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Re: Kentucky Walk for MSA

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Just going the the archives and came across this. Has this been (or

will it be) organized again in 2002/2003? These sorts of grass

roots fundraisers are how charitable organizations get media

exposure. Is anyone else thinking about setting up a fundraiser in

future?

Hugs,

Pam

> > Did this fundraiser take place as planned on April 21st? How

much

> was

> > raised? Was there a good turnout?

> >

> > Regards,

> > Pam Pam the walk did take place and it was a great

> success! There was approximatly one hundred or more people there

and

> we had two thousand seven hundred dollars donated by that day. More

> has come in since. Judy and Bob of our support group did a

> wonderful job getting it all together. The group also helped by

> puttng out fliers and talking to churches and groups we belong to.

> The founder of NDRF Dan came and was very pleased.At this

point

> we would like to make this an annual drive. Getting people involved

> and aware of this disease working on a cure is our strength to push

> on. If all groups did a fund raiser each year at the same time

pehaps

> some publicity would come our way and make more aware of the

disease

> as well as raise money for research/cure. We donated our money to

NDRF

> (National Dysautonomia Research Foundation). This Saturday we will

be

> meeting at our home having a cookout. The walk will be

discussed.Judy

> and I will be on video tape from Fox 41 in the morning where

> we had few minutes to tell of walk and MSA. Things are really going

> well with our group. We enjoy being together and like to get things

> done. Harriett Gossman

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