sample letter

[Guest guest]

SAMPLE LETTER

The Honorable

United States Senate

Washington, DC 20510

Dear Senator ___________:

OR

The Honorable

U. S. House of Representatives

Washington, DC 20515

Dear Representative ___________:

I applaud your efforts to ensure passage of the Bipartisan Patient Protection Act of 2001. This legislation must be enacted by Congress to guarantee that all Americans have access to timely and appropriate medical care.

[Add information about yourself and why this legislation is so important to you and your family.]

There are approximately 25 million men, women and children in the United States suffering with rare disorders, many of whom are denied access to quality healthcare coverage, because managed care organizations may deny benefits due to low demand, unfamiliarity with standards of care for unusual diagnoses, and/or the high cost of care. When benefits are denied and there is no appeals process, patients continue to suffer unnecessarily because there are no safeguards to insure the fair and unbiased resolution of appeals. Continuity of care and access to clinical trials is also of significant importance to those suffering with the 6,000 known rare "orphan" diseases.

Thank you for your efforts on behalf of millions of people suffering with rare diseases. I wholeheartedly endorse your efforts to enact the Bipartisan Patient Protection Act of 2001.

Sincerely,

[Guest guest]

In a message dated 6/27/01 4:05:34 PM Pacific Daylight Time,

SkyfireRanch@... writes:

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>>

, thank you for the sample letter. I will be writing to my senator and

congressman soon. I truly believe that this is a way to get info out to the

public and get some of these insurances companies to get their act together.

I waited 2 years for an approval for an MRI. That is outrageous. I'm sure

most of us have been denied medical treatment in one way or the other by

someone who is not a dr., let alone knows our case history. We must change

this and let the doctors do their work.