Re: Doc in Washington>

[Guest guest]

,

You really are good with the alphabet soup! What does all those

letters mean after your name? You must be very smart to be able to

keep up with all those letters!

Belinda

> Hi. Can't even remember where the original post came from - after

> all the dickering between Vera and Bill :-)

>

> But... anyway... I searched around, and did come up with one

doc.

> This one came from the Arnold Chiari Malformation physician

referral

> site. I realize the disorders are not the same, or necessarily

> related, but perhaps it will at least be a good place to start. At

> this point - it's at least " A " place to start :-)

>

> I tried to email the person who actually made the recommendation on

> the ACM site regarding this physician, but the email was returned

to

> me undelivered. So, take it for what it's worth - and ACM makes no

> group claims regarding the skills of docs on their website - but -

as

> I said - at least it is SOMEPLACE to start. And if you don't want

to

> travel far - at least at first...

>

> Dr. G. Ellenbogen

> Neurological Surgery

> Children's Hospital and Regional Medical Center

> 4800 Snad Point Way N.E.

> P.O. Box 5371

> Seattle 98105-0371

> (ph)

>

>

> By the way Vera, can't help but get in another " jab " here... What

> kind of a doc works at a place called " Knife " something or other?!

> Had to laugh when I saw that! (That was where one of the docs you

> found officed from - wasn't it? Or is my memory just proving it's

> fallibility? :-)

>

> While I'm at it, here is one from Oregon who actually had 2 people

> willing to recommend him/her (Kim is a pretty generic name from

what

> I've found).

>

> Dr. Kim J. Burchiel

> OHSU

> Department of Neurosurgery

> Portland, Oregon

>

> There was one more from the Portland area:

>

> Dr. ny Delashaw

> Neurosurgeon

> OHSU

> 3181 SW Sam Park Road, L472

> Portland, Oregon 97201-3098

>

>

> No names of people who recommended him (guess ny could be a

girl

> too - ? Life is so confusing nowadays :-) but at least there is a

> phone number, and appears last one offices from similar location as

> former.

>

> Perhaps you're closer to another state. I can't remember where you

> said you were from - what part of WA... But, if you go to the ACM

> site, you can find other docs, and find these as well - and even

> click on the people who recommended them (and see if you can find

any

> of them with email addresses that are still valid - most/all of

them

> I've written have been returned).

>

> ACM website - physician referral pages part:

> http://www.pressenter.com/~wacma/usdocs2.htm#Wisconsin

>

> Don't be deceived by the " Wisconsin " in the name... it is actually

a

> list of all states. There is another if Canada is actually closer

to

> you: http://www.pressenter.com/~wacma/country.htm

>

>

>

> And, lest anyone think I'm just surfing ACM due to Tenacity's

> experiences of late - nope - I've been on the ACM path a while. In

> fact, trying to pin down which doc(s) to send my MRI pics to. (And

> I've delayed that process due to info received from , to

assess

> all information I can get.)

>

> Had theories validated recently, when someone from Canada looked at

> my pics and said indeed I do appear to have Chiari. Now, whether

> that will help with anything - that remains to be seen. And, I

know

> of people who had ACM - but also had MSA - and still had the MSA

> after ACM surgery.

>

> Is this what is meant by Alphabet soup? :-)

>

> I'm used to it, my name is professionally followed by: M.S.,

> B.C.B.A., L.B.P. and when my wife took over as my secretary, I had

> to write out a page of over 40 abbreviations we use daily - but no

> one outside my profession would know them. :-)

>

> Pablito

[Guest guest]

HI AGAIN BELINDA.

YOU WERE BUSY THIS MORNING - WEREN'T YOU? :-)

LET'S SEE...

THOSE INITIALS...

LET'S START WITH THE M.S.

LET'S SEE HOW SMART YOU ARE...

FIRST THERE IS B.S.

WE CALL IT A BACHELOR OF SCIENCE - BUT YOU KNOW WHAT B.S. REALLY

STANDS FOR - RIGHT?

OK.

THEN TAKE THE M.S. - THAT STANDS FOR " MORE __ __ __ __ "

MY OLD BOSS USED TO SAY THAT PH.D. STOOD FOR " PILED HIGHER AND

DEEPER. " :-)

SEE - THERE ARE SOME IN MY FIELD WHO ENJOY EVOKING LAUGHTER.

MY FIELD? WELL... NOW WE'LL REALLY TEST EVERYONE - AND SEE IF THEY

CLAM UP :-)

MY FIELD IS PSYCHOLOGY.

MY MASTER'S IS IN COUNSELING/PRE-CLINICAL PSYCHOLOGY.

I'VE BEEN WORKING IN MY FIELD FOR 15 YEARS. YOU'D THINK AFTER ALL

THIS " PRACTICING " I COULD GET ON WITH DOING SOME " REAL WORK " -

WOULDN'T YA?! :-)

ANYWAY, I SOMEHOW ENDED UP SPECIALIZING IN WORKING WITH THE MENTALLY

RETARDED. I ALSO WORK WITH CHILDREN - AND DO SOME " NORMAL " ADULT

WORK, BUT MOST OF THAT IS IN THE FORM OF ASSESSMENTS.

THUS, THE OTHER LETTERS AFTER MY NAME:

BCBA - STANDS FOR " BOARD CERTIFIED BEHAVIOR ANALYST " . THAT ONE TOOK

A LOT OF STUDY - ON TOP OF THE MASTERS. IT IS AN EXCLUSIVE TITLE.

THERE ARE ONLY A HANDFUL (LITERALLY) IN THIS STATE WHO HAVE IT. IT'S

A NATIONAL CERTIFICATION - RECOGNIZED IN ALL 50 STATES. THAT IS WHY

I AM SUPPOSE TO GO TO FLORIDA NEXT MONTH - TO MAKE SURE I RETAIN THAT

CERTIFICATION - BY TAKING CEU COURSEWORK.

LBP - STANDS FOR " LICENSED BEHAVIORAL PRACTITIONER " . THIS IS THE NEW

LICENSE HERE IN THE STATE OF OKLAHOMA WHICH ENABLES MASTER'S LEVEL

PRACTITIONERS TO HAVE THEIR OWN PRACTICE. I WAS JUST GETTING

UNDERWAY WITH THIS LAST FALL - WHEN MY BODY BEGAN TO MORE RAPIDLY

FALL APART (IT HAD BEEN DECLINING FOR AT LEAST A YEAR BEFORE THAT -

AND THEY SUSPECT I HAD MY FIRST TIA 2 YEARS BEFORE THAT).

ANYWAY, LOTS OF LETTERS - WHICH DON'T MEAN A HILL OF BEANS TO MANY

PEOPLE. WHAT MATTERS MOST TO THOSE I SERVE OUT HERE - IS HOW I SERVE

THEM. AND... MUST DO PRETTY GOOD AT IT - EVEN IN THE SEVERELY

LIMITED CAPACITY THAT I PERFORM MY TASKS NOW - BECAUSE EVERYONE SEEMS

TO WANT ME TO REMAIN ON THEIR CLIENT'S CASELOADS - EXCEPT THAT ONE

CASE MANAGER WHO WANTS THOSE 3 REPORTS TOMORROW MORNING :-) NAW -

SHE'S JUST A STICKLER FOR DETAILS - AND SOME OF THOSE GOVERNMENT

TYPES HAVE TO HAVE THEIR PAPERWORK OR THEY GET A BIT EDGY.

CATCH YA LATER BELINDA - AND I'M NO SMARTER THAN ANYONE ELSE (IN

FACT, MY IQ TEST I TOOK IN GRADUATE SCHOOL PROVED THAT - I JUST WORK

HARDER THAN MOST AT DOING WHAT I DO - A LOT HARDER - AND THOSE WHO

ARE " HEALTHY " HAVE NO IDEA HOW HARD I'M WORKING NOW JUST TO SURVIVE :-

) DO THEY?

BESIDES, IF I REALLY WERE THAT MUCH SMARTER - SURELY I WOULD HAVE

PICKED A PROFESSION WHICH PAYS BETTER - LIKE PSYCHIATRY :-)

I SURE CAN'T COMPLAIN THOUGH - BECAUSE I'M STILL ABLE TO WORK - AND

GIVEN MY PITIFUL PERFORMANCE LEVELS NOW - THAT'S NOTHING SHORT OF A

MIRACLE - AND A TRUE BLESSING, AS I DON'T WANT TO QUIT WORKING - AND

DON'T EVER WANT TO RETIRE.

PAUL

> > Hi. Can't even remember where the original post came from -

after

> > all the dickering between Vera and Bill :-)

> >

> > But... anyway... I searched around, and did come up with one

> doc.

> > This one came from the Arnold Chiari Malformation physician

> referral

> > site. I realize the disorders are not the same, or necessarily

> > related, but perhaps it will at least be a good place to start.

At

> > this point - it's at least " A " place to start :-)

> >

> > I tried to email the person who actually made the recommendation

on

> > the ACM site regarding this physician, but the email was returned

> to

> > me undelivered. So, take it for what it's worth - and ACM makes

no

> > group claims regarding the skills of docs on their website - but -

> as

> > I said - at least it is SOMEPLACE to start. And if you don't

want

> to

> > travel far - at least at first...

> >

> > Dr. G. Ellenbogen

> > Neurological Surgery

> > Children's Hospital and Regional Medical Center

> > 4800 Snad Point Way N.E.

> > P.O. Box 5371

> > Seattle 98105-0371

> > (ph)

> >

> >

> > By the way Vera, can't help but get in another " jab " here...

What

> > kind of a doc works at a place called " Knife " something or

other?!

> > Had to laugh when I saw that! (That was where one of the docs

you

> > found officed from - wasn't it? Or is my memory just proving

it's

> > fallibility? :-)

> >

> > While I'm at it, here is one from Oregon who actually had 2

people

> > willing to recommend him/her (Kim is a pretty generic name from

> what

> > I've found).

> >

> > Dr. Kim J. Burchiel

> > OHSU

> > Department of Neurosurgery

> > Portland, Oregon

> >

> > There was one more from the Portland area:

> >

> > Dr. ny Delashaw

> > Neurosurgeon

> > OHSU

> > 3181 SW Sam Park Road, L472

> > Portland, Oregon 97201-3098

> >

> >

> > No names of people who recommended him (guess ny could be a

> girl

> > too - ? Life is so confusing nowadays :-) but at least there is

a

> > phone number, and appears last one offices from similar location

as

> > former.

> >

> > Perhaps you're closer to another state. I can't remember where

you

> > said you were from - what part of WA... But, if you go to the

ACM

> > site, you can find other docs, and find these as well - and even

> > click on the people who recommended them (and see if you can find

> any

> > of them with email addresses that are still valid - most/all of

> them

> > I've written have been returned).

> >

> > ACM website - physician referral pages part:

> > http://www.pressenter.com/~wacma/usdocs2.htm#Wisconsin

> >

> > Don't be deceived by the " Wisconsin " in the name... it is

actually

> a

> > list of all states. There is another if Canada is actually

closer

> to

> > you: http://www.pressenter.com/~wacma/country.htm

> >

> >

> >

> > And, lest anyone think I'm just surfing ACM due to Tenacity's

> > experiences of late - nope - I've been on the ACM path a while.

In

> > fact, trying to pin down which doc(s) to send my MRI pics to.

(And

> > I've delayed that process due to info received from , to

> assess

> > all information I can get.)

> >

> > Had theories validated recently, when someone from Canada looked

at

> > my pics and said indeed I do appear to have Chiari. Now, whether

> > that will help with anything - that remains to be seen. And, I

> know

> > of people who had ACM - but also had MSA - and still had the MSA

> > after ACM surgery.

> >

> > Is this what is meant by Alphabet soup? :-)

> >

> > I'm used to it, my name is professionally followed by: M.S.,

> > B.C.B.A., L.B.P. and when my wife took over as my secretary, I

had

> > to write out a page of over 40 abbreviations we use daily - but

no

> > one outside my profession would know them. :-)

> >

> > Pablito

[Guest guest]

,

That is wonderful that you do a job that you enjoy doing. I know that

you worked hard for that alphabet and you should be proud of it,

every single letter! I was a college student before I couldn't do it

anymore. I was majoring in Computer Information Systems. I loved it.

If and when I get well I am going to go back and get my degree. I

think it was wonderful that I went back at 42 yrs old. I was even a

4.0 student but I worked awfully hard for that also. I have a hard

time with my mind anymore. I get these real bad pains in my head and

it feels like I just shut down totally. Sometimes I get real bad

headaches and then afterwards my health gets worse and doesn't get

better. I go and get tested for infections and get told I don't have

one. I don't know what is going on. Today the neurologist told me

they sent my brain MRI's to someone at Emory University in Atlanta

who looks at them all day and has the most experience in reading

them. They said I had, had brain surgery in the back of my head. I

have never had brain surgery. I even asked my parents and they said I

haven't. I asked the doctor what else it could be and he didn't know.

He said he hasn't got my MRI's back yet from Emory but they were

adamant that I had had brain surgery. He said he probably wouldn't

know what it is if he does get them back and looked at them.

Therefore, more tests. I failed the EMG and now he wants to do my

tongue. So I am looking at the next 2 weeks getting

neuropsychological tests done, then EMG, and then something else. I

can't remember now. I feel like a guinea pig but what else is there

to do.

Love and hugs,

Belinda

> > > Hi. Can't even remember where the original post came from -

> after

> > > all the dickering between Vera and Bill :-)

> > >

> > > But... anyway... I searched around, and did come up with one

> > doc.

> > > This one came from the Arnold Chiari Malformation physician

> > referral

> > > site. I realize the disorders are not the same, or necessarily

> > > related, but perhaps it will at least be a good place to

start.

> At

> > > this point - it's at least " A " place to start :-)

> > >

> > > I tried to email the person who actually made the

recommendation

> on

> > > the ACM site regarding this physician, but the email was

returned

> > to

> > > me undelivered. So, take it for what it's worth - and ACM

makes

> no

> > > group claims regarding the skills of docs on their website -

but -

>

> > as

> > > I said - at least it is SOMEPLACE to start. And if you don't

> want

> > to

> > > travel far - at least at first...

> > >

> > > Dr. G. Ellenbogen

> > > Neurological Surgery

> > > Children's Hospital and Regional Medical Center

> > > 4800 Snad Point Way N.E.

> > > P.O. Box 5371

> > > Seattle 98105-0371

> > > (ph)

> > >

> > >

> > > By the way Vera, can't help but get in another " jab " here...

> What

> > > kind of a doc works at a place called " Knife " something or

> other?!

> > > Had to laugh when I saw that! (That was where one of the docs

> you

> > > found officed from - wasn't it? Or is my memory just proving

> it's

> > > fallibility? :-)

> > >

> > > While I'm at it, here is one from Oregon who actually had 2

> people

> > > willing to recommend him/her (Kim is a pretty generic name from

> > what

> > > I've found).

> > >

> > > Dr. Kim J. Burchiel

> > > OHSU

> > > Department of Neurosurgery

> > > Portland, Oregon

> > >

> > > There was one more from the Portland area:

> > >

> > > Dr. ny Delashaw

> > > Neurosurgeon

> > > OHSU

> > > 3181 SW Sam Park Road, L472

> > > Portland, Oregon 97201-3098

> > >

> > >

> > > No names of people who recommended him (guess ny could be a

> > girl

> > > too - ? Life is so confusing nowadays :-) but at least there

is

> a

> > > phone number, and appears last one offices from similar

location

> as

> > > former.

> > >

> > > Perhaps you're closer to another state. I can't remember where

> you

> > > said you were from - what part of WA... But, if you go to the

> ACM

> > > site, you can find other docs, and find these as well - and

even

> > > click on the people who recommended them (and see if you can

find

> > any

> > > of them with email addresses that are still valid - most/all of

> > them

> > > I've written have been returned).

> > >

> > > ACM website - physician referral pages part:

> > > http://www.pressenter.com/~wacma/usdocs2.htm#Wisconsin

> > >

> > > Don't be deceived by the " Wisconsin " in the name... it is

> actually

> > a

> > > list of all states. There is another if Canada is actually

> closer

> > to

> > > you: http://www.pressenter.com/~wacma/country.htm

> > >

> > >

> > >

> > > And, lest anyone think I'm just surfing ACM due to Tenacity's

> > > experiences of late - nope - I've been on the ACM path a

while.

> In

> > > fact, trying to pin down which doc(s) to send my MRI pics to.

> (And

> > > I've delayed that process due to info received from , to

> > assess

> > > all information I can get.)

> > >

> > > Had theories validated recently, when someone from Canada

looked

> at

> > > my pics and said indeed I do appear to have Chiari. Now,

whether

> > > that will help with anything - that remains to be seen. And, I

> > know

> > > of people who had ACM - but also had MSA - and still had the

MSA

> > > after ACM surgery.

> > >

> > > Is this what is meant by Alphabet soup? :-)

> > >

> > > I'm used to it, my name is professionally followed by: M.S.,

> > > B.C.B.A., L.B.P. and when my wife took over as my secretary, I

> had

> > > to write out a page of over 40 abbreviations we use daily - but

> no

> > > one outside my profession would know them. :-)

> > >

> > > Pablito