looking for folks with experience with striato nigral degeneration

[Guest guest]

Hi folks. Is there anyone who has striato nigral degeneration to

contend with? I see lots of info about Shy Drager, some about OPCA

but not a lot specific to SND. I would love to be in touch with the

SND folks out there. Thanks

Pat in N.S.

[Guest guest]

That's what my husband has, what would you like to know?

Ginger

looking for folks with experience with striato nigral

degeneration

> Hi folks. Is there anyone who has striato nigral degeneration to

> contend with? I see lots of info about Shy Drager, some about OPCA

> but not a lot specific to SND. I would love to be in touch with the

> SND folks out there. Thanks

> Pat in N.S.

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

My father's symptoms were primarily those of SND. The

way I understand it, they are the symptoms most

closely related to PD...tremors, rigidity, etc. My dad

had the cervical dystonia (neck flex) which is common

in folks with SND.

I'm not sure I can be of a lot of help, but I'd be

happy to try to answer any questions if I can.

in OK

--- bluenose123ca pjd@...> wrote:

> Hi folks. Is there anyone who has striato nigral

> degeneration to

> contend with? I see lots of info about Shy Drager,

> some about OPCA

> but not a lot specific to SND. I would love to be

> in touch with the

> SND folks out there. Thanks

> Pat in N.S.

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Hi Pat, My name is Annette and my husband has SND. his symptoms

began about eight years ago. I don't do a lot of posting, I've found

that there are many here that can say about what I have to say and

much better but if you would like to send me an email the address is

Jwmop@...- I'm in the Yahoo chat room now and will be in the MSA

chat around 2:00 central time. -- In

shydrager@y..., " bluenose123ca " wrote:

> Hi folks. Is there anyone who has striato nigral degeneration to

> contend with? I see lots of info about Shy Drager, some about OPCA

> but not a lot specific to SND. I would love to be in touch with

the

> SND folks out there. Thanks

> Pat in N.S.

[Guest guest]

Pat, My mother Joyce (71, died 11/5/00 from complications) had SND. She was

originally diagnosed with PD, but that changed to SND within about 1-1/2

years later. I would be happy to communicate with you. You may email me

privately or on the list. Debbie