Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 L. Good to see you post! I thought you were a newbie because I hadn't seen one of your posts for awhile. It is just amazing how this group pulls together to help others! Thanks for posting and giving us the great information! It makes me wonder if that isn't my problem at times. Lots of Love Glenda headaches and RP Rita, Hi, I'm Sue L. from Boston and have some experience with headaches, numbness and nerve pain with RP. I kept getting headaches, either at the back of my head or at the temples with lots of numbness in my fingers (especially on the sides of the fingers), toes and arms. I would get a buzzing pain through my shoulders and arms, especially at night when I tried to sleep. I even had trouble moving my hands or walking, it got so bad. I ended up seeing a neurologist, had an MRI and my problems seem to come from inflammation of my neck. All the nerves to your body have to go through your neck -- this is a pretty small space. I seem to have RP in my spine and when I flare up, I get these symptoms too. If the numbness or nerve pains seems to get better or worse if you move your neck forward or back, this might be a clue. Some people get this anyway without RP, just from wear and tear or a naturally tight spinal space.I went through physical therapy for my neck and am now careful to do stretches and keep my neck strong and watch what position I sleep in. It hasn't gone away but the headaches are mostly gone. I take a low dose of elavil (generic name, amitripyline) every night at bedtime and this helps a lot. I also take voltaren (a NSAID) for my RP and if you're not taking an anti-inflammatory drug, this may help. Now that I know what my symptoms mean, it's not so scary. I was pretty miserable until the diagnosis. Headaches, nerve pain and numbness can also be a sign of vasculitis (inflammation of the blood vessels) which is a more serious thing. You should definitely try to find out the source of your problem.Good luck to you, SUE L. ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.264 / Virus Database: 136 - Release Date: 7/2/2001 Quote Link to comment Share on other sites More sharing options...
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