Re: The Nature of Research/ Everyone

[Guest guest]

Thank you ,

For explaining to the group about the research and what is needed and what is being done. I have spoken to Dr. Buckner, she is going to help with the foundation a lot. She is going to call me in the next few weeks. I will keep everyone informed.

I think that most of us think nothing has been done with the foundation so far. But folks a lot of time and work has been going on. A lot of legalities, we had to get a lot of stuff in order. We appreciate all of you, but we still need your commitment to help and send your money. It won't always be this way begging for your funds. But right now we do need it. Please help in this fight for RP.

Thanks!

Love Lu

The nature of research. Over the past several years, I have watched in amazement of the number of people get mad, upset or disillusioned because some type of research was not being done. 20 years ago diabetes research was almost non-excitant. Even within our community of person's with Relapsing Polychondritis I have read post after post about this needing to be studied. Everyday people, like us can make a