Do I have it?

[Guest guest]

I was diagnosed by an ENT over a year ago. He told me to see my

rheumatologist. I waited a year and saw my rheumatologist. In the

meantime I had read about the disease. If I had it it was a mild

case. I read that doing a biopsy could turn a mild disease response

into a full-blown response. When I saw my rheumatologist he wanted to

do a biopsy which I refused. I have not gotten my medical records

from him to see what his real feelings about RP and me are. My

question to you guys is...Does it sound like I have RP? My symptoms

began 3 years ago. When I changed Primary Care Physicians he sent me

to an ENT. My symptoms new to the last 3 years include:

1) syncope

2) SED Rate 27 (always been normal any other year)

3) benign postural vertigo. It is better right now.

4) increased tiredness

5) moderate thickening of left ventrical(heart)

6) exterior ear pain for 2 years..at first just difficult for

sleeping..as time went by my ears would hurt for longer periods after

waking until it was 24 hours a day. No redness or swelling that I

know of. Ear pain gone for 2 to 4 months now.

7) odd tingly feeling at end portion of nose. I would never call it

pain, just a type of tingle. Really strange when I touch it. That too

is better right now.

That is all I can think of at this time. I already have autoimmune

diseases. Does anyone out there have a mild case of RP and can

identify with me? Is there anything else that can cause this ear pain?

Please answer me at my e-mail address...amyinezjohnson@...

for I do not come to this place very often.

Thank you,

Amy