Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Your input is needed on this worthwhile project. Deadline is August 31st. Take care, Pam ------------------ ATTENTION: People with MSA and Caregivers / Pam Bower and the Shy-Drager/MSA list RE: PHOTOS and WRITINGS of People with MSA for MSA VIDEO DOCUMENTARY Hello- I am writing on behalf of Rainlight Films to let you know about a video documentary we are producing about Multiple System Atrophy (MSA) -- and to ask your help in creating A MONTAGE SEQUENCE featuring the FACES and COMMENTS OF many PEOPLE WITH MSA. Rainlight Films is an independent, nonprofit endeavor run by Jim Likowski and Deb Dohm. Jim is a documentary filmmaker and has produced several programs shown on public television. We both became aware of the issues of MSA when our sister-in-law, Sophia Dohm was diagnosed in 1996. As you know, having a relatively unknown disorder is an alienating condition -- few people have ever heard of it, there are no specific treatments or medications, research is scanty and a cure seems distant. In the film we want to document the human element: the emotional demands on MSA sufferers, their families, and caregivers, and the challenge of trying to cope. Included also will be information on the medical aspects of the disease. I am writing to tell you about the film, and secondly because we would like to create a sequence featuring FACES and brief SKETCHES OR ANECDOTES about people who have MSA. Therefore, if you are willing to VOLUNTEER and share your knowledge and experience (Deadline: August 31), we are seeking 1) your STILL PHOTOGRAPH (or home video) and 2) a BRIEF SYNOPSIS of your experience with the disease, including what TOOLS and METHODS of coping and caregiving have served you most effectively -- We would be very interested in hearing what your biggest challenge or learning experience has been; the one most important thing you would want to say to someone who has been newly diagnosed with MSA; and general advice you would offer to people with MSA and to their caregivers. The film will be shown on public and cable television and worldwide on the Internet. Our purpose in making the film is so people newly diagnosed will not feel so alone and so those that have had MSA longer will know their story is being told. And, to increase public awareness. The more people that know about MSA the sooner a cure can be found. Research funding unfortunately is dependent upon broad public recognition. We are beginning to edit the film and plan to complete it by the end of the year. PHOTOS and WRITINGS need to be in to us by AUGUST 31 to be considered. Let me reiterate that the written piece can be short, as long as your most important feelings, advice, and comments are emphasized. We will return all photographs and videos; or you can email digital photos, if you like. We appreciate your help by letting your stories and faces be known! Thank you. Sincerely, Deb Dohm and Jim Likowski Rainlight Films P.O. Box 410 Coloma, CA 95613 Email: mulesear@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 I think it's a wonderful idea, and I see it as a tribute to my dad and all others who've gone on before him. I've talked to my mom, and she feels dad wouldn't have minded us telling his story. I hope to be working on it soon. Rose ----Original Message Follows---- Reply-To: shydrager To: " sds " shydrager > Subject: MSA VIDEO DOCUMENTARY Date: Mon, 29 Jul 2002 22:20:46 -0300 Your input is needed on this worthwhile project. Deadline is August 31st. Take care, Pam ------------------ ATTENTION: People with MSA and Caregivers / Pam Bower and the Shy-Drager/MSA list RE: PHOTOS and WRITINGS of People with MSA for MSA VIDEO DOCUMENTARY Hello- I am writing on behalf of Rainlight Films to let you know about a video documentary we are producing about Multiple System Atrophy (MSA) -- and to ask your help in creating A MONTAGE SEQUENCE featuring the FACES and COMMENTS OF many PEOPLE WITH MSA. Rainlight Films is an independent, nonprofit endeavor run by Jim Likowski and Deb Dohm. Jim is a documentary filmmaker and has produced several programs shown on public television. We both became aware of the issues of MSA when our sister-in-law, Sophia Dohm was diagnosed in 1996. As you know, having a relatively unknown disorder is an alienating condition -- few people have ever heard of it, there are no specific treatments or medications, research is scanty and a cure seems distant. In the film we want to document the human element: the emotional demands on MSA sufferers, their families, and caregivers, and the challenge of trying to cope. Included also will be information on the medical aspects of the disease. I am writing to tell you about the film, and secondly because we would like to create a sequence featuring FACES and brief SKETCHES OR ANECDOTES about people who have MSA. Therefore, if you are willing to VOLUNTEER and share your knowledge and experience (Deadline: August 31), we are seeking 1) your STILL PHOTOGRAPH (or home video) and 2) a BRIEF SYNOPSIS of your experience with the disease, including what TOOLS and METHODS of coping and caregiving have served you most effectively -- We would be very interested in hearing what your biggest challenge or learning experience has been; the one most important thing you would want to say to someone who has been newly diagnosed with MSA; and general advice you would offer to people with MSA and to their caregivers. The film will be shown on public and cable television and worldwide on the Internet. Our purpose in making the film is so people newly diagnosed will not feel so alone and so those that have had MSA longer will know their story is being told. And, to increase public awareness. The more people that know about MSA the sooner a cure can be found. Research funding unfortunately is dependent upon broad public recognition. We are beginning to edit the film and plan to complete it by the end of the year. PHOTOS and WRITINGS need to be in to us by AUGUST 31 to be considered. Let me reiterate that the written piece can be short, as long as your most important feelings, advice, and comments are emphasized. We will return all photographs and videos; or you can email digital photos, if you like. We appreciate your help by letting your stories and faces be known! Thank you. Sincerely, Deb Dohm and Jim Likowski Rainlight Films P.O. Box 410 Coloma, CA 95613 Email: mulesear@... If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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