Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 I just started a major flare about two days ago, think it may have started from extra stress. my right ear is killing me something aweful to the point where a simple phone conversation is very differcult. anyone else flaring at this time?? thank god for the pred. i already started to take it. but it does take a few days to kick in.in the mean time i just have to deal with this fire like pain as you all know.i am having surgery next monday the 23rd on an abdominal tear maybe that has something to do with it, will be out of work for 2 weeks, soo i will be posting alot....hope every one is doing well........Chuck Heath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 Hi Chuck, Hope this nasty flare settles down real fast for you. You will be in my prayers and hope you have a speedy recovery from your surgery. Don't let all this get to you. Easy for me to say, huh? All of us with RP are probably very vulnerable to stress, if not from the disease, just from the day to day problems that we have dealing with it. Take care. Marilyn just started a major flare about two days ago, think it may have > started from extra stress. my right ear is killing me something > aweful to the point where a simple phone conversation is very > differcult. anyone else flaring at this time?? thank god for the > pred. i already started to take it. but it does take a few days to > kick in.in the mean time i just have to deal with this fire like pain > as you all know.i am having surgery next monday the 23rd on an > abdominal tear maybe that has something to do with it, will be out of > work for 2 weeks, soo i will be posting alot....hope every one is > doing well........Chuck Heath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 --- cistn@... wrote: > I just started a major flare about two days ago, > think it may have > started from extra stress. my right ear is killing > me something > aweful to the point where a simple phone > conversation is very > differcult. anyone else flaring at this time?? thank > god for the > pred. i already started to take it. but it does take > a few days to > kick in.in the mean time i just have to deal with > this fire like pain > as you all know.i am having surgery next monday the > 23rd on an > abdominal tear maybe that has something to do with > it, will be out of > work for 2 weeks, soo i will be posting alot....hope > every one is > doing well........Chuck Heath > > Yes, Chuck, I too am flaring although not too badly. I am sure mine is because I tried to get off the last 5mg of pred too quickly! I am trying to stay at 4mg, but today I am short of breath & wheezing, my voice is hoarse, and my left ear is red and burning (although not nearly as painful as it can be) and all my joints seem to be hurting! I am aiming for a quiet day today. I take my metho tomorrow so it should clear the rp symptoms up, and hopefully the extra folic acid (now on 2mg per day) will prevent the nausea!) Do hope that your flare clears up before you undergo surgery - and that it goes well for you. Love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 Chuck, Sorry to hear your ears are flaring. Good luck on your surgery on Monday. Hugs, Sandy > I just started a major flare about two days ago, think it may have > started from extra stress. my right ear is killing me something > aweful to the point where a simple phone conversation is very > differcult. anyone else flaring at this time?? thank god for the > pred. i already started to take it. but it does take a few days to > kick in.in the mean time i just have to deal with this fire like pain > as you all know.i am having surgery next monday the 23rd on an > abdominal tear maybe that has something to do with it, will be out of > work for 2 weeks, soo i will be posting alot....hope every one is > doing well........Chuck Heath > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 Chuck Sorry to hear you are flaring. Make sure your dr. are careful with you! The pred. is some nasty stuff when you have a surgery. Hope all goes well and you give us all a bad time while you are off! We love it!) Lots of Love Glenda re:flaring also!! I just started a major flare about two days ago, think it may have started from extra stress. my right ear is killing me something aweful to the point where a simple phone conversation is very differcult. anyone else flaring at this time?? thank god for the pred. i already started to take it. but it does take a few days to kick in.in the mean time i just have to deal with this fire like pain as you all know.i am having surgery next monday the 23rd on an abdominal tear maybe that has something to do with it, will be out of work for 2 weeks, soo i will be posting alot....hope every one is doing well........Chuck HeathDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 Chuck so sorry to hear about your flare. How much pred are you on now.? I'm sorry to hear that you have to have surgery on top of everything else. I am putting off my foot surgery. Want to get down some more on the pred. Healing process will be faster I think. Please know that you are in my thoughts and prayers and hope that ear is out of pain soon.... We can all feel that pain with you. Take Care Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 Liz, so sorry to hear that you are flaring... Good that you are down so low on the pred though. Hopefully you will be off completely soon. Don't you just hate the long process of getting down. LOL My thoughts and prayers are with you.. Please take care. Are you in BH now or back in Saudi? I can't keep up with you girl. LOL Whereever you are I hope you are enjoying yourself and not to busy or stressed. How are the dogs? Bet they keep you busy. Hope you get some rest and have a nice rest of the weekend. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 > Chuck so sorry to hear about your flare. How much pred are you on now.? > I'm sorry to hear that you have to have surgery on top of everything else. > I am putting off my foot surgery. Want to get down some more on the pred. > Healing process will be faster I think. > > Please know that you are in my thoughts and prayers and hope that ear is out > of pain soon.... We can all feel that pain with you. > > Take Care > , currently i take 40 mlg or pred. twice a day for 2 days then i thrickle down, 30 for 2 days then 20 for 2 days and so on. this usually works. i hope they won't postpone the surgery because of this because it is needed and i already informed work that i would be out. i guess i should just take it one day at a time.......chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 In a message dated 7/15/01 5:02:30 AM Pacific Daylight Time, cistn@... writes: << urrently i take 40 mlg or pred. twice a day for 2 days then i thrickle down, 30 for 2 days then 20 for 2 days and so on. this usually works. i hope they won't postpone the surgery because of this because it is needed and i already informed work that i would be out. i guess i should just take it one day at a time.......chuck >> Chuck, one day at a time is Good!! LOL Just be sure that your drs are aware of ALL the meds you are on and how long you have been on them. They will know the best decision for you. Hope your flare is better today. Have a wonderful Sunday. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 --- RCColloran@... wrote: > Liz, so sorry to hear that you are flaring... Good > that you are down so low > on the pred though. Hopefully you will be off > completely soon. Don't you > just hate the long process of getting down. LOL My > thoughts and prayers are > with you.. > > Please take care. Are you in BH now or back in > Saudi? I can't keep up with > you girl. LOL Whereever you are I hope you are > enjoying yourself and not to > busy or stressed. How are the dogs? Bet they keep > you busy. > > Hope you get some rest and have a nice rest of the > weekend. > > hugs > > Yes, we are here in California - I already feel better today than I did yesterday! Yes the dogs are keeping me busy - yesterday I had to delegate their walks to someone else! They are very sweet, though, and play with each other a lot, which is good. The whole situation here is better than last time, we have a new couple who are both very nice AND efficient, and the whole atmosphere is better. The only stress I am under is from the flaring!!! I will follow the docs advice and stick on 4mg until the plaquenil kicks in. Ican always pop a clebrex if I get short term desperate!! Hope you are well and taking care of yourself. I am so looking forward to September and praying nothing will intervene... love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2001 Report Share Posted July 18, 2001 as you all know.i am having surgery next monday the 23rd on an abdominal tear maybe that has something to do with it, will be out of work for 2 weeks, soo i will be posting alot....hope every one is doing well........Chuck Heath Hi Chuck, just the stress of the surgery can cause a flare. Know your in our prayers and we are here if you need us. Take care, Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 Dear Chuck, Hello, I'm a new member and read your message that you where having surgery. I said a prayer for you and I do hope you make it though the surgery and the recovery well. I pray the trauma of surgery won't cause you to flare again. All my best wishes and get well soon thoughts are with you, Ellen Quote Link to comment Share on other sites More sharing options...
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