Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 Since we have alot of new members to the Support Group, I am re posting this for them. So there is no confusion, I would like to let you know that the RP Foundation is totally separate from the RP Support Group. All of the volunteers and help that we need are for the foundation. I'm getting pretty bored, so if you still want to send your contibutions to the foundation please do..... I'm ready to get busy again! LOL Thanks, I am writing to let all of you know that the Relapsing Polychondritis Support and Awareness Foundation is finally here!! Our main goal is " To provide support to Relapsing Polychondritis sufferers, their friends and family members in the form of educational material and promote awareness by distribution of educational materials to health care providers. " Any one wishing to make a contribution may and you may join the foundation and receive a newsletter for a $15 per year contribution. Of course we will take any amount that you may wish to offer. We are excited about this and Angie has made her dream come true. Without her, there would be no foundation. Any one wishing to make a contribution may make their checks or money orders out to " RP Foundation " and send it to: RP Foundation c/o Colloran Membership Dept 775 Bounty Place Manteca, CA 95337 In regards to the RP support group (which is separate from the foundation): We are also planning a reunion on Labor Day weekend of this year in Tulsa, OK For more information on this, please contact Heidi Main at Heidi@... Would love to see you all there. Lots of laughs and a time to finally put a face to the email addy's. Please try to come. Heidi needs to know as soon as possible so arrangements may be made for the dinner and hotel. Saturday will be afternoon coffee and cake, dinner that evening and Sunday will be family picinic. Sounds like a wonderful time. Please feel free to contact me or Heidi for any information on the foundation or reunion. Colloran Quote Link to comment Share on other sites More sharing options...
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