Sorry for all the mail

[Guest guest]

Hi all, sorry for bombarding all of you with a bunch of mail. I just went to

the site and found all the mail I didn't receive. Now I can go to bed and

at least know that I am somewhat caught up. LOL

Hope you all receive this. LOL Be sure to check the group site, if you are

thinking you are being ignored, there is probably a bunch of mail there for

you. lOL

Has any one heard from Sandy? I know she was gone, but then was posting and

not I haven't heard a word. I'm beginning to worry.

hugs

[Guest guest]

Sandy, thanks so much for posting . I was getting so worried...You have been

in my thoughts so much. How is Val doing?

Yes I'm still on pred... have been able to lowe it to 12mg and next week go

for 11mg. Just keeping my fingers crossed that the RP behaves an I can

continue to go down.

Please take care and have a great weekend. I'm going this morning to go pick

up my new glasses. That should be a surprise. I can't see to pick out the

frames so they do it for me.....Wonder what I got???? LOL Will just be good

to see again.

know I love ya lots

[Guest guest]

Hi ,

I'm here, was no mail for a couple of weeks because of another severe

respiratory infection. I'm much better now.

Sorry to hear about your feet but glad you got an answer.

Also good to hear the Biaxin is helping you. Are you still on Pred?

Sandy

>

> Has any one heard from Sandy? I know she was gone, but then was posting

and

> not I haven't heard a word. I'm beginning to worry.

>

> hugs

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

,

Val has been doing pretty good.

I am sooo...jealous. LOL Only 12mg of Pred, I can't get below 30mg.

Let me know how you like your " mystery " glasses once you see them. LOL

Love Ya,

Sandy

> Sandy, thanks so much for posting . I was getting so worried...You have

been

> in my thoughts so much. How is Val doing?

>

> Yes I'm still on pred... have been able to lowe it to 12mg and next week

go

> for 11mg. Just keeping my fingers crossed that the RP behaves an I can

> continue to go down.

>

> Please take care and have a great weekend. I'm going this morning to go

pick

> up my new glasses. That should be a surprise. I can't see to pick out

the

> frames so they do it for me.....Wonder what I got???? LOL Will just be

good

> to see again.

>

> know I love ya lots

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

In a message dated 6/29/01 11:01:23 AM Pacific Daylight Time,

biglou5685@... writes:

<< Let me know how you like your " mystery " glasses once you see them. LOL

>>

Sandy, Well........ My sunglasses are pretty good... but let's just say I

think she could have done a better job. LOL At least I can see now... It's

wonderful....like a whole new world. LOL Funny how your eyes can change so

much in 6 months.

Sandy, this is just my opinion, but I have never been able to get below 15mg

of pred and then it was right back up to 20 or 30mg. I truly believe the

Biaxin is helping me do this... I haven't had a flare in my ribs, nose, ears

or anywhere else. I don't even get hoarse as much and don't have difficulty

swallowing any more. I might have happened anyway but I'm going to say

it's the Biaxin. LOL We will see, the true test will to be under 10.

Give Val my best and you too. Hope you are doing a little better.

hugs