Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Sharon, YOu have a wonderful time.... Just let us know when you are back...my memory isn't so good. LOL Wish I was going to the coast....one of my favorite places to be... Will try my best to have a dull week just for you. LOL hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 I don't know who I'm supposed to contact, but one someone make me no mail until October 6th and then return me to receiving mail? Thanks, I really appreciate it. Sue Park Re: New to group and to polychondritis Hi Margaret, So glad you found our group. I also had RP for at least ten years before being DX. I also have Fibromyalgia. I took 1 mg of Folic Acid when I was on Methotrexate. It prevented me from getting mouth sores. Who is treating you for the RP.? I see a Rheumatologist, Pulmonologist, ENT and my PCP. Feel free to ask questions, I know its hard to deal with at times. When you need support we are here for you. Hugs, Sandy Hi, I am new to this group, and so glad that I found it. I was diagnosed with relapsing polychondritis about 3 months ago, but after careful review have found that I have had symptoms for over 10 years--since I was 18. In addition, I was diagnosed with fibromyalgia. I am not doing so well coping. I have 4 small children 10, 8, 6 and 15 mo. I don't have any support from family, and because my husband is in the military, am new to an area and have no friends, no support system at all.I am so thankful for this group!!MargaretDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 I don't know who I'm supposed to contact, but one someone make me no mail until October 6th and then return me to receiving mail? Thanks, I really appreciate it. Sue Park Re: New to group and to polychondritis Hi Margaret, So glad you found our group. I also had RP for at least ten years before being DX. I also have Fibromyalgia. I took 1 mg of Folic Acid when I was on Methotrexate. It prevented me from getting mouth sores. Who is treating you for the RP.? I see a Rheumatologist, Pulmonologist, ENT and my PCP. Feel free to ask questions, I know its hard to deal with at times. When you need support we are here for you. Hugs, Sandy Hi, I am new to this group, and so glad that I found it. I was diagnosed with relapsing polychondritis about 3 months ago, but after careful review have found that I have had symptoms for over 10 years--since I was 18. In addition, I was diagnosed with fibromyalgia. I am not doing so well coping. I have 4 small children 10, 8, 6 and 15 mo. I don't have any support from family, and because my husband is in the military, am new to an area and have no friends, no support system at all.I am so thankful for this group!!MargaretDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 In a message dated 9/19/01 8:06:35 PM Pacific Daylight Time, spark@... writes: << I don't know who I'm supposed to contact, but one someone make me no mail until October 6th and then return me to receiving mail? Thanks, I really appreciate it. Sue Park >> Sue, I will put you on no mail til 10/6. But Please remind me when you get back. LOL I don't think I can remember that long.... If you find no posting.... just give a yell and I will put you back on... By the way...... did you at one time have an email address of sspark1? If you did, we still have you listed under that name too... Do you want us to delete it? Hope you are doing well... Will miss you while you are gone. hugs Clauidia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 In a message dated 9/19/01 8:06:35 PM Pacific Daylight Time, spark@... writes: << I don't know who I'm supposed to contact, but one someone make me no mail until October 6th and then return me to receiving mail? Thanks, I really appreciate it. Sue Park >> Sue, I will put you on no mail til 10/6. But Please remind me when you get back. LOL I don't think I can remember that long.... If you find no posting.... just give a yell and I will put you back on... By the way...... did you at one time have an email address of sspark1? If you did, we still have you listed under that name too... Do you want us to delete it? Hope you are doing well... Will miss you while you are gone. hugs Clauidia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Hi I'll be away for one month. Please put me on no mail/no digest as of today.Thanks.if is this is not how to do it would someone please tell me. Thanks T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Hi I'll be away for one month. Please put me on no mail/no digest as of today.Thanks.if is this is not how to do it would someone please tell me. Thanks T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 Hi gang, We are leaving in a few hours for Cancun so I'm going no mail for now. Happy New Year everyone!!!! hugs, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 stay safe laura!!! jodie c. > Well, we stayed here and it looks like at the last report the EYE is coming > right through Orlando.. So, I know we will loose power and such.. I am > taking down my computer tonight.. So I will go no mail on all my groups till > I can get back on.... > > Quote Link to comment Share on other sites More sharing options...
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