ER>Bill

[Guest guest]

,

YES BILL?

Unfortunately, UH OH. DON'T LIKE THE SOUND OF THAT J

you will need the ER at a hospital at some point.

WELL… I'M PRETTY GOOD AT DENYING A NEED – AND THE PAST 2 DAYS HAVE

BEEN NICE. PLENTY OF PROBLEMS, AND NOW KIDNEYS SEEM MESSED UP AS

WELL – BUT… ODDLY ENOUGH – MY ENERGY LEVEL HAS IMPROVED – SO I'VE

SHIFTED BACK INTO THE " I'M NOT SICK " MODE. SO… I AM… IN DENIAL

AGAIN. AT LEAST I CAN RECOGNIZE IT.

Infection will rear it's ugly head again and in spite of the ER

shortcomings, they seem to be the best bet for infection treatment.

The hospital near us just rehydrated Charlotte the first time and

sent her home without checking for infection. Less than 10 days

later, I was calling 911 to get her into a different hospital where

they found the infection (septis by then). I wrote a letter

TO WHO?

about the ER at the hospital near us and ever since they know about

MSA.

THIS BRINGS UP A GOOD POINT… MY PREVIOUS PCP HAS QUIT HIS PRACTICE

AND BECOME THE ER DOC AT A LOCAL HOSPITAL. HE'S A SUPER GREAT GUY

AND THE REASON I GOT HOSPITALIZED IN DECEMBER (AFTER LOSING A BIG

CHUNK OF WEIGHT…) PERHAPS I SHOULD ENLIGHTEN HIM BEFOREHAND OF WHAT

THINGS TO LOOK FOR. I THINK HE'D BE RECEPTIVE. HAVE ANY INPUT FOR

ME TO SHARE WITH HIM?

I'VE KINDA CUT HIM OFF, BECAUSE HE KNEW HE WAS OUT OF HIS BALLPARK

WITH THIS THING – AND MY INTERNIST SEEMED MORE KNOWLEDGABLE AND TO

HAVE MORE ABILITY TO MAKE CONNECTIONS NEEDED. (PLUS I'D BEEN ADVISED

TO LIMIT MY PHYSICIAN INPUT - KEEPING IT TO ONE TO KEEP THE CONFUSION

DOWN) SHE (INTERNIST) IS NOW BASICALLY MY PCP. BUT, PROBALBY

WOULDN'T HURT TO HELP MY OLD PCP DOC GET EDUCATED – AND THEN IF I DO

NEED ER TREATMENT IN THE FUTURE, HE CAN HELP. PERSONALLY, AS I THINK

I SAID BEFORE, I GOT BETTER CARE AT THAT SMALL-TOWN HOSPITAL THAN I

DID AT EITHER TULSA OR MAYO.

PLEASE LET ME KNOW WHAT YOU THINK. THANKS.

PERHAPS, AS I PREFER TO LOOK AT THINGS, ALL SUFFERING WE ENDURE, IF

WE LEARN FROM IT – CAN HELP TO BENEFIT SOMEONE ELSE DOWN THE LINE.

Take care, Bill Were

THANKS BILL – YOU TOO – WE NEED YOU OUT THERE.

PAUL

[Guest guest]

,

You asked:

>HAVE ANY INPUT FOR ME TO SHARE WITH HIM?

ER doctors in general tend to treat trauma and are not usually up on MSA or SDS.

They need to know that you have orthostatic hypotension and autonomic failure

which causes the body functions like BP and temperature to act funny. Therefore

temperature is NOT a good indicator of infection.

If you have any sudden onset deterioration of memory, confusion, movement or

anything, they should test you for all types of infection. They should NOT lay

you flat as your BP will rise in that position. Feet up is a real no-no.

> TO WHO?

On my letter to the hospital, I wrote to the hospital and to the attention of

the quality control department. My first line of the letter started with I am

concerned with the quality of care my wife received in your ER on mm/dd/yy.

Take care, Bill Werre

[Guest guest]

THANKS BILL. AS I IMPLIED IN MY EARLIER POST, I KNOW THE ER DOC - WE

WERE SOME OF HIS VERY FIRST PATIENTS. I THOUGHT HE MIGHT LIKE TO

KNOW INFO BEFORE I HAD TO COME SEE HIM.

I WILL KEEP THE OTHER INFO TO CARRY WITH ME IN CASE I'M IN A STRANGE

PLACE WHEN I NEED SUCH SERVICES.

I'VE BEEN HAVING PROBLEMS WITH SHORT TERM MEMORY AND SUCH - IN FACT,

SEEMS THE ONLY CONSISTENT THING ABOUT MY BODY OR BRAIN FUNCTION

LATELY IS THAT IT'S INCONSISTENT :-) MEMORY IS FAIRLY CONSTANT

THOUGH - BAD SHORT TERM - PRETTY GOOD LONG TERM (IN FACT, THAT MIGHT

BE BETTER THAN I'VE HAD IN YEARS). IF I DIDN'T KNOW BETTER, I'D SAY

I'M ALZHEIMER'S - BUT NOT THAT BAD... :-)

THANKS AGAIN FOR YOUR INPUT TODAY (AND ALWAYS).

PAUL

> ,

>

> You asked:

>

> >HAVE ANY INPUT FOR ME TO SHARE WITH HIM?

>

> ER doctors in general tend to treat trauma and are not usually up

on MSA or SDS. They need to know that you have orthostatic

hypotension and autonomic failure which causes the body functions

like BP and temperature to act funny. Therefore temperature is NOT a

good indicator of infection.

>

> If you have any sudden onset deterioration of memory, confusion,

movement or anything, they should test you for all types of

infection. They should NOT lay you flat as your BP will rise in that

position. Feet up is a real no-no.

>

> > TO WHO?

>

> On my letter to the hospital, I wrote to the hospital and to the

attention of the quality control department. My first line of the

letter started with I am concerned with the quality of care my wife

received in your ER on mm/dd/yy.

>

>

> Take care, Bill Werre