Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 I come here and read nearly every day. i still don't know alot of the termonology of the ailments you people describe and i feel blessed that i don't have them. i hope you all get better and get thru your flares. for me the pred. works if i follow the instructions to the letter. i don't need any more chemicals in my body at the present time. (thank God) but i still read and watch for symptom that youi all present to the group...............chuck heath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 Chuck, I'm glad you are doing well on the Pred. Sandy > I come here and read nearly every day. i still don't know alot of > the termonology of the ailments you people describe and i feel > blessed that i don't have them. i hope you all get better and get > thru your flares. for me the pred. works if i follow the instructions > to the letter. i don't need any more chemicals in my body at the > present time. (thank God) but i still read and watch for symptom that > youi all present to the group...............chuck heath > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Chuck, I am soooo glad that the pred is working for you. Looks like you caught everything early and have a really good dr. You are smart by watching and reading, so you know what to look for if something else should pop up. Then you can take care of it right away. How much pred are you on and how long have you been on it.? Just keep doing what you are doing.....sounds like you are on the right track. hugs C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Dear Chuck, keep reading...I don't always need everything yet but I do print out different things that I may need. Doctors don't seem to get it and if you take your information from the group when you have a symptom he/she may be about to treat it. Because we're dealing with a rare disease doctors just don't know. Good luck to you....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 > Chuck, I am soooo glad that the pred is working for you. Looks like you > caught everything early and have a really good dr. You are smart by watching > and reading, so you know what to look for if something else should pop up. > Then you can take care of it right away. How much pred are you on and how > long have you been on it.? > > Just keep doing what you are doing.....sounds like you are on the right > track. > > hugs > C i take 40 mmgl a day twice a day then trickle down very slowly over a 10 to 15 day peroid depending how bad my ears are flaring. sometimes i catch the startup quick and other times i don't and it's hell to pay but i donm't need to tell you about that side....Chuck Heath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2001 Report Share Posted July 12, 2001 In a message dated 7/10/01 10:17:47 PM Pacific Daylight Time, cistn@... writes: << i take 40 mmgl a day twice a day then trickle down very slowly over a 10 to 15 day peroid depending how bad my ears are flaring. sometimes i catch the startup quick and other times i don't and it's hell to pay but i donm't need to tell you about that side....Chuck Heath >> Chuck, That's the key....catch it at the very beginning and KNOCK it on it's butt. LOL I use to find I could get off the pred quicker then if I waited too long. At any sign of a flare I up the pred now by just one mg. Trying like hell to get off the stuff once and for all..I know.... big dream... But I feel that this time it will work. I was down to 11mg but had to go up to 12 yesterday... that's okay.... i will get it down. All I need it patience. LOL Got any to spare??? Quote Link to comment Share on other sites More sharing options...
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