Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hi Bernice: Fred's exeperience with constipation is the same as your Ken's. If something does work for him, it's only once or twice. I think the more the MSA progress , the less things may help and then you have to use other ways . There are some these different recipes work for and that's great . Also the muscle doesn't work and these recipes may keep the bowels soft enough for when you do have to manual help . This has been our biggest battle with this illness, along with the balance. Take Care Vera Hi folks, Bernice here. For what it is worth, my and Ken's experience with constipation. I know we tried everything we were aware of, including all these home made "recipes" and at the risk of sounding like a pessimist, nothing worked more than once or twice. The last two years of Ken's life elimination was accomplished only by enema and manual cleaning out. It was explained to me at the time, once again, that the problem lies in the brain's inability to send the message needed for peristalsis, not the bowels inability to read the message. So, at least in our case, no amount of stimulants, stimulated the brain to send those messages correctly. Each new thing, only produced a watery diarrhea, which bypassed the compaction, and tended to make Ken more uncomfortable until I employed the above mention procedure. But, again, this was just our experience, and perhaps, Ken's worst problem with MSA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hi folks, Bernice here. For what it is worth, my and Ken's experience with constipation. I know we tried everything we were aware of, including all these home made " recipes " and at the risk of sounding like a pessimist, nothing worked more than once or twice. The last two years of Ken's life elimination was accomplished only by enema and manual cleaning out. It was explained to me at the time, once again, that the problem lies in the brain's inability to send the message needed for peristalsis, not the bowels inability to read the message. So, at least in our case, no amount of stimulants, stimulated the brain to send those messages correctly. Each new thing, only produced a watery diarrhea, which bypassed the compaction, and tended to make Ken more uncomfortable until I employed the above mention procedure. But, again, this was just our experience, and perhaps, Ken's worst problem with MSA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hi all, Are you all expecting too much???? Remember that for a MSA patient - have having a BM for 3-4 days is not a REAL problem. Charlotte needed liquid Colace (about a tsp. per day once she got regulated) for the last three years. Colace is a stool softener and seemed to help prevent the golf ball stools. She also ate bran flakes, and I pushed blueberries and any other fruit I could. Beans are also high in fiber and she loved green bean casserole. It is best to work with the diet and things the patient likes. If they like pudding add Metamucil to it. If they like prunes, by all means push them but if they don't like them, try something else. There are a lot of foods with fiber - I remember that Barbara fed Ken burritos - now there is a fiber meal ) BUT at times the patient may get constipated and impacted and Colace can help at that point - but it may take several days of Colace to do the job. Other things like enimas, laxitives and suppositories may be needed at that point. However one tablespoon of a homebrew per day is NOT going to do the job. It take much more fiber than that. Sorry there is no single magical answer, just lots of fiber. Note too that exercise is needed to move the stuff through the system, so that is a part of the picture. Take care, Bill Werre ================================================= > > From: FVJAMES@... > Date: 2002/07/20 Sat AM 10:57:48 CDT > To: shydrager > Subject: Re: Digest Number 1648 > > Hi Bernice: > Fred's exeperience with constipation is the same as your Ken's. If something > does work for him, it's only once or twice. I think the more the MSA progress > , the less things may help and then you have to use other ways . There are > some these different recipes work for and that's great . Also the muscle > doesn't work and these recipes may keep the bowels soft enough for when you > do have to manual help . > This has been our biggest battle with this illness, along with the balance. > > Take Care Vera > > > > > Hi folks, Bernice here. > For what it is worth, my and Ken's experience with constipation. I know we > tried everything we were aware of, including all these home made " recipes " > and at the risk of sounding like a pessimist, nothing worked more than once > or twice. The last two years of Ken's life elimination was accomplished > only by enema and manual cleaning out. It was explained to me at the time, > once again, that the problem lies in the brain's inability to send the > message needed for peristalsis, not the bowels inability to read the > message. So, at least in our case, no amount of stimulants, stimulated the > brain to send those messages correctly. Each new thing, only produced a > watery diarrhea, which bypassed the compaction, and tended to make Ken more > uncomfortable until I employed the above mention procedure. But, again, > this was just our experience, and perhaps, Ken's worst problem with MSA. > > > > > > Hi Bernice: Fred's exeperience with constipation is the same as your Ken's. If something does work for him, it's only once or twice. I think the more the MSA progress , the less things may help and then you have to use other ways . There are some these different recipes work for and that's great . Also the muscle doesn't work and these recipes may keep the bowels soft enough for when you do have to manual help . This has been our biggest battle with this illness, along with the balance. Take Care Vera Hi folks, Bernice here. For what it is worth, my and Ken's experience with constipation. I know we tried everything we were aware of, including all these home made "recipes" and at the risk of sounding like a pessimist, nothing worked more than once or twice. The last two years of Ken's life elimination was accomplished only by enema and manual cleaning out. It was explained to me at the time, once again, that the problem lies in the brain's inability to send the message needed for peristalsis, not the bowels inability to read the message. So, at least in our case, no amount of stimulants, stimulated the brain to send those messages correctly. Each new thing, only produced a watery diarrhea, which bypassed the compaction, and tended to make Ken more uncomfortable until I employed the above mention procedure. But, again, this was just our experience, and perhaps, Ken's worst problem with MSA. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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