Scared s*less (Read, you'll understand)

[Guest guest]

DEb:

I can see why you are scared, but one thing you have now that you didn't a few weeks ago , is a better understanding of what is wrong with you. You didn't have that before the F-lopa pet. That will be of help for your doctors.

Our prayers are with you., you know that and we're a group of over 600. You know we're bending God's ear with our prayers, how couldn't he not hear us. Have a safe trip and we'll be waiting to hear the good new's from you soon.

Hugs & prayers

Vera

From: "Deborah Setzer" <tenacitywins@h...>

Date: Fri Aug 16, 2002 1:06 pm

Subject: Scared s*less (Read, you'll understand)

Folks,

I'm scared to death. Things are moving at such a fast pace, I can't catch

my breath. My doc here in Charlotte, Dr. Levesque in L.A. and Dr. Milhorat

in Long Island and the neurologists who did the PET scans all seemed to find

the time to get their heads together at some point today. They have deemed

me critical and we have to leave for NYC tomorrow (Saturday). I get checked

into the hospital on Monday and am scheduled for surgery Wednesday. My

doctor here in Charlotte handed my entire medical file and said there

is no time for photocopies.

I'll try to add what little bit of humor that I can find... they didn't

even give me time to become an expert on this disorder before all of this.

It normally takes 3 months to get in to see the surgeon in NY and it takes

about a month to get all of the tests needed and results. It then takes

another month to be scheduled for surgery, after you see the doctor. In the

best case scenario, it takes 4 months to get to where I got in one day. I

don't know what their main fear is but it can't be good if this is what is

happening. Glad that this time I do have competent doctors communicating

about my case.

Don't know when I'll be back online. I'll try to keep the laptop with me

in the hospital. They said that I will be there for 2 - 3 weeks. Deep

breath...lots of prayer please. Usually I have the time to work up the

courage to go through with things, this time, there is no time and I am in

tears. Faith that God is watching out for me is all I have to hold on to

right now.

Hugs,

Deborah aka Tenacity

[Guest guest]

deborah

where better to place your faith than in the omnipotent god. things will work out according to HIS plan.

fear not, for HE is with you.............

bvpond

peace

[Guest guest]

Dear Deborah: Our prayers are with you. God Bless you. Things will go well with all online thinking good thoughts and wishing you the best.

Pat from Framingham MA

[Guest guest]

Deborah,

I don't blame you for being scared and overwhelmed. Everything is happening

so fast.

I guess that is good in that you don't have enough time to think about it.

Rest assured that Chrissie and I will have you in our prayers.

Good luck and have keep us informed if he can.

Love and hugs,

Jean & Chrissie

[Guest guest]

Hi Tenacity.

Hope you get this before you leave, but if not - no biggie.

Haven't read any other posts here yet tonight - so have no idea if

you had a chance to respond to last night's posts.

Anyway, you answered one of my questions here. Dr. Milhorat was one

of the experts (actually - noted as the absolute best) with regard to

Chiari. That is from someone who has been immersed in this stuff for

5 years. Hopefully that gives you additional comfort and confidence

in your docs :-)

When stuff falls together for me like it has for you... I usually

don't question. I just go with the flow, and count my blessings.

Things went similarly for me when I went to Mayo. Should have taken

a long time to get in there - but didn't (just took a long time to

get out of there :-)

Please keep us posted somehow - and I'm sure there will be an immense

number of prayers going up for you and yours!

> Folks,

>

> I'm scared to death. Things are moving at such a fast pace, I

can't catch

> my breath. My doc here in Charlotte, Dr. Levesque in L.A. and Dr.

Milhorat

> in Long Island and the neurologists who did the PET scans all

seemed to find

> the time to get their heads together at some point today. They have

deemed

> me critical and we have to leave for NYC tomorrow (Saturday). I

get checked

> into the hospital on Monday and am scheduled for surgery

Wednesday. My

> doctor here in Charlotte handed my entire medical file and

said there

> is no time for photocopies.

>

> I'll try to add what little bit of humor that I can find... they

didn't

> even give me time to become an expert on this disorder before all

of this.

>

> It normally takes 3 months to get in to see the surgeon in NY and

it takes

> about a month to get all of the tests needed and results. It then

takes

> another month to be scheduled for surgery, after you see the

doctor. In the

> best case scenario, it takes 4 months to get to where I got in one

day. I

> don't know what their main fear is but it can't be good if this is

what is

> happening. Glad that this time I do have competent doctors

communicating

> about my case.

>

> Don't know when I'll be back online. I'll try to keep the laptop

with me

> in the hospital. They said that I will be there for 2 - 3 weeks.

Deep

> breath...lots of prayer please. Usually I have the time to work up

the

> courage to go through with things, this time, there is no time and

I am in

> tears. Faith that God is watching out for me is all I have to hold

on to

> right now.

>

> Hugs,

> Deborah aka Tenacity

>

>

>

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