Trials for Hormone replacement therapy

[Guest guest]

and I had a rare day out today, and whilst we were out there was a

telephone call from the London hospital

to say could not take part in the test as he was not confirmed with MSA

which she said can only be confirmed

with a test on the brain after death................I am very confused, do they

only want corpses to take part.

I will ring tomorrow to find out what they are up to, needless to say john is

very disappointed.

JILL

[Guest guest]

Jill

What a frustrating experience. It is so difficult to get diagnosed by

whatever means. To tell you that he will will be in the study and to have

that taken away is horrible. I had that happen to me twice and it just

makes you want to throw your hands up in the air in exasperation. Give

a big hug from us and tell him how sorry we are that this happened.

There is a doctor in London who CAN make a definitive diagnosis of MSA

through deoxy-hydro-glucose PET and [18] Fleurodopa PET scans. Both would

have to be done to make the determination of which PD Plus disorder it is.

His name is Dr. J. , MD, DSc, FRCP, Fmed Sci

Quite a title, I know. He is the Hartnett Professor of Neurology and Head

of the Department of Sensorimotor Systems in the Faculty of Medicine,

Imperial College, London. He is also Head of the Neurology Group at the

Medical Research Council Clinical Scinces Centre, Hammersmith Hospital,

London. He is Chief Medical Officer of Imanet and Clinical Director of

Imaging Research Solutions Ltd., a subsidiary of Amersham Health PLC.

He is Chairman of the Scientific Issues Committee of the Movement

Disorders Society, a member of the International Research Advisory Board of

the MJF Foundation, a member of the Medical Advisory Panel of the UK PD

Society (Chairman, 1996-7) and UK Huntington's Disease Association. etc.

etc. et.

This is his bio or at least part of it. It was his speech and slides at

PAN that got so fired up to go and have the PET scans done on me so

that a definitive dx could be made. Sorry, I don't have any phone numbers

but I hope this will at least be a door for you and and his not being

allowed into a study b/c of whatever mystery dx he has.

Hugs,

Deborah

Reply-To: shydrager

To: " Shydrager (E-mail) " shydrager >

Subject: Trials for Hormone replacement therapy

Date: Thu, 1 Aug 2002 23:05:01 +0100

and I had a rare day out today, and whilst we were out there was a

telephone call from the London hospital

to say could not take part in the test as he was not confirmed with MSA

which she said can only be confirmed

with a test on the brain after death................I am very confused, do

they only want corpses to take part.

I will ring tomorrow to find out what they are up to, needless to say john

is very disappointed.

JILL

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe

[Guest guest]

Just looked him up. He is also on the Advisory Board of the J. Fox

Foundation.

http://www.michaeljfox.org/foundation/who_brooks.html

INTERNATIONAL SCIENTIFIC ADVISORY BOARD

J. , MD

Hartnett Professor of Neurology

Division of Neuroscience, Faculty of Medicine

Imperial College

London, United Kingdom

In addition to his responsibilities at Imperial College, J. is

also head of the PET Neurology Group at the Medical Research Council

Clinical Sciences Centre at Hammersmith Hospital in London. He was appointed

chairman of the Scientific Issues Committee of the Movement Disorder Society

in 1998 and is on the Executive of the Medical Advisory Panel of the UK

Parkinson's Disease Society and a member of the Medical Advisory Panel of

the UK Huntington's Disease Association.

is also a member of the Wellcome Trust Neuroscience Panel and is

currently on the editorial boards of the Journal of Neurology, Neurosurgery,

the Journal of Neural Transmission, and Synapse and was on the editorial

board of Movement Disorders from 1994 to 1998. His research involves the use

of positron emission tomography and magnetic resonance imaging to study

cerebral control of movement in health and Parkinson's disease and the

performance of therapeutic trials in Parkinson's disease. To date he has

published over 200 reports in peer-reviewed journals and his research is

currently supported by grants from the Medical Research Council, charities,

and industry.

Trials for Hormone replacement therapy

Date: Thu, 1 Aug 2002 23:05:01 +0100

and I had a rare day out today, and whilst we were out there was a

telephone call from the London hospital

to say could not take part in the test as he was not confirmed with MSA

which she said can only be confirmed

with a test on the brain after death................I am very confused, do

they only want corpses to take part.

I will ring tomorrow to find out what they are up to, needless to say john

is very disappointed.

JILL

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe

[Guest guest]

Thank you for the information Deborah it is much appreciated, did you say you

had the tests, are you from the UK

JILL

Trials for Hormone replacement therapy

Date: Thu, 1 Aug 2002 23:05:01 +0100

and I had a rare day out today, and whilst we were out there was a

telephone call from the London hospital

to say could not take part in the test as he was not confirmed with MSA

which she said can only be confirmed

with a test on the brain after death................I am very confused, do

they only want corpses to take part.

I will ring tomorrow to find out what they are up to, needless to say john

is very disappointed.

JILL

If you do not wish to belong to shydrager, you may

unsubscribe by sending a blank email to

shydrager-unsubscribe