

>

> Take care,

>

> -Jane

>

> b.werre@... wrote:

> >

> > Pam,

> >

> > She mentioned " Lite salt " which here in the USA is 50% NaCl and 50% KCl. I

am not sure that is the best combination for someone with autonomic failure.

The should have blood work done often anyway to check on the chemistry.

> >

> > Take care, Bill Werre

> >

> > =============================================

> > >

> > >

> > > Date: 2002/07/18 Thu AM 11:38:45 CDT

> > > To: " sds " shydrager >

> > > Subject: Re: Potassium / Salt / Florinef

> > >

> > > Hi -Jane, I remember I read your note the other day and was a bit

> > > confused because I thought pure table salt was the chemical NaCl (Sodium

> > > Chloride) and therefore salt itself did not contain the element

Potassium...

> > > (but maybe salt TABLETS have Potassium included? Anyone know?)

> > >

> > > Regardless, I'm guessing that maybe the doctor meant that she should eat

> > > prepackaged salty foods which would also have lots of sodium and

> > > potassium... things like canned soups or bouillon for instance.

> > >

> > > This subject of taking Potassium when on Florinef has been mentioned

before.

> > > It has also been mentioned that another side effect of Florinef use is

that

> > > it will also deplete Calcium and can lead to osteoporosis.

> > >

> > > We have this link saved in our bookmarks

> > >

> > > SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF

> > > http://www.geocities.com/HotSprings/Resort/4554/diet.html

> > >

> > > An adult requires between 1,600 to 2,000 mg of potassium per day to

maintain

> > > health. However, those who are taking Florinef will have a higher need

> > > because the drug depletes potassium. Unlike sodium, manufacturers are not

> > > required to list the amount of potassium on food labels. For this reason,

it

> > > is important that you become familiar with the food items listed below.

> > > Generally, good sources of potassium include milk, meats, and fruits, and

> > > vegetables. Below is a more complete list of potassium content of various

> > > foods.

> > > Beans/Peas -- mg of Potassium:

> > > Pork and Beans (1/2 cup) -- 335

> > > Lima Beans (1/2 cup) -- 480

> > > Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350

> > > Cereals:

> > > Bran buds, All Bran (1/2 cup) -- 380

> > > Fiber One, Grape Nuts (1/2 cup) -- 240

> > > Raisin Bran (1/2 cup) -- 175

> > > Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380

> > > Dairy Products:

> > > Milk (1 cup) -- 400

> > > Yogurt (1 cup) -- 400-500

> > > Instant Breakfasts -- Carnation, Delmark,

> > > Slimfast, made with milk (1 cup) -- 600-800

> > > Hot Cocoa made with milk (1 cup) -- 600-800

> > > Instant Chocolate Pudding (1/2 cup) -- 200-300

> > > Simple Pleasures frozen desert (1/2 cup) -- 200-300

> > > Ice Cream/Ice Milk (1 cup) -- 200-400

> > > Miscellaneous:

> > > Molasses, Blackstrap (1 Tbsp) -- 585

> > > Spaghetti Sauce (1/2 cup) -- 475

> > > Cream soups made with milk (1 cup) -- 300-450

> > > Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300

> > > Split Pea Soup (1 cup) -- 400

> > > Fruits:

> > > Apple juice/Applecider (1 cup) -- 300

> > > Apricot Nectar (1 cup) -- 286

> > > Avocado (1/2) -- 550-750

> > > Banana (1 Banana) -- 451

> > > Honeydew melon/Cantelope (1 cup) -- 460-500

> > > Kiwi (1 Kiwi) -- 250

> > > Nectarine (1 Nectarine) -- 288

> > > Orange or Grapefruit juice (1/2 cup) -- 200

> > > Orange (1 Orange) -- 240

> > > Pineapple (1 cup) -- 270

> > > Plum (1 medium) -- 110

> > > Prunes, cooked (1/2 cup) -- 370

> > > Raisins (1 oz. box) -- 220

> > > Strawberries (1 cup) -- 250

> > >

> > > Meats:

> > > Beef, Chicken, Pork, Lamb, Fish, and Shellfish

> > > (except imitation crab, 3 1/2 oz. cooked,

> > > about the size of a deck of cards) -- 200-400

> > > Chili with beans, 1 cup -- 500

> > > Enchiladas (chicken, 8.25 oz. entree) -- 624

> > > Hamburger helper, 1 serving -- 440

> > > Lasagna, Stouffers, 8 oz. entree -- 363

> > > Pizza, Lean Cuisine, 5.1 oz. entree -- 300

> > >

> > >

> > > Vegetables:

> > >

> > > Asparagus (1/2 cup cooked) -- 280

> > > Broccoli, Carrots or Mixed Vegetables,

> > > frozen, cooked (1 cup) -- 300-350

> > > Brussel Sprouts, Zucchini, Collards, Kale,

> > > Parsnips, frozen, cooked (1 cup) -- 450-600

> > > Carrot, 1 whole, raw -- 233

> > > Cauliflower, Corn, Peas, and Carrots,

> > > frozen, cooked (1 cup) -- 200-300

> > > Cucumber, 1 whole -- 430

> > > Tomato, 1 medium, raw -- 270

> > > Potato, 1 large, baked -- 600

> > > Sweet Potato, 1 large, baked -- 400

> > > V-8 Tomato juice cocktail (1 cup) -- 570

> > >

> > >

> > >

> > > Re: vacation

> > >

> > >

> > > > Hans:

> > > >

> > > > How interesting about needing potassium when taking florinef. Perhaps

> > > > that's why my mother's dr. told her to be sure to use salt because she

> > > > needs the potassium. It's certainly something she's remembered amongst

> > > > all her other forgotten facts. :))

> > > >

> > > > -Jane

> > >

> > >

> > >

> > >

> > > If you do not wish to belong to shydrager, you may

> > > unsubscribe by sending a blank email to

> > >

> > > shydrager-unsubscribe

> > >

> > >

> > >

> > >

> > >

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Posted
Posted

Beside being a concern for the impact for blood chemistry, the potassium

chloride (KCl) can make food taste bad for some people. A small

percentage, definitely. Unfortunately I found out the hard way. A

great uncle offered it to me and it appeared to make a perfectly

wonderful breakfast taste as if everything had gone bad. Rotten eggs

and meat is NOT the way to start the day! Only my father had the same

reaction. Everyone else thought it tasted like salt.

Regards,

=jbf=

B. Fisher

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Posted
Posted

What a shame to ruin a perfectly good breakfast that way. It must be in

the taste buds. I've used my Mom's half-salt a bit and don't see

any difference. I don't use a lot of salt anyways.

-Jane

" B. Fisher " wrote:

>

> Beside being a concern for the impact for blood chemistry, the potassium

> chloride (KCl) can make food taste bad for some people. A small

> percentage, definitely. Unfortunately I found out the hard way. A

> great uncle offered it to me and it appeared to make a perfectly

> wonderful breakfast taste as if everything had gone bad. Rotten eggs

> and meat is NOT the way to start the day! Only my father had the same

> reaction. Everyone else thought it tasted like salt.

>

> Regards,

> =jbf=

>

> B. Fisher

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

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Posted
Posted

Hi:

Mom has never had to have her blood checked. And I'm wondering if this

is because she is probably on a much lower dose of florinef. I'm really

curious as to how much a day those with MSA are having to take?

Pure Autonomic Failure, I guess, is a very, very mild form of MSA? Her

dr. assured me that it's not progressive. Mom will not die because she

has PAF. She will probably live to 94 as her mother did. :)) Mostly

this PAF is a pain in the butt to live with. If she stands up or walks

or turns around or climbs stairs too quickly, she'll get dizzy but she's

never even come close to passing out. As long as she takes her

medication twice a day, her head stays pretty clear. She still has her

days when her head doesn't clear up as well as she'd like, but that only

happens about once a week. And I find that if I can get her busy, out

of the house or just doing anything that will take her mind off her

" thick " head, it will clear and be just fine for the rest of the day.

Honestly some days she has waaay more energy than I do. :)) The biggest

adjustment that she's had to make is that she can't jump out of bed in

the morning and do a million things by noon like she used to. She has

to take her cafergot and florinef about an hour before she gets out of

bed. Then sit on the edge of the bed for a few minutes before getting

up.

I'm rambling here. Time for bed.

-Jane

b.werre@... wrote:

>

> Ann,

>

> I am thinking that the ratio of sodium to potassium for a SDS patient should

be more like 65% sodium, 35% potassium - I don't know why this is stuck in my

head. Stick with what your doctor tells you though. I take it that your doctor

checks your mom's blood chemistry 3-4 times a year to keep an eye on what is

going on as someone said today.

>

> Salt seems to be good for most patients with OH. So I would concentrate on

sodium until you know that potassium is needed, unless the doctor has told you

otherwise. BUT if the Lite salt is working, stick with it.

>

> I have had heart problems (bypass surgery in 1996) but they seem to be under

control now. I use a mixture of about 50% Lite salt and 50% regular salt which

gives me about 25% potassium and 75% sodium. Seems to work for me. Getting my

blood work tomorrow, so will know by next Wednesday if it is still working.

>

> Take care, Bill Werre

>

> ===========================================

> >

> >

> > Date: 2002/07/18 Thu PM 07:38:09 CDT

> > To: shydrager

> > Subject: Re: Potassium / Salt / Florinef

> >

> > Bill:

> >

> > Thanks for the tip. Can you elaborate on why you think it might not be

> > a good combination. I'd be interested in hearing what you have to say.

> > I did just ask Mom about which dr. recommended the Half-salt, but she

> > couldn't remember if it was before or after she was diagnosed with PAF.

> > I would contact her dr. with your information to see what his thoughts

> > were. Since her PAF dr. is actually a pharmacologist, he is extremely

> > knowledgeable about medications and such.

> >

> > I was also wondering what amount of Florinef you all take for your MSA?

> > My Mom's is 0.1mg. She takes 2 a day, or 3 if she feels she needs

> > another " hit " . :))

> >

> > Take care,

> >

> > -Jane

> >

> > b.werre@... wrote:

> > >

> > > Pam,

> > >

> > > She mentioned " Lite salt " which here in the USA is 50% NaCl and 50% KCl.

I am not sure that is the best combination for someone with autonomic failure.

The should have blood work done often anyway to check on the chemistry.

> > >

> > > Take care, Bill Werre

> > >

> > > =============================================

> > > >

> > > >

> > > > Date: 2002/07/18 Thu AM 11:38:45 CDT

> > > > To: " sds " shydrager >

> > > > Subject: Re: Potassium / Salt / Florinef

> > > >

> > > > Hi -Jane, I remember I read your note the other day and was a bit

> > > > confused because I thought pure table salt was the chemical NaCl (Sodium

> > > > Chloride) and therefore salt itself did not contain the element

Potassium...

> > > > (but maybe salt TABLETS have Potassium included? Anyone know?)

> > > >

> > > > Regardless, I'm guessing that maybe the doctor meant that she should eat

> > > > prepackaged salty foods which would also have lots of sodium and

> > > > potassium... things like canned soups or bouillon for instance.

> > > >

> > > > This subject of taking Potassium when on Florinef has been mentioned

before.

> > > > It has also been mentioned that another side effect of Florinef use is

that

> > > > it will also deplete Calcium and can lead to osteoporosis.

> > > >

> > > > We have this link saved in our bookmarks

> > > >

> > > > SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF

> > > > http://www.geocities.com/HotSprings/Resort/4554/diet.html

> > > >

> > > > An adult requires between 1,600 to 2,000 mg of potassium per day to

maintain

> > > > health. However, those who are taking Florinef will have a higher need

> > > > because the drug depletes potassium. Unlike sodium, manufacturers are

not

> > > > required to list the amount of potassium on food labels. For this

reason, it

> > > > is important that you become familiar with the food items listed below.

> > > > Generally, good sources of potassium include milk, meats, and fruits,

and

> > > > vegetables. Below is a more complete list of potassium content of

various

> > > > foods.

> > > > Beans/Peas -- mg of Potassium:

> > > > Pork and Beans (1/2 cup) -- 335

> > > > Lima Beans (1/2 cup) -- 480

> > > > Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350

> > > > Cereals:

> > > > Bran buds, All Bran (1/2 cup) -- 380

> > > > Fiber One, Grape Nuts (1/2 cup) -- 240

> > > > Raisin Bran (1/2 cup) -- 175

> > > > Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380

> > > > Dairy Products:

> > > > Milk (1 cup) -- 400

> > > > Yogurt (1 cup) -- 400-500

> > > > Instant Breakfasts -- Carnation, Delmark,

> > > > Slimfast, made with milk (1 cup) -- 600-800

> > > > Hot Cocoa made with milk (1 cup) -- 600-800

> > > > Instant Chocolate Pudding (1/2 cup) -- 200-300

> > > > Simple Pleasures frozen desert (1/2 cup) -- 200-300

> > > > Ice Cream/Ice Milk (1 cup) -- 200-400

> > > > Miscellaneous:

> > > > Molasses, Blackstrap (1 Tbsp) -- 585

> > > > Spaghetti Sauce (1/2 cup) -- 475

> > > > Cream soups made with milk (1 cup) -- 300-450

> > > > Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300

> > > > Split Pea Soup (1 cup) -- 400

> > > > Fruits:

> > > > Apple juice/Applecider (1 cup) -- 300

> > > > Apricot Nectar (1 cup) -- 286

> > > > Avocado (1/2) -- 550-750

> > > > Banana (1 Banana) -- 451

> > > > Honeydew melon/Cantelope (1 cup) -- 460-500

> > > > Kiwi (1 Kiwi) -- 250

> > > > Nectarine (1 Nectarine) -- 288

> > > > Orange or Grapefruit juice (1/2 cup) -- 200

> > > > Orange (1 Orange) -- 240

> > > > Pineapple (1 cup) -- 270

> > > > Plum (1 medium) -- 110

> > > > Prunes, cooked (1/2 cup) -- 370

> > > > Raisins (1 oz. box) -- 220

> > > > Strawberries (1 cup) -- 250

> > > >

> > > > Meats:

> > > > Beef, Chicken, Pork, Lamb, Fish, and Shellfish

> > > > (except imitation crab, 3 1/2 oz. cooked,

> > > > about the size of a deck of cards) -- 200-400

> > > > Chili with beans, 1 cup -- 500

> > > > Enchiladas (chicken, 8.25 oz. entree) -- 624

> > > > Hamburger helper, 1 serving -- 440

> > > > Lasagna, Stouffers, 8 oz. entree -- 363

> > > > Pizza, Lean Cuisine, 5.1 oz. entree -- 300

> > > >

> > > >

> > > > Vegetables:

> > > >

> > > > Asparagus (1/2 cup cooked) -- 280

> > > > Broccoli, Carrots or Mixed Vegetables,

> > > > frozen, cooked (1 cup) -- 300-350

> > > > Brussel Sprouts, Zucchini, Collards, Kale,

> > > > Parsnips, frozen, cooked (1 cup) -- 450-600

> > > > Carrot, 1 whole, raw -- 233

> > > > Cauliflower, Corn, Peas, and Carrots,

> > > > frozen, cooked (1 cup) -- 200-300

> > > > Cucumber, 1 whole -- 430

> > > > Tomato, 1 medium, raw -- 270

> > > > Potato, 1 large, baked -- 600

> > > > Sweet Potato, 1 large, baked -- 400

> > > > V-8 Tomato juice cocktail (1 cup) -- 570

> > > >

> > > >

> > > >

> > > > Re: vacation

> > > >

> > > >

> > > > > Hans:

> > > > >

> > > > > How interesting about needing potassium when taking florinef. Perhaps

> > > > > that's why my mother's dr. told her to be sure to use salt because she

> > > > > needs the potassium. It's certainly something she's remembered

amongst

> > > > > all her other forgotten facts. :))

> > > > >

> > > > > -Jane

> > > >

> > > >

> > > >

> > > >

> > > > If you do not wish to belong to shydrager, you may

> > > > unsubscribe by sending a blank email to

> > > >

> > > > shydrager-unsubscribe

> > > >

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

Jane,

The drug info sheet on Florinef indicates that it is known fo upsetting the

potassium balance and should be checked at regular intervals. In addition, too

much potassium can cause a depletion of the sodium in the system which would

cause more pronounced BP drops on standing. That is why the blood is checked at

least twice a year.

Since your mom has MSA (SDS) does she:

º Have a great BP drop on standing?

º Have cramps (or rigidity)?

º Weakness?

All of these are signs of potassium loss as well as the disorder.

Ask the doctor if your mom's blood should be checked while on MSA meds such as

Florinef (and others).

Take care, Bill Werre

==============================

>

>

> Date: 2002/07/19 Fri AM 01:31:23 CDT

> To: shydrager

> Subject: Re: Potassium / Salt / Florinef

>

> Hi:

>

> Mom has never had to have her blood checked. And I'm wondering if this

> is because she is probably on a much lower dose of florinef. I'm really

> curious as to how much a day those with MSA are having to take?

>

> Pure Autonomic Failure, I guess, is a very, very mild form of MSA? Her

> dr. assured me that it's not progressive. Mom will not die because she

> has PAF. She will probably live to 94 as her mother did. :)) Mostly

> this PAF is a pain in the butt to live with. If she stands up or walks

> or turns around or climbs stairs too quickly, she'll get dizzy but she's

> never even come close to passing out. As long as she takes her

> medication twice a day, her head stays pretty clear. She still has her

> days when her head doesn't clear up as well as she'd like, but that only

> happens about once a week. And I find that if I can get her busy, out

> of the house or just doing anything that will take her mind off her

> " thick " head, it will clear and be just fine for the rest of the day.

> Honestly some days she has waaay more energy than I do. :)) The biggest

> adjustment that she's had to make is that she can't jump out of bed in

> the morning and do a million things by noon like she used to. She has

> to take her cafergot and florinef about an hour before she gets out of

> bed. Then sit on the edge of the bed for a few minutes before getting

> up.

>

> I'm rambling here. Time for bed.

>

> -Jane

>

> b.werre@... wrote:

> >

> > Ann,

> >

> > I am thinking that the ratio of sodium to potassium for a SDS patient should

be more like 65% sodium, 35% potassium - I don't know why this is stuck in my

head. Stick with what your doctor tells you though. I take it that your doctor

checks your mom's blood chemistry 3-4 times a year to keep an eye on what is

going on as someone said today.

> >

> > Salt seems to be good for most patients with OH. So I would concentrate on

sodium until you know that potassium is needed, unless the doctor has told you

otherwise. BUT if the Lite salt is working, stick with it.

> >

> > I have had heart problems (bypass surgery in 1996) but they seem to be under

control now. I use a mixture of about 50% Lite salt and 50% regular salt which

gives me about 25% potassium and 75% sodium. Seems to work for me. Getting my

blood work tomorrow, so will know by next Wednesday if it is still working.

> >

> > Take care, Bill Werre

> >

> > ===========================================

> > >

> > >

> > > Date: 2002/07/18 Thu PM 07:38:09 CDT

> > > To: shydrager

> > > Subject: Re: Potassium / Salt / Florinef

> > >

> > > Bill:

> > >

> > > Thanks for the tip. Can you elaborate on why you think it might not be

> > > a good combination. I'd be interested in hearing what you have to say.

> > > I did just ask Mom about which dr. recommended the Half-salt, but she

> > > couldn't remember if it was before or after she was diagnosed with PAF.

> > > I would contact her dr. with your information to see what his thoughts

> > > were. Since her PAF dr. is actually a pharmacologist, he is extremely

> > > knowledgeable about medications and such.

> > >

> > > I was also wondering what amount of Florinef you all take for your MSA?

> > > My Mom's is 0.1mg. She takes 2 a day, or 3 if she feels she needs

> > > another " hit " . :))

> > >

> > > Take care,

> > >

> > > -Jane

> > >

> > > b.werre@... wrote:

> > > >

> > > > Pam,

> > > >

> > > > She mentioned " Lite salt " which here in the USA is 50% NaCl and 50% KCl.

I am not sure that is the best combination for someone with autonomic failure.

The should have blood work done often anyway to check on the chemistry.

> > > >

> > > > Take care, Bill Werre

> > > >

> > > > =============================================

> > > > >

> > > > >

> > > > > Date: 2002/07/18 Thu AM 11:38:45 CDT

> > > > > To: " sds " shydrager >

> > > > > Subject: Re: Potassium / Salt / Florinef

> > > > >

> > > > > Hi -Jane, I remember I read your note the other day and was a bit

> > > > > confused because I thought pure table salt was the chemical NaCl

(Sodium

> > > > > Chloride) and therefore salt itself did not contain the element

Potassium...

> > > > > (but maybe salt TABLETS have Potassium included? Anyone know?)

> > > > >

> > > > > Regardless, I'm guessing that maybe the doctor meant that she should

eat

> > > > > prepackaged salty foods which would also have lots of sodium and

> > > > > potassium... things like canned soups or bouillon for instance.

> > > > >

> > > > > This subject of taking Potassium when on Florinef has been mentioned

before.

> > > > > It has also been mentioned that another side effect of Florinef use is

that

> > > > > it will also deplete Calcium and can lead to osteoporosis.

> > > > >

> > > > > We have this link saved in our bookmarks

> > > > >

> > > > > SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF

> > > > > http://www.geocities.com/HotSprings/Resort/4554/diet.html

> > > > >

> > > > > An adult requires between 1,600 to 2,000 mg of potassium per day to

maintain

> > > > > health. However, those who are taking Florinef will have a higher need

> > > > > because the drug depletes potassium. Unlike sodium, manufacturers are

not

> > > > > required to list the amount of potassium on food labels. For this

reason, it

> > > > > is important that you become familiar with the food items listed

below.

> > > > > Generally, good sources of potassium include milk, meats, and fruits,

and

> > > > > vegetables. Below is a more complete list of potassium content of

various

> > > > > foods.

> > > > > Beans/Peas -- mg of Potassium:

> > > > > Pork and Beans (1/2 cup) -- 335

> > > > > Lima Beans (1/2 cup) -- 480

> > > > > Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350

> > > > > Cereals:

> > > > > Bran buds, All Bran (1/2 cup) -- 380

> > > > > Fiber One, Grape Nuts (1/2 cup) -- 240

> > > > > Raisin Bran (1/2 cup) -- 175

> > > > > Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380

> > > > > Dairy Products:

> > > > > Milk (1 cup) -- 400

> > > > > Yogurt (1 cup) -- 400-500

> > > > > Instant Breakfasts -- Carnation, Delmark,

> > > > > Slimfast, made with milk (1 cup) -- 600-800

> > > > > Hot Cocoa made with milk (1 cup) -- 600-800

> > > > > Instant Chocolate Pudding (1/2 cup) -- 200-300

> > > > > Simple Pleasures frozen desert (1/2 cup) -- 200-300

> > > > > Ice Cream/Ice Milk (1 cup) -- 200-400

> > > > > Miscellaneous:

> > > > > Molasses, Blackstrap (1 Tbsp) -- 585

> > > > > Spaghetti Sauce (1/2 cup) -- 475

> > > > > Cream soups made with milk (1 cup) -- 300-450

> > > > > Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300

> > > > > Split Pea Soup (1 cup) -- 400

> > > > > Fruits:

> > > > > Apple juice/Applecider (1 cup) -- 300

> > > > > Apricot Nectar (1 cup) -- 286

> > > > > Avocado (1/2) -- 550-750

> > > > > Banana (1 Banana) -- 451

> > > > > Honeydew melon/Cantelope (1 cup) -- 460-500

> > > > > Kiwi (1 Kiwi) -- 250

> > > > > Nectarine (1 Nectarine) -- 288

> > > > > Orange or Grapefruit juice (1/2 cup) -- 200

> > > > > Orange (1 Orange) -- 240

> > > > > Pineapple (1 cup) -- 270

> > > > > Plum (1 medium) -- 110

> > > > > Prunes, cooked (1/2 cup) -- 370

> > > > > Raisins (1 oz. box) -- 220

> > > > > Strawberries (1 cup) -- 250

> > > > >

> > > > > Meats:

> > > > > Beef, Chicken, Pork, Lamb, Fish, and Shellfish

> > > > > (except imitation crab, 3 1/2 oz. cooked,

> > > > > about the size of a deck of cards) -- 200-400

> > > > > Chili with beans, 1 cup -- 500

> > > > > Enchiladas (chicken, 8.25 oz. entree) -- 624

> > > > > Hamburger helper, 1 serving -- 440

> > > > > Lasagna, Stouffers, 8 oz. entree -- 363

> > > > > Pizza, Lean Cuisine, 5.1 oz. entree -- 300

> > > > >

> > > > >

> > > > > Vegetables:

> > > > >

> > > > > Asparagus (1/2 cup cooked) -- 280

> > > > > Broccoli, Carrots or Mixed Vegetables,

> > > > > frozen, cooked (1 cup) -- 300-350

> > > > > Brussel Sprouts, Zucchini, Collards, Kale,

> > > > > Parsnips, frozen, cooked (1 cup) -- 450-600

> > > > > Carrot, 1 whole, raw -- 233

> > > > > Cauliflower, Corn, Peas, and Carrots,

> > > > > frozen, cooked (1 cup) -- 200-300

> > > > > Cucumber, 1 whole -- 430

> > > > > Tomato, 1 medium, raw -- 270

> > > > > Potato, 1 large, baked -- 600

> > > > > Sweet Potato, 1 large, baked -- 400

> > > > > V-8 Tomato juice cocktail (1 cup) -- 570

> > > > >

> > > > >

> > > > >

> > > > > Re: vacation

> > > > >

> > > > >

> > > > > > Hans:

> > > > > >

> > > > > > How interesting about needing potassium when taking florinef.

Perhaps

> > > > > > that's why my mother's dr. told her to be sure to use salt because

she

> > > > > > needs the potassium. It's certainly something she's remembered

amongst

> > > > > > all her other forgotten facts. :))

> > > > > >

> > > > > > -Jane

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > If you do not wish to belong to shydrager, you may

> > > > > unsubscribe by sending a blank email to

> > > > >

> > > > > shydrager-unsubscribe

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Posted
Posted

The best aand cheapest source of potassium is bananas.

Dr. Ray

-- Re: Potassium / Salt / Florinef

Sheesh, Pam! You made me crawl into the back of the cupboard to findour table salt so I coculd compare it with Mom's.Mom uses HALF SALT "1/2 the sodium of table salt - a free runningmixture of iodized salt and potassium chloride"Our regular table salt has sodium, calcium silicate, potassium iodide,and sodium thiosulphate.Not being a chemist, I'm not sure what the difference is (if any)between potassium chloride and potassium iodide. Anyone know? <GG>I was always assumed her dr. meant for her to not jump on the no-saltbandwagon as she doesn't have any medical reason to cut it entirely outof her diet. So he suggested the half-salt since she needed potassium.Is salt a big provider of potassium? I have no idea about this at all.:))She's been taking calcium for a number of years - since before she wasdiagnosed with PAF. Osteoporosis doesn't run in the family, but she'staking it to keep her bones as healthy as possible.-JanePam Bower wrote:> > Hi -Jane, I remember I read your note the other day and was a bit> confused because I thought pure table salt was the chemical NaCl (Sodium> Chloride) and therefore salt itself did not contain the element Potassium...> (but maybe salt TABLETS have Potassium included? Anyone know?)> > Regardless, I'm guessing that maybe the doctor meant that she should eat> prepackaged salty foods which would also have lots of sodium and> potassium... things like canned soups or bouillon for instance.> > This subject of taking Potassium when on Florinef has been mentioned before.> It has also been mentioned that another side effect of Florinef use is that> it will also deplete Calcium and can lead to osteoporosis.> > We have this link saved in our bookmarks> > SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF> http://www.geocities.com/HotSprings/Resort/4554/diet.html> > An adult requires between 1,600 to 2,000 mg of potassium per day to maintain> health. However, those who are taking Florinef will have a higher need> because the drug depletes potassium. Unlike sodium, manufacturers are not> required to list the amount of potassium on food labels. For this reason, it> is important that you become familiar with the food items listed below.> Generally, good sources of potassium include milk, meats, and fruits, and> vegetables. Below is a more complete list of potassium content of various> foods.> Beans/Peas -- mg of Potassium:> Pork and Beans (1/2 cup) -- 335> Lima Beans (1/2 cup) -- 480> Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350> Cereals:> Bran buds, All Bran (1/2 cup) -- 380> Fiber One, Grape Nuts (1/2 cup) -- 240> Raisin Bran (1/2 cup) -- 175> Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380> Dairy Products:> Milk (1 cup) -- 400> Yogurt (1 cup) -- 400-500> Instant Breakfasts -- Carnation, Delmark,> Slimfast, made with milk (1 cup) -- 600-800> Hot Cocoa made with milk (1 cup) -- 600-800> Instant Chocolate Pudding (1/2 cup) -- 200-300> Simple Pleasures frozen desert (1/2 cup) -- 200-300> Ice Cream/Ice Milk (1 cup) -- 200-400> Miscellaneous:> Molasses, Blackstrap (1 Tbsp) -- 585> Spaghetti Sauce (1/2 cup) -- 475> Cream soups made with milk (1 cup) -- 300-450> Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300> Split Pea Soup (1 cup) -- 400> Fruits:> Apple juice/Applecider (1 cup) -- 300> Apricot Nectar (1 cup) -- 286> Avocado (1/2) -- 550-750> Banana (1 Banana) -- 451> Honeydew melon/Cantelope (1 cup) -- 460-500> Kiwi (1 Kiwi) -- 250> Nectarine (1 Nectarine) -- 288> Orange or Grapefruit juice (1/2 cup) -- 200> Orange (1 Orange) -- 240> Pineapple (1 cup) -- 270> Plum (1 medium) -- 110> Prunes, cooked (1/2 cup) -- 370> Raisins (1 oz. box) -- 220> Strawberries (1 cup) -- 250> > Meats:> Beef, Chicken, Pork, Lamb, Fish, and Shellfish> (except imitation crab, 3 1/2 oz. cooked,> about the size of a deck of cards) -- 200-400> Chili with beans, 1 cup -- 500> Enchiladas (chicken, 8.25 oz. entree) -- 624> Hamburger helper, 1 serving -- 440> Lasagna, Stouffers, 8 oz. entree -- 363> Pizza, Lean Cuisine, 5.1 oz. entree -- 300> > Vegetables:> > Asparagus (1/2 cup cooked) -- 280> Broccoli, Carrots or Mixed Vegetables,> frozen, cooked (1 cup) -- 300-350> Brussel Sprouts, Zucchini, Collards, Kale,> Parsnips, frozen, cooked (1 cup) -- 450-600> Carrot, 1 whole, raw -- 233> Cauliflower, Corn, Peas, and Carrots,> frozen, cooked (1 cup) -- 200-300> Cucumber, 1 whole -- 430> Tomato, 1 medium, raw -- 270> Potato, 1 large, baked -- 600> Sweet Potato, 1 large, baked -- 400> V-8 Tomato juice cocktail (1 cup) -- 570> > Re: vacation> > > Hans:> >> > How interesting about needing potassium when taking florinef. Perhaps> > that's why my mother's dr. told her to be sure to use salt because she> > needs the potassium. It's certainly something she's remembered amongst> > all her other forgotten facts. :))> >> > -Jane> > If you do not wish to belong to shydrager, you may> unsubscribe by sending a blank email to> > shydrager-unsubscribe > > > >

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Posted
Posted

It sure is. Mom eats a banana nearly every day.

-Jane

*********************************************

When I was younger I could remember anything,

whether it happened or not. Mark Twain

*********************************************

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Posted
Posted

Bill:

My mother does not have MSA. She has PAF which is not MSA/SDS. It is

not a progressive disorder of the autonomic system. Her only symptoms

are the BP drop on standing or sitting up and the lack of sweating. She

does have constipation and poor circulation, but she has had those

" problems " her entire life. She has no cramps/rigidity and no weakness,

no tremors. She can go out for a good walk - about 1/2 hr with no need

for support. She can climb the stairs in our house with only a small

amount of dizziness. Her PAF dr. as well as a neurologist who recently

checked her out for signs of Alzheimer's/Dementia have both told her she

is incredibly healthy for a woman of her age and is so lucky to be

living well with PAF.

And I'm still curious about how much florinef an MSA patient takes a

day. I am going to e-mail her dr. this morning and ask him about the

florinef and potassium balance in the blood. :))

Thanks,

-Jane

b.werre@... wrote:

>

> Jane,

>

> The drug info sheet on Florinef indicates that it is known fo upsetting the

potassium balance and should be checked at regular intervals. In addition, too

much potassium can cause a depletion of the sodium in the system which would

cause more pronounced BP drops on standing. That is why the blood is checked at

least twice a year.

>

> Since your mom has MSA (SDS) does she:

>

> º Have a great BP drop on standing?

> º Have cramps (or rigidity)?

> º Weakness?

>

> All of these are signs of potassium loss as well as the disorder.

>

> Ask the doctor if your mom's blood should be checked while on MSA meds such as

Florinef (and others).

>

> Take care, Bill Werre

>

> ==============================

>

> >

> >

> > Date: 2002/07/19 Fri AM 01:31:23 CDT

> > To: shydrager

> > Subject: Re: Potassium / Salt / Florinef

> >

> > Hi:

> >

> > Mom has never had to have her blood checked. And I'm wondering if this

> > is because she is probably on a much lower dose of florinef. I'm really

> > curious as to how much a day those with MSA are having to take?

> >

> > Pure Autonomic Failure, I guess, is a very, very mild form of MSA? Her

> > dr. assured me that it's not progressive. Mom will not die because she

> > has PAF. She will probably live to 94 as her mother did. :)) Mostly

> > this PAF is a pain in the butt to live with. If she stands up or walks

> > or turns around or climbs stairs too quickly, she'll get dizzy but she's

> > never even come close to passing out. As long as she takes her

> > medication twice a day, her head stays pretty clear. She still has her

> > days when her head doesn't clear up as well as she'd like, but that only

> > happens about once a week. And I find that if I can get her busy, out

> > of the house or just doing anything that will take her mind off her

> > " thick " head, it will clear and be just fine for the rest of the day.

> > Honestly some days she has waaay more energy than I do. :)) The biggest

> > adjustment that she's had to make is that she can't jump out of bed in

> > the morning and do a million things by noon like she used to. She has

> > to take her cafergot and florinef about an hour before she gets out of

> > bed. Then sit on the edge of the bed for a few minutes before getting

> > up.

> >

> > I'm rambling here. Time for bed.

> >

> > -Jane

> >

> > b.werre@... wrote:

> > >

> > > Ann,

> > >

> > > I am thinking that the ratio of sodium to potassium for a SDS patient

should be more like 65% sodium, 35% potassium - I don't know why this is stuck

in my head. Stick with what your doctor tells you though. I take it that your

doctor checks your mom's blood chemistry 3-4 times a year to keep an eye on what

is going on as someone said today.

> > >

> > > Salt seems to be good for most patients with OH. So I would concentrate

on sodium until you know that potassium is needed, unless the doctor has told

you otherwise. BUT if the Lite salt is working, stick with it.

> > >

> > > I have had heart problems (bypass surgery in 1996) but they seem to be

under control now. I use a mixture of about 50% Lite salt and 50% regular salt

which gives me about 25% potassium and 75% sodium. Seems to work for me.

Getting my blood work tomorrow, so will know by next Wednesday if it is still

working.

> > >

> > > Take care, Bill Werre

> > >

> > > ===========================================

> > > >

> > > >

> > > > Date: 2002/07/18 Thu PM 07:38:09 CDT

> > > > To: shydrager

> > > > Subject: Re: Potassium / Salt / Florinef

> > > >

> > > > Bill:

> > > >

> > > > Thanks for the tip. Can you elaborate on why you think it might not be

> > > > a good combination. I'd be interested in hearing what you have to say.

> > > > I did just ask Mom about which dr. recommended the Half-salt, but she

> > > > couldn't remember if it was before or after she was diagnosed with PAF.

> > > > I would contact her dr. with your information to see what his thoughts

> > > > were. Since her PAF dr. is actually a pharmacologist, he is extremely

> > > > knowledgeable about medications and such.

> > > >

> > > > I was also wondering what amount of Florinef you all take for your MSA?

> > > > My Mom's is 0.1mg. She takes 2 a day, or 3 if she feels she needs

> > > > another " hit " . :))

> > > >

> > > > Take care,

> > > >

> > > > -Jane

> > > >

> > > > b.werre@... wrote:

> > > > >

> > > > > Pam,

> > > > >

> > > > > She mentioned " Lite salt " which here in the USA is 50% NaCl and 50%

KCl. I am not sure that is the best combination for someone with autonomic

failure. The should have blood work done often anyway to check on the

chemistry.

> > > > >

> > > > > Take care, Bill Werre

> > > > >

> > > > > =============================================

> > > > > >

> > > > > >

> > > > > > Date: 2002/07/18 Thu AM 11:38:45 CDT

> > > > > > To: " sds " shydrager >

> > > > > > Subject: Re: Potassium / Salt / Florinef

> > > > > >

> > > > > > Hi -Jane, I remember I read your note the other day and was a

bit

> > > > > > confused because I thought pure table salt was the chemical NaCl

(Sodium

> > > > > > Chloride) and therefore salt itself did not contain the element

Potassium...

> > > > > > (but maybe salt TABLETS have Potassium included? Anyone know?)

> > > > > >

> > > > > > Regardless, I'm guessing that maybe the doctor meant that she should

eat

> > > > > > prepackaged salty foods which would also have lots of sodium and

> > > > > > potassium... things like canned soups or bouillon for instance.

> > > > > >

> > > > > > This subject of taking Potassium when on Florinef has been mentioned

before.

> > > > > > It has also been mentioned that another side effect of Florinef use

is that

> > > > > > it will also deplete Calcium and can lead to osteoporosis.

> > > > > >

> > > > > > We have this link saved in our bookmarks

> > > > > >

> > > > > > SUGGESTIONS FOR A HIGH POTASSIUM DIET FOR THOSE ON FLORINEF

> > > > > > http://www.geocities.com/HotSprings/Resort/4554/diet.html

> > > > > >

> > > > > > An adult requires between 1,600 to 2,000 mg of potassium per day to

maintain

> > > > > > health. However, those who are taking Florinef will have a higher

need

> > > > > > because the drug depletes potassium. Unlike sodium, manufacturers

are not

> > > > > > required to list the amount of potassium on food labels. For this

reason, it

> > > > > > is important that you become familiar with the food items listed

below.

> > > > > > Generally, good sources of potassium include milk, meats, and

fruits, and

> > > > > > vegetables. Below is a more complete list of potassium content of

various

> > > > > > foods.

> > > > > > Beans/Peas -- mg of Potassium:

> > > > > > Pork and Beans (1/2 cup) -- 335

> > > > > > Lima Beans (1/2 cup) -- 480

> > > > > > Blackeye Peas, Kidney Beans, Lentils (1/2 cup) -- 350

> > > > > > Cereals:

> > > > > > Bran buds, All Bran (1/2 cup) -- 380

> > > > > > Fiber One, Grape Nuts (1/2 cup) -- 240

> > > > > > Raisin Bran (1/2 cup) -- 175

> > > > > > Pancakes, Aunt Jemima, whole wheat (3 cakes) -- 380

> > > > > > Dairy Products:

> > > > > > Milk (1 cup) -- 400

> > > > > > Yogurt (1 cup) -- 400-500

> > > > > > Instant Breakfasts -- Carnation, Delmark,

> > > > > > Slimfast, made with milk (1 cup) -- 600-800

> > > > > > Hot Cocoa made with milk (1 cup) -- 600-800

> > > > > > Instant Chocolate Pudding (1/2 cup) -- 200-300

> > > > > > Simple Pleasures frozen desert (1/2 cup) -- 200-300

> > > > > > Ice Cream/Ice Milk (1 cup) -- 200-400

> > > > > > Miscellaneous:

> > > > > > Molasses, Blackstrap (1 Tbsp) -- 585

> > > > > > Spaghetti Sauce (1/2 cup) -- 475

> > > > > > Cream soups made with milk (1 cup) -- 300-450

> > > > > > Tomato, Minestrone, Vegetable soups (1 cup) -- 200-300

> > > > > > Split Pea Soup (1 cup) -- 400

> > > > > > Fruits:

> > > > > > Apple juice/Applecider (1 cup) -- 300

> > > > > > Apricot Nectar (1 cup) -- 286

> > > > > > Avocado (1/2) -- 550-750

> > > > > > Banana (1 Banana) -- 451

> > > > > > Honeydew melon/Cantelope (1 cup) -- 460-500

> > > > > > Kiwi (1 Kiwi) -- 250

> > > > > > Nectarine (1 Nectarine) -- 288

> > > > > > Orange or Grapefruit juice (1/2 cup) -- 200

> > > > > > Orange (1 Orange) -- 240

> > > > > > Pineapple (1 cup) -- 270

> > > > > > Plum (1 medium) -- 110

> > > > > > Prunes, cooked (1/2 cup) -- 370

> > > > > > Raisins (1 oz. box) -- 220

> > > > > > Strawberries (1 cup) -- 250

> > > > > >

> > > > > > Meats:

> > > > > > Beef, Chicken, Pork, Lamb, Fish, and Shellfish

> > > > > > (except imitation crab, 3 1/2 oz. cooked,

> > > > > > about the size of a deck of cards) -- 200-400

> > > > > > Chili with beans, 1 cup -- 500

> > > > > > Enchiladas (chicken, 8.25 oz. entree) -- 624

> > > > > > Hamburger helper, 1 serving -- 440

> > > > > > Lasagna, Stouffers, 8 oz. entree -- 363

> > > > > > Pizza, Lean Cuisine, 5.1 oz. entree -- 300

> > > > > >

> > > > > >

> > > > > > Vegetables:

> > > > > >

> > > > > > Asparagus (1/2 cup cooked) -- 280

> > > > > > Broccoli, Carrots or Mixed Vegetables,

> > > > > > frozen, cooked (1 cup) -- 300-350

> > > > > > Brussel Sprouts, Zucchini, Collards, Kale,

> > > > > > Parsnips, frozen, cooked (1 cup) -- 450-600

> > > > > > Carrot, 1 whole, raw -- 233

> > > > > > Cauliflower, Corn, Peas, and Carrots,

> > > > > > frozen, cooked (1 cup) -- 200-300

> > > > > > Cucumber, 1 whole -- 430

> > > > > > Tomato, 1 medium, raw -- 270

> > > > > > Potato, 1 large, baked -- 600

> > > > > > Sweet Potato, 1 large, baked -- 400

> > > > > > V-8 Tomato juice cocktail (1 cup) -- 570

> > > > > >

> > > > > >

> > > > > >

> > > > > > Re: vacation

> > > > > >

> > > > > >

> > > > > > > Hans:

> > > > > > >

> > > > > > > How interesting about needing potassium when taking florinef.

Perhaps

> > > > > > > that's why my mother's dr. told her to be sure to use salt because

she

> > > > > > > needs the potassium. It's certainly something she's remembered

amongst

> > > > > > > all her other forgotten facts. :))

> > > > > > >

> > > > > > > -Jane

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > If you do not wish to belong to shydrager, you may

> > > > > > unsubscribe by sending a blank email to

> > > > > >

> > > > > > shydrager-unsubscribe

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Posted
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Jane,

Generally they do not give more than 200 micrograms (mcgm not mg) per day.

Charlotte started (1995) on 50 mcgm (.05 mg) and at death was only on 100 mcgm

(.1 mg) per day. I have heard of people on the list taking three pills a day,

but I'm not sure if that was .05 mg or .1 mg pills. I know that it is possible

to give more than that, but I do not know how much more. So " average would be

anywhere from 50 to 200 mcgm or .05 to .2 mg per day.

PAF is considered a dengerative brain disorder to my knowledge, but it takes

much longer to deteriorate. Most PAF patients I know of have lived over 20

years and some close to 30.

Take care, Bill Werre

>

>

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Posted
Posted

I see, Bill. Thanks for all that info. This group is just full of

information and great links.

My mother takes 0.1mg twice a day. She can take a 3rd dose if she

wishes, but her dr. said she should try chugging down the 2 cups of

water instead of that 3rd dose. She was taking her first dose waaay too

early in the morning so now that we've got that straightened out, she

really only needs the 2 doses and only occasionally needs to chug down

that water.

I did question her dr. a few months ago about the information on the

Vanderbuilt University website about PAF. He assured me that hers is

not progressive, so I wonder if there are varying degrees of this

disorder? It does state that it is not to be confused with MSA and PD.

It's easy for me to get confused as I read all this information and try

to sort things out. :))

Thanks again for all your helpful comments.

-Jane

b.werre@... wrote:

>

> Jane,

>

> Generally they do not give more than 200 micrograms (mcgm not mg) per day.

Charlotte started (1995) on 50 mcgm (.05 mg) and at death was only on 100 mcgm

(.1 mg) per day. I have heard of people on the list taking three pills a day,

but I'm not sure if that was .05 mg or .1 mg pills. I know that it is possible

to give more than that, but I do not know how much more. So " average would be

anywhere from 50 to 200 mcgm or .05 to .2 mg per day.

>

> PAF is considered a dengerative brain disorder to my knowledge, but it takes

much longer to deteriorate. Most PAF patients I know of have lived over 20

years and some close to 30.

>

> Take care, Bill Werre

> >

> >

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

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