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Pat--more SND

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Pat, My mother Joyce never had the OH symptoms. She ended up in a wheelchair

because walking became impossible for two reasons: she had no balance--but

more than that for her, her feet were curling up into her body and she

needed leg braces to straighten her legs and the rigidity was severe. Like

's dad, my mother had a severe head flex--her head was curled into

her chest. However, she never had any pain. Debbie

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