Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Hi: Yesterday I sent an email asking which meds patients are taking for pain & I haven't received any answers. I'm not sure if my email was received by the group or not. Bob is starting to have pain from his shoulder to his foot. I would appreciate knowing which meds patients are taking. Thanks..Regards, jerrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Hi Jerrie, I can only speak for my sister on what pain meds she takes. She has lots of neuropathic pain, mostly shoulder and neck area. She takes Neurontin and it does take the edge off of it. She takes 800mg. 4 times a day. Hope this helps. Jean & Chrissie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 sorry I must have missed the posting. I take Ultram. In the past I took Darvecette. I have yet to find a 'pain' med that doesn't have severe constipation as an side effect. nancy m. deenzer@... wrote: > > Hi: Yesterday I sent an email asking which meds patients are taking for > pain & I haven't received any answers. I'm not sure if my email was > received by the group or not. Bob is starting to have pain from his > shoulder to his foot. I would appreciate knowing which meds patients are > taking. Thanks..Regards, jerrie > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Jerrie, Is all the pain on one side? That does not sound normal if so. I would schedule a visit to the doctor in any case, but especially if it is from shoulder to foot all on one side. There are many meds used by list members for MSA type pain such as Neurontin, something that starts with a K, Baclofen, and even Sinemet helps some with pain. Usually opiates are not used for pain in MSA patients as they can add to symptoms of MSA. But some times even they are used for short periods. Later in MSA when dystonia sets in, doctors may use Botox shots to give movement and relief pain. At that point, they may also use opiates at times. Remember that opiates on top of MSA may cause symptoms of confusion, fatigue and even reduce existing motion which would confuse things like identifying infection. Ask your doctor if muscle spasm is causing the pain and work on the cause of the pain. Exercise can help at times. Take care, Bill Werre ========================================= > > From: deenzer@... > Date: 2002/08/03 Sat PM 05:29:01 CDT > To: shydrager > Subject: MSA - pain med > > Hi: Yesterday I sent an email asking which meds patients are taking for > pain & I haven't received any answers. I'm not sure if my email was > received by the group or not. Bob is starting to have pain from his > shoulder to his foot. I would appreciate knowing which meds patients are > taking. Thanks..Regards, jerrie > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Jerrie, I see you posted on Saturday and today is Monday. Yesterday, I didn't feel good enough to be on the PC. My #1 symptom that I find bothersome is pain. The only thing that has worked for me, (and yes, we have even tried a few of the drugs that are contraindicated) is Neurontin. It takes the edge off. It doesn't completely relieve the pain but it makes it workable most of the time. Of course, everyone is different so please speak with the MDS about which medication might be right for your husband. What works for one might not work for another as all of us have different symptoms and react to medications differently. Hugs, Deborah ------------------------------------------------------------------------ Hi: Yesterday I sent an email asking which meds patients are taking for pain & I haven't received any answers. I'm not sure if my email was received by the group or not. Bob is starting to have pain from his shoulder to his foot. I would appreciate knowing which meds patients are taking. Thanks..Regards, jerrie _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
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