Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 Kathie, don't worry about having to go it alone. I am sure some of us will be there with you. My husband is coming with me and is very helpful. (sometimes TOO helpful). I am hoping for a date the end of Aug. or the first of Sept. So as time gets closer, just check with some of us that are close and see when everyone else is going and where we are staying (you noticed I said WE!) hehe You can stay in the same hotel and stuuf so don't worry if you have to go alone. BTW where is home for you? Kristi in AL __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 Holly, My heart goes out to You and Joey Green. Your kindness is a wonderful, wonderful blessing. My prayers are with Joey and his guardian angel Holly. Debbie Munford Tn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 In a message dated 06/12/2001 2:28:38 AM Central Daylight Time, Rpolychondritis writes: << I went round and round with my rheumy on this.... He told me if my ears weren't flaring then nothing was... I think that is a bunch of you know what. I have had my ribs flare when nothing else was or my nose and not my ears... I know I am not an expert, but I don't agree with him at all. He also said I have to have an elevated sed rate to be flaring and I know many in the group have had normal sed rates while flaring. >> , I've had the exact same experience. My Rheumy says if my ears aren't red, then I'm not flaring. But, WE know better. What do you do with these educated doctors??? Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 --- OneSuperMema@... wrote: > In a message dated 06/12/2001 2:28:38 AM Central > Daylight Time, > Rpolychondritis writes: > > << I went round and round with my rheumy on this.... > He told me if my ears > weren't flaring then nothing was... I think that is > a bunch of you know > what. > I have had my ribs flare when nothing else was or > my nose and not my > ears... > I know I am not an expert, but I don't agree with > him at all. He also said > I have to have an elevated sed rate to be flaring > and I know many in the > group have had normal sed rates while flaring. > , My Mom would have flares and have a normal sed rate. have you also been told " You should be running a temp?When it flared in her trachea,her regular DR. was out of town,so I was told it was bronchitis for three days.Her DR.saw her,increased pred within 2hrs she was breathing better so I understand the frustration you all go thru trying to get your DR's to LISTEN to you.Thats one reason I think " AWARENESS OF RP " is so important.The medical professionals need to LISTEN TO THIER PATIENTS.In some cases they could learn a lot.I hope things work out for you.God bless Shirley __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 --- OneSuperMema@... wrote: > In a message dated 06/12/2001 2:28:38 AM Central > Daylight Time, > Rpolychondritis writes: > , . But, WE know better. What do > you do with these > educated doctors??? > Love, > > Hi , I took my PCP a thick file folder of articles from The Support Report and other articles that I have found on-line. Since he has never seen another RP patient, he was very appreciative. You might want to try that. Love, Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 In a message dated 7/3/01 9:43:28 PM Pacific Daylight Time, sloumc@... writes: << he medical professionals need to LISTEN TO THIER PATIENTS.In some cases they could learn a lot.I hope things work out for you.God bless Shirley >> Shirley, so sorry this has taken me so long to answer. You are SO right. I think I have a few drs. that will listen now. I sure hope so. I fired my rheumy. Dont need to drive 3 hours for nothing. LOL Things are going better than before and that I have to be thankful for. Let's whip this disease into shape!!! We WILL get the information out through the foundation and save a lot of people going through what your mom and the rest of us are. Hope you had a really nice 4th. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 Beautiful poem . My Condolences on your great loss. Bernice Quote Link to comment Share on other sites More sharing options...
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