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Chiari type I malformation, Family Guide to Neuromedicine

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Hi Folks,

I was intrigued by " Tenacity's " dialogue on the PET scan and this Chiari

syndrome. I found a website that is very informative. I have emailed my

internist with this info. I doubt Jeff has this, as he has had numerous

MRI's of the brain (one every 6 months or so for the past 2 1/2 yrs) and

you would THINK the'd pick something like that up! But I thought I'd share

this infor about Chiari

Regards,

M.

http://www.muhealth.org/~neuromedicine/chiari.shtml

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,

I am not sure a MRI of the brain shows a Chiari as the cyst is actually in the

spinal column rather than the brain. My daughter has a Chiari cyst and was told

not to have it operated on as it is not giving her a lot of trouble. Her's

causes numbness of her left hand every so often. She has seen 3 experts on

Chiari and gotten three different opinions, but two of the three said they would

not advise the operation as the results might be worst than what she presently

has.

Take care, Bill Werre

==========================

>

>

> Date: 2002/08/12 Mon PM 12:00:31 CDT

> To: " shydrager shydrager >

> Subject: Chiari type I malformation, Family Guide to Neuromedicine

>

> Hi Folks,

>

> I was intrigued by " Tenacity's " dialogue on the PET scan and this Chiari

> syndrome. I found a website that is very informative. I have emailed my

> internist with this info. I doubt Jeff has this, as he has had numerous

> MRI's of the brain (one every 6 months or so for the past 2 1/2 yrs) and

> you would THINK the'd pick something like that up! But I thought I'd share

> this infor about Chiari

>

> Regards,

>

> M.

>

>

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