Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 -Jane I think the following reference was to the timing of the taking of florinef. Does your mom have experience taking florinef at different times? What does the experience show? That's an interesting concept. Peg and Jim from Guam She was taking her first dose waaay too early in the morning so now that we've got that straightened out, she really only needs the 2 doses and only occasionally needs to chug down that water. ******************************** *** Peg & Jim *** # 29 Cruz Heights *** Ipan-Talofofo, Guam 96930-4736 *** USA *** *** Note: Guam is 15 hours ahead of *** Eastern Standard Time (EST). *** 14 ahead of EDT. ******************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hi: Yes, Mom's Dr. has told her many times to play with the timing of her medication to see what works best for her. Unfortunatley her mind is not flexible and hasn't been for some time. She is so " scheduled " to taking it twice a day, that it messes her up no end to try and play around with her timing. He has also told her she can take a double dose before she gets up if she awakes really thick-headed(she takes both cafergot and florinef), but she found that made her worse so has only tried it 3 times, I think. She usually takes it between 7-8am and then around noon-1pm and that's all she needs. If she's still fuzzy-headed I encourage her to chug down the 2 cups of water. She doesn't like doing it all that much, even though she knows it does work well for her. My comment has to do with another condition she has. Quite by accident she found that when she takes the cafergot and florinef in the early am, it was clearing up the symptoms. So, in the middle of the night (like 2am or 3am) when things were getting uncomfortable, she'd take a dose of cafergot and florinef and get relief so she could sleep again. But, of course, she was completely sleeping away any of the good effects of a BP boost. She'd have to take another dose before getting up and then a 3rd dose by about 10am. I didn't realize she shouldn't be doing this as I was just getting involved in her care and figuring everything out. I knew that her dr. had told her to play with her medication so thought everything was going well, until one morning she was do dizzy and messed up, I called him. We discussed everything and he straightened me out about her medication, drinking the 2 cups of water quickly and a few other things that I hadn't known. She now knows she mustn't take it any earlier than 6am and no later than 6pm. She never takes any after about 1pm. Did I answer your question? -Jane > -Jane > > I think the following reference was to the timing of the taking of florinef. > Does your mom have experience taking florinef at different times? What does > the experience show? That's an interesting concept. > > Peg and Jim from Guam > > She was taking her first dose waaay too > early in the morning so now that we've got that straightened out, she > really only needs the 2 doses and only occasionally needs to chug down > that water. > > ******************************** > *** Peg & Jim > *** # 29 Cruz Heights > *** Ipan-Talofofo, Guam 96930-4736 > *** USA > *** > *** Note: Guam is 15 hours ahead of > *** Eastern Standard Time (EST). > *** 14 ahead of EDT. > ******************************** > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 -Jane, Your message was a little unclear about timing of the last dose of florinef, and I want to clear up a possible problem. The idea of florinef is to raise the BP and people with orthostatic hypotension usually have high BP when laying down. Therefore the first dose should only be given when the patient is about to get up and sit for the day. The last dose should NEVER be given past 3 PM (or 8 hours before laying down for the evening) without talking to your doctor about timing of the medicine. You do not want the BP to go too high because you give the patient Florinef when they are laying down. The ONLY reason for Florinef is to raise BP and you do not need your BP raised if you are laying down. Florinef is NOT known for helping you sleep. Take care, Bill Werre ============================================== > > > Date: 2002/07/20 Sat AM 11:09:27 CDT > To: shydrager > Subject: Re: Timing of florinef > > Hi: > > Yes, Mom's Dr. has told her many times to play with the timing of her > medication to see what works best for her. Unfortunatley her mind is > not flexible and hasn't been for some time. She is so " scheduled " to > taking it twice a day, that it messes her up no end to try and play > around with her timing. He has also told her she can take a double dose > before she gets up if she awakes really thick-headed(she takes both > cafergot and florinef), but she found that made her worse so has only > tried it 3 times, I think. She usually takes it between 7-8am and then > around noon-1pm and that's all she needs. If she's still fuzzy-headed I > encourage her to chug down the 2 cups of water. She doesn't like doing > it all that much, even though she knows it does work well for her. > > My comment has to do with another condition she has. Quite by accident > she found that when she takes the cafergot and florinef in the early am, > it was clearing up the symptoms. So, in the middle of the night (like > 2am or 3am) when things were getting uncomfortable, she'd take a dose of > cafergot and florinef and get relief so she could sleep again. But, of > course, she was completely sleeping away any of the good effects of a BP > boost. She'd have to take another dose before getting up and then a 3rd > dose by about 10am. I didn't realize she shouldn't be doing this as I > was just getting involved in her care and figuring everything out. I > knew that her dr. had told her to play with her medication so thought > everything was going well, until one morning she was do dizzy and messed > up, I called him. We discussed everything and he straightened me out > about her medication, drinking the 2 cups of water quickly and a few > other things that I hadn't known. > > She now knows she mustn't take it any earlier than 6am and no later than > 6pm. She never takes any after about 1pm. > > Did I answer your question? > > -Jane > > > > -Jane > > > > I think the following reference was to the timing of the taking of florinef. > > Does your mom have experience taking florinef at different times? What does > > the experience show? That's an interesting concept. > > > > Peg and Jim from Guam > > > > She was taking her first dose waaay too > > early in the morning so now that we've got that straightened out, she > > really only needs the 2 doses and only occasionally needs to chug down > > that water. > > > > ******************************** > > *** Peg & Jim > > *** # 29 Cruz Heights > > *** Ipan-Talofofo, Guam 96930-4736 > > *** USA > > *** > > *** Note: Guam is 15 hours ahead of > > *** Eastern Standard Time (EST). > > *** 14 ahead of EDT. > > ******************************** > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 -Jane, Thanks for the information. Your experience is much like ours and the timing we've adopted is also in the morning and early afternoons for the florinef. The early afternoon waits on a B/P check because sometimes Peg has B/P spikes in the afternoon. Depending on the B/P test we may give the florinef or combine it with midodrine or just give midodrine. If the B/P is too high, we will withhold both meds. Peg has lost some mental flexibility too. She also adopts favorite medicines. Sometimes when she feels better after taking a prn medicine, she will want to take it all the time. Often the feeling better has been a coincidence but the dynamic can set up a strong desire for the particular med and that can be related to a particular time of day. The one thing we've experienced is that when Peg is running a low or medium B/P at the same time as a high heart rate (92 or more), several glasses of water can assist in lowering the heart rate. I would think it has something to do with increasing blood volume although an MD would have to give more details. By the way, the opposite also occurs. If Peg feels bad after a medicine, she will often suspect the medicine for some time and be reluctant to take it. One of my reasons for intereat in your response is that I've been trying to determine if we can corelate Peg's B/P spikes to some combination of medicines or circumstances. Although such spikes are less frequent than some months ago, they still occur and we have to work around them. So far we can find no corelation with anything specific. By the way I've never heard of cafergot. Can you give some details about that med? Peg and Jim from Guam Date: Sat, 20 Jul 2002 09:09:27 -0700 Subject: Re: Timing of florinef Hi: Yes, Mom's Dr. has told her many times to play with the timing of her medication to see what works best for her. Unfortunatley her mind is not flexible and hasn't been for some time. She is so " scheduled " to taking it twice a day, that it messes her up no end to try and play around with her timing. He has also told her she can take a double dose before she gets up if she awakes really thick-headed(she takes both cafergot and florinef), but she found that made her worse so has only tried it 3 times, I think. She usually takes it between 7-8am and then around noon-1pm and that's all she needs. If she's still fuzzy-headed I encourage her to chug down the 2 cups of water. She doesn't like doing it all that much, even though she knows it does work well for her. My comment has to do with another condition she has. Quite by accident she found that when she takes the cafergot and florinef in the early am, it was clearing up the symptoms. So, in the middle of the night (like 2am or 3am) when things were getting uncomfortable, she'd take a dose of cafergot and florinef and get relief so she could sleep again. But, of course, she was completely sleeping away any of the good effects of a BP boost. She'd have to take another dose before getting up and then a 3rd dose by about 10am. I didn't realize she shouldn't be doing this as I was just getting involved in her care and figuring everything out. I knew that her dr. had told her to play with her medication so thought everything was going well, until one morning she was do dizzy and messed up, I called him. We discussed everything and he straightened me out about her medication, drinking the 2 cups of water quickly and a few other things that I hadn't known. She now knows she mustn't take it any earlier than 6am and no later than 6pm. She never takes any after about 1pm. Did I answer your question? -Jane > -Jane > > I think the following reference was to the timing of the taking of florinef. > Does your mom have experience taking florinef at different times? What does > the experience show? That's an interesting concept. > > Peg and Jim from Guam > > She was taking her first dose waaay too > early in the morning so now that we've got that straightened out, she > really only needs the 2 doses and only occasionally needs to chug down > that water. > ******************************** *** Peg & Jim *** # 29 Cruz Heights *** Ipan-Talofofo, Guam 96930-4736 *** USA *** *** Note: Guam is 15 hours ahead of *** Eastern Standard Time (EST). *** 14 ahead of EDT. ******************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Bill: Sorry about that. I didn't mean to confuse you about when the last dose of florinef is given. She never takes her 2nd dose after about 1pm. As for the first dose, I guess that is why her dr. had a fit when I told him that she was taking her dose at 2 or 3am because it was helping the symptoms of something else. (He told me it would be the Cafergot that was doing the trick so said she could take a 1/2 tab if she really needed it.) She has interstitial cystitis which dictates a very low-acid diet. If she cheats a bit too much, she can have some very uncomfortable burning during the night. She found out quite by accident that as soon as the cafergot and florinef entered her system, the burning went away, thus enabling her to go back to sleep. So, because she got this instant relief from the burning, if she was pretty uncomfortable, she would take her pills. I should have given you the whole story. I'm not sure what you mean by " sit " for the day. My mother does not know the meaning of " sit " . If she's not busy doing something, she's pacing the floor, the yard, taking the dog for a walk, etc. ) Some mornings she takes the florinef just before she gets up (if she's slept late) and sometimes about 30-40 min. before she gets up. This is how her dr. has told her to do it. It seems to work for her. -Jane b.werre@... wrote: > > -Jane, > > Your message was a little unclear about timing of the last dose of florinef, and I want to clear up a possible problem. The idea of florinef is to raise the BP and people with orthostatic hypotension usually have high BP when laying down. Therefore the first dose should only be given when the patient is about to get up and sit for the day. The last dose should NEVER be given past 3 PM (or 8 hours before laying down for the evening) without talking to your doctor about timing of the medicine. > > You do not want the BP to go too high because you give the patient Florinef when they are laying down. The ONLY reason for Florinef is to raise BP and you do not need your BP raised if you are laying down. Florinef is NOT known for helping you sleep. > > Take care, Bill Werre > > ============================================== > > > > > > Date: 2002/07/20 Sat AM 11:09:27 CDT > > To: shydrager > > Subject: Re: Timing of florinef > > > > Hi: > > > > Yes, Mom's Dr. has told her many times to play with the timing of her > > medication to see what works best for her. Unfortunatley her mind is > > not flexible and hasn't been for some time. She is so " scheduled " to > > taking it twice a day, that it messes her up no end to try and play > > around with her timing. He has also told her she can take a double dose > > before she gets up if she awakes really thick-headed(she takes both > > cafergot and florinef), but she found that made her worse so has only > > tried it 3 times, I think. She usually takes it between 7-8am and then > > around noon-1pm and that's all she needs. If she's still fuzzy-headed I > > encourage her to chug down the 2 cups of water. She doesn't like doing > > it all that much, even though she knows it does work well for her. > > > > My comment has to do with another condition she has. Quite by accident > > she found that when she takes the cafergot and florinef in the early am, > > it was clearing up the symptoms. So, in the middle of the night (like > > 2am or 3am) when things were getting uncomfortable, she'd take a dose of > > cafergot and florinef and get relief so she could sleep again. But, of > > course, she was completely sleeping away any of the good effects of a BP > > boost. She'd have to take another dose before getting up and then a 3rd > > dose by about 10am. I didn't realize she shouldn't be doing this as I > > was just getting involved in her care and figuring everything out. I > > knew that her dr. had told her to play with her medication so thought > > everything was going well, until one morning she was do dizzy and messed > > up, I called him. We discussed everything and he straightened me out > > about her medication, drinking the 2 cups of water quickly and a few > > other things that I hadn't known. > > > > She now knows she mustn't take it any earlier than 6am and no later than > > 6pm. She never takes any after about 1pm. > > > > Did I answer your question? > > > > -Jane > > > > > > > -Jane > > > > > > I think the following reference was to the timing of the taking of florinef. > > > Does your mom have experience taking florinef at different times? What does > > > the experience show? That's an interesting concept. > > > > > > Peg and Jim from Guam > > > > > > She was taking her first dose waaay too > > > early in the morning so now that we've got that straightened out, she > > > really only needs the 2 doses and only occasionally needs to chug down > > > that water. > > > > > > ******************************** > > > *** Peg & Jim > > > *** # 29 Cruz Heights > > > *** Ipan-Talofofo, Guam 96930-4736 > > > *** USA > > > *** > > > *** Note: Guam is 15 hours ahead of > > > *** Eastern Standard Time (EST). > > > *** 14 ahead of EDT. > > > ******************************** > > > > > > If you do not wish to belong to shydrager, you may > > > unsubscribe by sending a blank email to > > > > > > shydrager-unsubscribe > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Jane: As I remember it, the Florinef has a very long half life so it isn't so important when it is taken. The Midodrine that many people take lasts about four hours and is taken during the time that the person is up and about and should not be taken less than four hours before going to bed, but the florinef continues to act all night. at least that is what we were told Ken took both Florinef and Midodrine, but only the Midodrine gave him a quick boost. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Barbara: Thanks for your info. It can get very confusing with all the various theories and medications. I'm just so glad that Mom only has the cafergot/florinef to take daily. -Jane kmcrae@... wrote: > > Jane: > As I remember it, the Florinef has a very long half life so it isn't > so important when it is taken. The Midodrine that many people take lasts > about four hours and is taken during the time that the person is up and about > and should not be taken less than four hours before going to bed, but the > florinef continues to act all night. at least that is what we were told Ken > took both Florinef and Midodrine, but only the Midodrine gave him a quick > boost. > Barbara > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
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