Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Anyone know of any cases where someone's BP and/or weight actually decreased with prescription of Amantadine (Symmetrel)? My BP has gone down, and so has my weight (which is going to really concern my internist - and myself - as they'll start pushing that jejunum tube issue again). I don't see these listed as possible side-effects on what I've found (or what you sent me Vera - thanks by the way :-). So, perhaps I'm just cycling again. Body has been acting weird anyway (more so than this new " normal " ). Decline seems consistent and relatively rapid. I thought this was suppose to go slow - and kinda plateau here and there? Anyway, please let me know if you have any info. I'm trying to avoid it (j-tube), but... Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 : One of the possible side effects of Amantadine is dizziness which usually results from lowered BP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 , Weight loss in MSA is normally from eating less. In your case it may be the stomach shutting down (gasteoparesis -sp). There is a test they can do to see if the stomach is performing correctly. This seems to be an effect of autonomic failure as far as I can tell as Anne Pledger had that problem and got a stomach pacemaker to help her digest food. It is working for her. In Charlotte's case it was eating less due to swallowing difficulties. You need to start keeping a log of your daily intake of food and liquids. Add in your daily temperature and BP - we always checked BP and temperature just before Charlotte got up (still reclining) and immediately after she sat up on the edge of the bed. That gave us a baseline to work from. As she got more into the disorder, I kept a food and drink log also, and made up any shortage of nutrients with various supplements such as Ensure, Jeveity, or even Slimfast. She was almost always short of calcium and that can be made up with a Tums or two. You also need to make sure you are getting enough protein as it helps the body do it's normal thing. Sixty five grams of protein seems to be a minimum, but you may need to get a dietician consult to learn more about that. The doctor can prescribe that and get your insurance to pay for it. If not, the next time you are in the hospital ask to speak to the dietician there as part of your discharge planning. Note that discharge planning can be a great source of help for MSA patients and you should insist on it anytime you are in the hospital. At worst they should have a nurse who has some experience in discharge planning, and better hospitals have a trained person in discharge planning who can help you arrange everything you need for home care. Take care, Bill Werre ========================================== > > > Date: 2002/07/30 Tue AM 01:08:00 CDT > To: shydrager > Subject: Amantadine and Decreased BP or weight? > > Anyone know of any cases where someone's BP and/or weight actually > decreased with prescription of Amantadine (Symmetrel)? > > My BP has gone down, and so has my weight (which is going to really > concern my internist - and myself - as they'll start pushing that > jejunum tube issue again). > > I don't see these listed as possible side-effects on what I've found > (or what you sent me Vera - thanks by the way :-). So, perhaps I'm > just cycling again. Body has been acting weird anyway (more so than > this new " normal " ). Decline seems consistent and relatively rapid. > I thought this was suppose to go slow - and kinda plateau here and > there? > > Anyway, please let me know if you have any info. > > I'm trying to avoid it (j-tube), but... > > Thanks, > > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 GOOD POINT. THANKS. PAUL > : > One of the possible side effects of Amantadine is dizziness which > usually results from lowered BP. Quote Link to comment Share on other sites More sharing options...
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