Re: AFO's (ankle-foot orthosis)

[Guest guest]

I wear an AFO (brace/splint) on my left foot.

1) I have SCA, possibly sporadic OPCA, late onset (50's).

Does anyone know whether the need for AFO's is linked to any particular type

of SCA?

I wonder if this would give me a clue to the type of SCA I have.

I would be interested in hearing from those of you with AFO's as to the type

of SCA you have or suspect you have.

2) I have a recurring and very painful problem with a callous on the sole of

my left (AFO) foot.

I would be very keen on exchanging information on the handling of this

problem with others with AFO's that also suffer from a callous. Mine at

times makes the wearing of the AFO unbearable.

Comments from others will also be welcomed.

Podiatrists and neurologists have not been of much help to me in respect to

this matter.

As the above are rather specialized problems, please feel free to email me

privately should you so prefer.

Thanks.

Fred Seeker

[Guest guest]

Fred Seeker wrote:

>

> I wear an AFO (brace/splint) on my left foot.

>

> 1) I have SCA, possibly sporadic OPCA, late onset (50's).

>

> Does anyone know whether the need for AFO's is linked to any particular type

> of SCA?

I have AFO's and 2 full foot insoles that have a bump - like area

between the front of my toes and my arch. I was having callous problems

big time and it turned out that my foot changed, thus the brace didn't

fit properly.

I find that new balance and easy spirit gym shoes are the only ones that

fit the braces. Also, the more shoe eyelets the better the fit and ease

of putting on the shoes without rubbing the skin.

Take ur brace back with the shoes u wear to the person who made it so

that they can see how u walk in them.

nancy m.

> I wonder if this would give me a clue to the type of SCA I have.

> I would be interested in hearing from those of you with AFO's as to the type

> of SCA you have or suspect you have.

>

> 2) I have a recurring and very painful problem with a callous on the sole of

> my left (AFO) foot.

>

> I would be very keen on exchanging information on the handling of this

> problem with others with AFO's that also suffer from a callous. Mine at

> times makes the wearing of the AFO unbearable.

>

> Comments from others will also be welcomed.

>

> Podiatrists and neurologists have not been of much help to me in respect to

> this matter.

>

> As the above are rather specialized problems, please feel free to email me

> privately should you so prefer.

>

> Thanks.

>

> Fred Seeker

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

[Guest guest]

nancy m.,

Thanks for your advice, but I have already tried all the obvious things.

The orthotists (a large outfit that makes many AFO's all the time) say the

AFO fits the leg properly. It was custom-made

for me.

I've seen a podiatrist and all the usual remedies for callouses have been

tried. My wife also works on the callous daily, but I still have

intermittent pains.

A specialized laboratory has made an insert to match the sole of my foot.

It was supposed to solve the problem but hasn't done so.

I also wear a Scholl's gel sole in the AFO for its cushioning effect.

I have tried different brands of shoes and, like you, ended up with New

Balance (cross-training) with extra shoe eyelets for a better fit.

I think my problem has to do with the complex interaction of nerves, muscles

etc. and I may have to see an orthopaedic surgeon specializing in legs/feet,

have a scan etc.; a very time-consuming exercise which I had hoped to

avoid!

If you or anybody else have any further ideas/suggestions I should

be pleased to hear from you.

Fred Seeker