Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Hi Folks, On Monday, Jeff and I met with our attorney to draw up his will and physician's directives. One question that came up was the issue of whether Jeff wanted to donate his body for research. We have discussed this at some length, and he wants to find out after he dies whether he does indeed have MSA. He also wants to donate any other organs or body parts necessary for neurological research. Where do we start? Does Jeff need to contact certain organizations, get on a list? Any information would be appreciated. Also, we're not there yet, but permanently disability is looming, maybe within a year or two, although with the meds and research, who knows. We just want to be prepared. What will Social Security need to establish permanent disability? Regards, Maciejewski Digest Number 1672 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Hi , When my father died, we donated his brain and spinal cord tissue to Mayo for MSA research. We had not made prior arrangements and were very lucky that a family friend who happens to be a Dr. was able to quickly make the arrangements for us. There is a very small window of time after death in which the tissue can be harvested. I would strongly suggest that you make arrangements now for that. In the past Pam Bower has posted contacts at Mayo and Vanderbilt who can help with the arrangements. I don't know about arrangements for other organs. in OK --- Maciejewski katsmgt@...> wrote: > Hi Folks, > > On Monday, Jeff and I met with our attorney to draw > up his will and > physician's directives. One question that came up > was the issue of whether > Jeff wanted to donate his body for research. We > have discussed this at > some length, and he wants to find out after he dies > whether he does indeed > have MSA. He also wants to donate any other organs > or body parts necessary > for neurological research. > > Where do we start? Does Jeff need to contact > certain organizations, get on > a list? Any information would be appreciated. > > Also, we're not there yet, but permanently > disability is looming, maybe > within a year or two, although with the meds and > research, who knows. We > just want to be prepared. What will Social Security > need to establish > permanent disability? > > > Regards, > > Maciejewski > > Digest Number 1672 > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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