Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Everybody, We need your help again. Denny is really restless in his sleep. Before we knew he was sick with MSA, he was terrible. He attacked me several times... someone was after him, he fell out of bed while fighting more than once, and would yell out and talk in his sleep. Several years after being diagnosed, his sleep pattern got a lot better and we have had so problem till now. He is yelling and jumping, his arms frailing. I run in there when I hear him hollowing and he is sleep. He doesn't remember anything about it the next morning. I remember some time ago that some of you were on medication to help stop the acting out of dreams. Thanks for any help you can give. Ann and Denny in Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Ann, Only advice I can give is move into the guest room or at least another bed. Many of us have been through this stage. In self defense - move. It is common. Take care, Bill Werre ============================= > > > Date: 2002/07/29 Mon PM 07:37:56 CDT > To: shy-drager group shydrager > > Subject: restless sleep > > Hi Everybody, > We need your help again. Denny is really restless in his sleep. Before > we knew he was sick with MSA, he was terrible. He attacked me several > times... someone was after him, he fell out of bed while fighting more > than once, and would yell out and talk in his sleep. Several years > after being diagnosed, his sleep pattern got a lot better and we have > had so problem till now. He is yelling and jumping, his arms frailing. I > run in there when I hear him hollowing and he is sleep. He doesn't > remember anything about it the next morning. I remember some time ago > that some of you were on medication to help stop the acting out of > dreams. Thanks for any help you can give. > Ann and Denny in Virginia > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Ann and Denny, The medication used to treat REM behavior disorder (which is the name for acting out dreams) is klonopin (clonazapam). It is very effective in treating this problem, but some people have had bad reactions to it so if your doctor prescribes it keep a close eye on Denny for the first week or so. It depresses the central nervous system, so can worsen the MSA symptoms in some people. (Rob has been taking it for years with no problems.) Carol & Rob Lexington, MA restless sleep > Hi Everybody, > We need your help again. Denny is really restless in his sleep. Before > we knew he was sick with MSA, he was terrible. He attacked me several > times... someone was after him, he fell out of bed while fighting more > than once, and would yell out and talk in his sleep. Several years > after being diagnosed, his sleep pattern got a lot better and we have > had so problem till now. He is yelling and jumping, his arms frailing. I > run in there when I hear him hollowing and he is sleep. He doesn't > remember anything about it the next morning. I remember some time ago > that some of you were on medication to help stop the acting out of > dreams. Thanks for any help you can give. > Ann and Denny in Virginia > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 My husband broke out in a very heavy rash all over his entire body that really itched. He had never had a reaction to any medication prior to this, but doctors stopped the use of klonopin. Marilyn > > Reply-To: shydrager > Date: Mon, 29 Jul 2002 21:26:11 -0400 > To: shydrager > > Subject: Re: restless sleep > > Ann and Denny, > > The medication used to treat REM behavior disorder (which is the name for > acting out dreams) is klonopin (clonazapam). It is very effective in > treating this problem, but some people have had bad reactions to it so if > your doctor prescribes it keep a close eye on Denny for the first week or > so. It depresses the central nervous system, so can worsen the MSA symptoms > in some people. (Rob has been taking it for years with no problems.) > > Carol & Rob > Lexington, MA > restless sleep > > >> Hi Everybody, >> We need your help again. Denny is really restless in his sleep. Before >> we knew he was sick with MSA, he was terrible. He attacked me several >> times... someone was after him, he fell out of bed while fighting more >> than once, and would yell out and talk in his sleep. Several years >> after being diagnosed, his sleep pattern got a lot better and we have >> had so problem till now. He is yelling and jumping, his arms frailing. I >> run in there when I hear him hollowing and he is sleep. He doesn't >> remember anything about it the next morning. I remember some time ago >> that some of you were on medication to help stop the acting out of >> dreams. Thanks for any help you can give. >> Ann and Denny in Virginia >> >> >> >> If you do not wish to belong to shydrager, you may >> unsubscribe by sending a blank email to >> >> shydrager-unsubscribe >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Greetings Ann & Denny! Well, Denny appears to have what is known as REM Behavior Disorder (? might not have the correct name, but off the top of my head it's something like that). Denny, your next step probably should be to talk with your doctor about this. You probably should be referred to a sleep disorders center. An alternative might be to simply try medication (Klonopin, I think) and see if it works. It can be managed. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Dear Ann and Denny, The sleep behavior you have written about is exactly the same as what we have experienced. Before we knew that Sheldon had MSA, I had been attacked several times while Sheldon was sleeping. He always said that he thought someone was chasing him and he was fighting back. The neurologist gave him klonapin (clonazapam) and his sleep behavior got better. This spring he was in the hospital for 14 days with hepatitis, which the doctors think was a reaction to his medications. He is not back on all his medications yet, but without the clonazapam he is having night fights again. In fact the other night he broke two of his toes and had bloody knuckles on his hand. He is aftraid to sleep with me and thinks he might hurt me. I have done as Bill suggested, moved in to the guest room for self preservation. Good luck and best wishes to both of you. Love and gentle hugs. Quote Link to comment Share on other sites More sharing options...
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