glucose

[Guest guest]

hi, you might want to read my previous posts about glucose just

search for my name or use keyword blood sugar or glucose.

Mine is a huge issue for me- and part adrenal failure and part

pas of " angry brain syndrom " from too much menigitis.

in the 30s are you almost passing out- sweaty, nauseated, ycuk

beyond belief? In diabetics with MSA it is an issue because they

don't feel low blood sugar prob thus run risk of going into coma

and seizures etc.

I have had seizures from it- you don't want that!!!

Where are you located - you could always speak to a doctor i see

because we are unique and it might help us get treatment!

But do see your physician and and an endo about glucose

tolerance test, fasting test etc.

best wishes,

waverley

[Guest guest]

> hi, you might want to read my previous posts about glucose just

> search for my name or use keyword blood sugar or glucose.

>

CAN YOU EXPAND MORE ON THIS? I AM NEW TO ALL OF THIS, AND AM NOT

SURE I KNOW HOW TO DO A SEARCH?

> Mine is a huge issue for me- and part adrenal failure HMMM...

and part

> pas of " angry brain syndrom " from too much menigitis. MY

NEUROLOGIST WAS READY TO DO AN LP WHEN I WAS IN THE HOSPITAL IN

TULSA, BUT HE DIDN'T - BECAUSE AN OVER-ZEALOUS PSYCHIATRIST SUGGESTED

THE POSSIBILITY THAT I HAD A 'FACTITIOUS DISORDER'. LONG STORY - BUT

HE WAS WRONG - BIG TIME. WAY OFF BASE.

>

> in the 30s are you almost passing out- sweaty, NOPE. I SELDOM

PRESPIRE AT ALL ANYMORE. DO HAVE URINE RETENTION ONE DAY, AND

OVERPRODUCTION ANOTHER... BUT SELDOM SWEAT. IN FACT, I'M COLD

ALMOST ALL THE TIME. MY FEET ARE ALMOST ALWAYS ICE COLD -

LITERALLY. MY HANDS ARE SIMILAR - THOUGH NOT AS COLD AND NOT AS

OFTEN. ONLY PROBLEM IS... WHEN I DO GET HOT, CAN'T COOL OFF.

nauseated, WELL, THAT'S BEEN A PROBLEM FOR QUITE A WHILE.

ycuk beyond belief? YEP.

In diabetics with MSA it is an issue because they don't feel low

blood sugar prob WELL... I DEFINITELY DON'T FEEL IT. I FEEL 'YUCK'

MOST OFTEN - AND WHEN I AM FEELING ESPECIALLY BAD, MY BLOOD SUGAR MAY

BE IN THE LOW 30S, OR IT MAY BE IN THE 70S OR 100S. JUST NO

TELLING. I REALLY FEEL NO DIFFERENT BASED UPON BLOOD SUGAR, AND AS I

SAID - IT WAS JUST A FLUKE THAT I'M MONITORING IT NOW.

thus run risk of going into coma and seizures etc. OOPS.

INTERESTING. IS THAT WHY ONE PERSON POSTED THAT SHE IS CHECKING HER

GLUCOSE LEVEL HOURLY? AS I SAID, MY GLUCOSE LEVEL DOESN'T SEEM TO

CHANGE BASED UPON DIET. SEEMS TOTALLY UNPREDICTABLE - WHICH WOULD

FIT MY AUTONOMIC NEUROPATHY DIAGNOSIS.

>

> I have had seizures from it- you don't want that!!! NOPE. DON'T

WANT STROKES EITHER, BUT NEURO-OPTHO SUSPECTS THAT IS HAPPENING FROM

ATYPICAL MIGRAINES. :-)

>

> Where are you located - you could always speak to a doctor i see

> because we are unique and it might help us get treatment!

I AM IN OKLAHOMA - BUT... I WOULD BE WILLING TO TRAVEL ALMOST

ANYWHERE TO GET SOME FIRM DIAGNOSTIC AND TREATMENT HELP. REALLY.

I'M SERIOUS HERE!

>

> But do see your physician and and an endo about glucose

> tolerance test, fasting test etc.

WELL, MY GLUCOSE READINGS WHEN HOSPITALIZED HAVE BEEN WHACKY - BUT

THAT HAS BEEN FOR AS LONG AS I CAN REMEMBER. HOWEVER, NEVER

CONSISTENT WITH DIABETES. BASICALLY, JUST WHACKED OUT. IN FACT,

WHEN I WAS HOSPITALIZED IN TULSA, THEY HAD THAT WHITE IV STUFF GOING

IN AND WERE TESTING MY BLOOD SUGAR REGULARLY DUE TO THE RISK THAT IT

COULD GO TOO HIGH. ONE DAY THEY SAID - YOU NEED TO DRINK SOME JUICE -

TURNED OUT MY GLUCOSE WAS TOO LOW! I ASKED WHY - WHEN THE RISK WAS

SUPPOSE TO BE 'TOO HIGH' OF A GLUCOSE LEVEL. THEY SIMPLY SAID (AS

MOST DO) 'I DON'T KNOW'. THAT TIME, AFTER DRINKING A MINIMAL AMOUNT

OF GRAPE JUICE - AND PROMPTLY EXPELLING IT - MY GLUCOSE SHOT UP.

ANYWAY, BASED UPON SYMPTOMS, THEY'VE SUSPECTED DIABETES FOR OVER 10

YEARS - BUT HAVE NEVER HAD CONCLUSIVE TEST RESULTS.

MONITORING MY OWN GLUCOSE LEVELS LATELY, I CAN UNDERSTAND. SEEMS TO

VARY WITHOUT RHYME OR REASON! :-)

ANY INPUT WOULD BE APPRECIATED.

THANKS,

PAUL

>

> best wishes,

> waverley