Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 and Chuck - I know a couple of people with lipomas, but they do not have rp. One of them has been prescribed doxycycline to see if that will reduce them. I think they are only a problem if they are pressing on something. I believe they are quite common. Hope yours both improve after treatment. Good luck with the surgery Chuck, and the shots . Love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2001 Report Share Posted July 23, 2001 Hi Folks, Lucy here, I had two big (size of golf balls) lipomas removed from both sides of my back, just below my waistline. I was told that I could have more in my leg, but they never gave me any problem. Those in my back hurt at times when I would lean back in a chair or against something. There is not much that I have not had and most of the things seem to have something to do with RP, so I will let RP have the credit for it all! Love and Prayers, Lucy lipomas > and Chuck - I know a couple of people with > lipomas, but they do not have rp. One of them has > been prescribed doxycycline to see if that will reduce > them. I think they are only a problem if they are > pressing on something. I believe they are quite > common. Hope yours both improve after treatment. Good > luck with the surgery Chuck, and the shots . > Love Liz > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Dear Lucy, I'm new to the group and have no idea what lipomas are. Could you let me know. Thanks, Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Ellen, lipomas are fatty tumors.... I just found out I have them in both feet. They are wrapped around the nerves and muscles.... Chuck just had abdominal surgery to remove them from his abdomin. We were wondering if there was any connection with these and RP. If they are in my feet, I was wondering if they were any where else. LOL Guess time will tell. Sorry for writing a book. So glad that you and are part of the group... Can't wait to know you better hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Hi, I'm wondering if I don't have have them on the sides of my legs right above the knees. They look bigger and hard feeling. How does a doctor diagnose them? Got really tingley feet today...weird stuff. Love, Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Thanks for the info on lipomas. I never heard of it. I too look forward to getting to know you better too. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 In a message dated 7/25/01 2:50:10 PM Pacific Daylight Time, grandm4@... writes: << i, I'm wondering if I don't have have them on the sides of my legs right above the knees. They look bigger and hard feeling. How does a doctor diagnose them? Got really tingley feet today...weird stuff. Love, Sue Marth >> Sue, mine are in my feet and so I cant see them... They are under all the muscles and nerves... Mine was dx with an MRI.. Don't know how Chuck found his... Chuck... if you are reading this.....let us know.. And let us know how you are doing after the surgery. Sue, I would have it checked.... I have tingley feet and hands....My tumors are causing tarsel tunnel... (same as carpel tunnel only in your feet). Please check it out and find out what it is..... Lucy says she has them too... Lucy....where are yours again...LOL I forgot as usual. Good to hear from you Sue...Hope you are doing okay... Post more girlfriend....we miss you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Thanks , yea next week I need to go see the pcp and need the yearly gyn thing done. Like I said before I'm going to walk in there nude and have a total workup done. When was the last time a doctor did a full physical? I've been a real b----ch lately. Chest hurts, my dermatitis won't go away, its been months and my throat is full of mucus that won't go away. I'm not sleeping good at night again, salivate all night, sweat, and need to change pillows. Aren't you glad you asked??? Ha.....Love as always...Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 In a message dated 7/25/01 3:59:59 PM Pacific Daylight Time, grandm4@... writes: << ve been a real b----ch lately. Chest hurts, my dermatitis won't go away, its been months and my throat is full of mucus that won't go away. I'm not sleeping good at night again, salivate all night, sweat, and need to change pillows. Aren't you glad you asked??? Ha.....Love as always...Sue Marth >> Sue...... Are you sure you don't have my body??? You just described me....LOL Tell me what you find out so I know what's wrong with me. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Hi l, Did you get my email saying that I had 2 lipomas the size of golf balls removed from my back (waist area) in 1980? or so. I think I still have some in my thighs and maybe shins. I need to talk to you sometime. Let me know when it is a good time to call. Love and Prayers, Lucy Re: lipomas > Ellen, lipomas are fatty tumors.... I just found out I have them in both > feet. They are wrapped around the nerves and muscles.... Chuck just had > abdominal surgery to remove them from his abdomin. We were wondering if > there was any connection with these and RP. If they are in my feet, I was > wondering if they were any where else. LOL Guess time will tell. > > Sorry for writing a book. > > So glad that you and are part of the group... Can't wait to know you > better > > hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Hi Ellen, Lucy here, when I had the lipomas removed, the Dr. held up what looked like a handfull of " chicken fat " . That is exactly what it looked like! From what I remember the Dr. said, lipomas are made up of fatty deposits that form fatty tumors (lipomas). Hope this helps some. Love and Prayers, Lucy Re: lipomas > Dear Lucy, > I'm new to the group and have no idea what lipomas are. Could you > let me know. > > Thanks, > > Ellen > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Dear , ain't we a pair. I think the frustrating thing is your not really sick, sick but just wore out from all of it. I need to go to pcp next week and we'll see what he says and I'll let you know. I put myself back on 10 mg of pred to see if that will help so far no luck. Didn't sleep good again last night, doesn't help the fibro, so tonight I'll take my Tylenol PM. Do you also have that dry cough? Talk to you later, Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Dear Lucy, how did you know they were tumors and was it a big deal to remove them and why do you need them removed? Thank You, Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 In a message dated 7/26/01 6:28:38 AM Pacific Daylight Time, grandm4@... writes: << Didn't sleep good again last night, doesn't help the fibro, so tonight I'll take my Tylenol PM. Do you also have that dry cough? Talk to you later, Sue Marth >> Sue, I never sleep..... Only get about 3-4 hours a nite... even on the c pap and with medication... I would love to know what a full 8 hours is like... Don't you just hate it... Really does a job on the fibro I agree... Think that is why I'm just not good for nothing. Yes I do have a dry cough....Thought it might be from the post nasal drip...Who knows...... going to make an appt with my gyn... due for a mamogram and I'm going to have him check my hormones again... Think they are still way out of wack... Driving my family nuts. LOL Remember ladies......HAVE YOUR MAMOGRAM!!! THIS IS VERY IMPORTANT...... Well, enough of the lecturing....hope you get to feeling better soon Sue.. Be sure to let me know what's wrong with us. LOL hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Lucy, No I didn't receive that e mail.... Was it when the mail was all messed up? A good time to call me is anytime. LOL Usually after 5pm pacific time..I'm up all nite so you have a big range in there. LOL Miss you.. How is the family doing? AND YOU???? You haven't been keeping us up to date....Shame on you. If I don't hear from you soon, I will give you a call. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 It depends on your age. I should have had another one done 5 years ago. I'm 53 so need one again. Also, I'm a believer in family history, mine is very low for cancer. You need to decide. Any of my aunts who had female cancer were in their 70's. Mother never had it. You need to decide. Even if you are small breasted that doesn't matter. IMost insurances will pay all, wish I had some, so go for it. Better to be safe than sorry. Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 > In a message dated 7/26/01 6:28:38 AM Pacific Daylight Time, grandm4@a... > writes: > .......HAVE YOUR MAMOGRAM!!! THIS IS > VERY IMPORTANT...... I am 34 (very small chest) should I have one I never felt a lump but with my recent brush with a fima tumor I wonder? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 Dear Lucy, thanks for the information. I have these lumps above my knees. Plus directly above them is a spot where I can push on it and there is nothing there. That's me just weird. When hubby gets home from work I'll have him strip and check out his knees. LOL. Your great...Sue Marth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 Hi Sue M. Lucy here, My Dr. told me that they were Lipomas. Yes, they had bothered me for eight to ten years, since I was in High School. They were in a location where each time I would lean back in a chair, my back touched the back of the chair and the pressure on the Lipomas (knots) in my back caused pain. Of course, nobody knows for sure that it is a lipoma until they are removed, they just appear as a moveable knot, lump or raised area. I hope this helps some. Let me know if I can be of any more assistance. Love and Prayers, Lucy Re: lipomas Dear Lucy, how did you know they were tumors and was it a big deal to remove them and why do you need them removed? Thank You, Sue Marth DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 --- grandm4@... wrote: > Dear Lucy, thanks for the information. I have these > lumps above my knees. > Plus directly above them is a spot where I can push > on it and there is > nothing there. That's me just weird. When hubby gets > home from work I'll have > him strip and check out his knees. LOL. Your > great...Sue Marth > wowzers, Sue! Did your hubby enjoy that? Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 Actually he didn't react...another missed opportunity...Love. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 --- grandm4@... wrote: > Actually he didn't react...another missed > opportunity...Love. Sue > Poor Sue, or lucky Sue? Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 Dear Sharon, his loss the mood doesn't strike often....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 --- grandm4@... wrote: > Dear Sharon, his loss the mood doesn't strike > often....Sue > You are very funny, Sue! Better luck next time, I guess???? Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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