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How ARE you??? I sure do miss you.

Hi :-)

I'm just fine, thanks.......and yes, I miss this wonderful caring group (including you!) too. I wish I had more time to converse with everyone......oh well, at least we all know we're thinking about each and everyone, right?

I am still doing great on the Biaxin.

Fantastic!!! (don't forget to take your acidophilus/pro-biotics and drink lots of water and also to eat a healthy diet......sorry, I couldn't help but take the opportunity to "nudge" :-)

Has been 2 months now. I do have joint pain now, but the muscles have settled down. Have had only a slight sign of a flare and it went away within a day. I take my epsom salt and Hydogen peroxide baths and they help.

I think you'll notice that the pains and flares will lessen in both intensity and in their frequency as you stick with the Biaxin. I have spent 2 years on metho and imuran and now that I am on the biaxin, I have never felt better. How can I ever thank you ??? I keep my fingers, toes and eyes crossed daily that this continues. LOL Yes, I do look funny, but I feel great.

Oh , you've already thanked me......by just getting better! It's the doctors who are willing to look at other treatment options who should be thanked. Not many years ago there were only a small handful of doctors (and Dr. Trentham is one of them) willing to prescribe antibiotics for rheumatic diseases.......now, because of recent studies published in the medical journals AND because of patients' requests, we have more doctors who are finding that this treatment works. One of these days, and with the Foundation's help, we'll be able to officially include RP in studies with the antibiotic treatment. It might mean that we'll need the help of Drs. Trentham, Nicolson and others.If it would only help my feet, I'd be in great shape. The fibro seems to be behaving itself too. Only flares a few times a week. I know I have a long way to go, I do have my bad days but they are getting fewer.

I wish it would help your feet, too! I think it will help the fibro a lot, though.......keep being patient, OK? Without all of your nudges and encouragement, I would have never tried it. Thank you from the bottom of my heart.

I'm just happy to share with you as others have shared with me. You've really done a great job of hanging in there and now things are starting to come together, whooohoooooo!!!Let me know how your summer is going... Having lots of fun???? How is the family?

We're fine.....always the day-to-day occurrences, but as usual there's not enough time for everything!! I wonder how we could create more time.......by sleeping less......no way!!I will post you later and try to catch up.

Me, too! In the meantime, I hope you have a great day!

lots of hugs,

Connie

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