Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Bob has developed some soreness on his backside - may be pressure sores - they hurt him, look red, kind of all around the rear end. What's the best ointment/powder for this to eliminate pain? He does get up and down a lot (with help) to use the restroom, etc., but I'm afraid we've reached the point that he is going to have these sores. Thanks so much - sorry I didn't pay attention when info was posted before, but guess if we don't need it there's just so much else to read and do.... Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Elaine: When Ken went on Hospice, they brought a floating air mattress with a motor that kept the air moving up and down to help with his bedsores. I am sure you can get one with a prescription from your Home Health Supplier. The mattress went on top of the hospital bed mattress. Ken loved it. Also, the Hospice nurse kept bringing different creams and ointments to try, some better than others, but I heard from Holden, the Parkinson's Nutrition Specialist that she thought a product called Calmoseptine ointment was best. The Hospice nurse got some (she had never heard of it before), and it worked so well for Ken that she told all the other nurses at Hospice about it, and they all ended up carrying it in their cars because it was so good. The thing that was so funny is that Holden is on the East Coast, and Calmoseptine is manufactured here in California in Huntington Beach which is the next town from me. Ask your pharmacist to get it for you; it is an over-the-counter product. Love, Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Thanks for your response! We do use a condom catheter at night, but I think during the day his depends become wet and we don't always catch it - going to have to be really, really vigilant. Is what you recommended over the counter? Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Thank you, Barbara! I knew this group would have more answers than the doctor's office....just stopped by while Bob was at a dental appointment and she said to make an appointment with the doctor - didn't have many suggestions. Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Bill - if a person needs to be elevated, how can they change positions in bed? Can I lower him for awhile so that he can lie on his side? Or, I suppose, slight elevation would work - this is a problem I've been thinking about for four months now - finally, I guess, we're reaping what we've sown by having him lie on his back all night long! Darn it. Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Sam's condition is similar to Bob's, perhaps, and he too had some soreness at the top part of the crease of the buttocks. I used polysporin, and it looks pretty good now, though it feels rough. Also, we stopped using the depends at night and now use a condom catheter, and that keeps his body dry. Yes, there is a lot to read on line, isn't there? I zero in on what is applicable and forget the rest for the most part. No time. Best wishes, Lou ReynoldsAt 04:13 PM 7/25/2002 -0400, you wrote: Bob has developed some soreness on his backside - may be pressure sores - they hurt him, look red, kind of all around the rear end. What's the best ointment/powder for this to eliminate pain? He does get up and down a lot (with help) to use the restroom, etc., but I'm afraid we've reached the point that he is going to have these sores. Thanks so much - sorry I didn't pay attention when info was posted before, but guess if we don't need it there's just so much else to read and do.... Elaine Grimmesey If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi, Regular washing and careful drying helps prevent pressure sores. Changing position in bed also helps. Once you get them, there are special bandages which can cure them in a few days. There is also a prescription cream called silver sulfadine which was great for clearing up the sores. Other than that there are several over the counter creams which can help. They were never as good as the prescription stuff. Take care, Bill Werre =================================== > > From: BandEGrimmesey@... > Date: 2002/07/25 Thu PM 03:13:58 CDT > To: shydrager > Subject: Re: pressure sores > > Bob has developed some soreness on his backside - may be pressure sores - > they hurt him, look red, kind of all around the rear end. What's the best > ointment/powder for this to eliminate pain? He does get up and down a lot > (with help) to use the restroom, etc., but I'm afraid we've reached the point > that he is going to have these sores. > > Thanks so much - sorry I didn't pay attention when info was posted before, > but guess if we don't need it there's just so much else to read and do.... > > Elaine Grimmesey > > > > Bob has developed some soreness on his backside - may be pressure sores - they hurt him, look red, kind of all around the rear end. What's the best ointment/powder for this to eliminate pain? He does get up and down a lot (with help) to use the restroom, etc., but I'm afraid we've reached the point that he is going to have these sores. Thanks so much - sorry I didn't pay attention when info was posted before, but guess if we don't need it there's just so much else to read and do.... Elaine Grimmesey If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Elaine - I agree with all of the other postings. Ned began with an eggcrate mattress about 7 years ago and then when we got the hospital bed 5 years ago we went to an air pressure mattress. BUT even with the air mattress, he still get reddened areas, especially when lying on his back. We try to keep him on his side as much as possible. When he does get sore areas (but skin still intact) we have a spray " Granulex " (prescription) which helps, but over the counter you can buy " Bag Balm " (originally used for cow's udder's) or ask your pharmacist. In creases or around the scrotum, we dry Ned's skin with a hair dryer and liberally use cornstarch baby powder AND fold a cotton diaper around his scrotum. This keeps moisture down and prevents the inside of his thighs and his groin with intact skin. Hope you can use some of these ideas. Love & Prayers, Ned & Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Leo sits on a Rojo cushion, same principle as the mattress pad mentioned earlier. It has worked wonders keeping his pressure wounds closed. If they open, I use calcium alginate (looks kinda like felt) to absorb and keep it covered with mefilm, a kind of transparent film dressing. The seem to come up so fast, and can be so hard to get rid of, best to try to keep the pressure off if possible. Ginger Re: pressure sores Bob has developed some soreness on his backside - may be pressure sores - they hurt him, look red, kind of all around the rear end. What's the best ointment/powder for this to eliminate pain? He does get up and down a lot (with help) to use the restroom, etc., but I'm afraid we've reached the point that he is going to have these sores. Thanks so much - sorry I didn't pay attention when info was posted before, but guess if we don't need it there's just so much else to read and do.... Elaine Grimmesey If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Anything used to protect babies from diaper rash, ask your pharmacist. Or order Boudreaux's Butt Paste, Pam has their website. Ginger Re: pressure sores Thanks for your response! We do use a condom catheter at night, but I think during the day his depends become wet and we don't always catch it - going to have to be really, really vigilant. Is what you recommended over the counter? Elaine Grimmesey If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 My father had the same pressure sore problem, in fact infection from them, along with UTI's of different strains may have been the cause of infection in his blood that they could not get under control. None of the things mentioned in any of the post so for worked for him, because the nutrition they had him on was not replacing what MSA was taking out of his body. After 4 months of high protein nutrition's and vigorous wound treatment he just couldn't fight off this one re-occurring infection. Please call thier attention to his levels in his blood work. My fathers Doctor missed noticing them on his blood work, and then 2 weeks later I had them do it again, because I knew something wasn't right. The levels plainly showed a nutrition ploblem, and the Doctor then took about 10 more days before contacting us with the results of the test. At that point my father was very sick and hospitalized. He never recovered from that, so please have them check out his blood work very carefully. Darlene ---- Original Message ----- From: BandEGrimmesey@... To: shydrager Sent: Thursday, July 25, 2002 3:13 PM Subject: Re: pressure sores Bob has developed some soreness on his backside - may be pressure sores - they hurt him, look red, kind of all around the rear end. What's the best ointment/powder for this to eliminate pain? He does get up and down a lot (with help) to use the restroom, etc., but I'm afraid we've reached the point that he is going to have these sores. Thanks so much - sorry I didn't pay attention when info was posted before, but guess if we don't need it there's just so much else to read and do.... Elaine Grimmesey If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Polysporin is over the counter, but I notice that there were some prescription drugs mentioned by other members of the group, and maybe they work better than the polysporin. Good luck. Lou ReynoldsAt 06:48 PM 7/25/2002 -0400, you wrote: Thanks for your response! We do use a condom catheter at night, but I think during the day his depends become wet and we don't always catch it - going to have to be really, really vigilant. Is what you recommended over the counter? Elaine Grimmesey If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Elaine, Stuffing a pillow(s) under one side and after a couple of hours change to the other side will move the pressure spot around even with the head elevated. We used a lot of pillows to make Charlotte as comfortable as possible (5-6 pillows). Take care, Bill Werre ================================= > > From: BandEGrimmesey@... > Date: 2002/07/25 Thu PM 05:57:16 CDT > To: shydrager > Subject: Re: pressure sores > > Bill - if a person needs to be elevated, how can they change positions in > bed? Can I lower him for awhile so that he can lie on his side? Or, I > suppose, slight elevation would work - this is a problem I've been thinking > about for four months now - finally, I guess, we're reaping what we've sown > by having him lie on his back all night long! Darn it. > > Elaine Grimmesey > > > Bill - if a person needs to be elevated, how can they change positions in bed? Can I lower him for awhile so that he can lie on his side? Or, I suppose, slight elevation would work - this is a problem I've been thinking about for four months now - finally, I guess, we're reaping what we've sown by having him lie on his back all night long! Darn it. Elaine Grimmesey If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi all, The post about protien is correct. To prevent and help treat pressure sores, the patient needs about 65 grams of protein per day. If you are taking Sinemet, this becomes a problem, but you must accept more " OFF " time and get the protein as it helps heal the pressure sores. Take care, Bill Werre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Thanks, Bill - this is a good idea! The doctor today said to just keep his sores (one slightly open, one just red) clean and dry and to keep him on his side....difficult when one sits in a lift chair most of the day!! I've put rolled towels on either side of his rear end, and we will get a doughnut cushion tomorrow. Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Thank you! His doctor just told me to get a doughnut cushion - so what do I do? I wonder if we use it for short periods to change the pressure point - maybe an hour at a time?? Gosh, this is really something to be reckoned with, isn't it? I surely appreciate your suggestions. Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 What is a Rojo cushion? I will request a prescription from our neurologist (or primary care physician???) if it would help. However, it is our primary care physican that said a doughnut cusion may help! Boy, if it weren't for this group, I honestly shudder to think where we would be at this point! Thanks so much. Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Elaine, I'm not sure that I've read all the posts but I do think that from experience with being immobile for more then six years I can speek with as somewhat of an authority on the subject of pressure sores. First, we were probably about the same place you are about six years ago. slept on a hybrid waterbed and I turned him every two hours....during the day, he spent part of it in a lift recliner and part in his electric wheelchair. We actually got him to his feet to at least transfer every two hours during the day. He still had pressure sores. The first thing that the Physical therapist and home health nurse told us was that (1) that he actually needed to change position, even so slightly, every 15 minutes while in the recliner...I would just sit or recline it to a little different angle....(2) and doughnut cushion was a definite " no no " . it actually cuts off circulation in the area.....Second we were told to check his roho cusion in his WC every couple of days as temperature, etc effects the hardness....I think I read that your husband " goes to the bathroom " ...while was still having me put him on the stool he would sit there " forever " ...I got to where I would not let him stay on the stool and " strain " for more then 20 minutes because of the facts I just mentioned.....when he had had a sore that just would not completely heal for almost 1 1/2 years we saw a skin specialist at the hospital and she got us a special Hilrom " no pressure " bed....made for burn patients...and since he was " leaking " in his depends alot she told us to get " proshield cleanser and protectant " , We got it healed up and now we just use preventive measures. He now has to sit on a shower commode while the nurse empties his bowels. And I have made a special cushion for the seat that is soft and level to best distribute his weight. Elaine, I also would caution you about putting towels under him while in the chair. (if that is what you have in mind) you might just be putting more pressure and find that you get a worse sore in a different area while the first is getting better. By the way,I have found that those lift chairs are very hard even on my " padded bottom " . :-) Don't intend to contradict anyone else or confuse you in any way, just want to give you another point of view to consider...Good luck > Thanks, Bill - this is a good idea! The doctor today said to just keep his > sores (one slightly open, one just red) clean and dry and to keep him on his > side....difficult when one sits in a lift chair most of the day!! I've put > rolled towels on either side of his rear end, and we will get a doughnut > cushion tomorrow. > > Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
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