Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 , You are too funny! I am the oldest of 3. 1 sister and 1 brother. To be honest if someone was to show up having brain surgery by their siblings it would be them and not me! lol I was so mean to them at times! My sister told me I was being paid back. She was kidding, I think! lol Another thing, don't ever tell my mother she doesn't remember everything because she will tell you in a heartbeat if anyone is ever wrong it isn't her. lol I learned along time ago to never 2nd guess her. love and hugs, Belinda > > > > > Hi. Can't even remember where the original post came from - > > > after > > > > > all the dickering between Vera and Bill :-) > > > > > > > > > > But... anyway... I searched around, and did come up with > one > > > > doc. > > > > > This one came from the Arnold Chiari Malformation physician > > > > referral > > > > > site. I realize the disorders are not the same, or > necessarily > > > > > related, but perhaps it will at least be a good place to > > start. > > > At > > > > > this point - it's at least " A " place to start :-) > > > > > > > > > > I tried to email the person who actually made the > > recommendation > > > on > > > > > the ACM site regarding this physician, but the email was > > returned > > > > to > > > > > me undelivered. So, take it for what it's worth - and ACM > > makes > > > no > > > > > group claims regarding the skills of docs on their website - > > but - > > > > > > > as > > > > > I said - at least it is SOMEPLACE to start. And if you don't > > > want > > > > to > > > > > travel far - at least at first... > > > > > > > > > > Dr. G. Ellenbogen > > > > > Neurological Surgery > > > > > Children's Hospital and Regional Medical Center > > > > > 4800 Snad Point Way N.E. > > > > > P.O. Box 5371 > > > > > Seattle 98105-0371 > > > > > (ph) > > > > > > > > > > > > > > > By the way Vera, can't help but get in another " jab " here... > > > What > > > > > kind of a doc works at a place called " Knife " something or > > > other?! > > > > > Had to laugh when I saw that! (That was where one of the > docs > > > you > > > > > found officed from - wasn't it? Or is my memory just proving > > > it's > > > > > fallibility? :-) > > > > > > > > > > While I'm at it, here is one from Oregon who actually had 2 > > > people > > > > > willing to recommend him/her (Kim is a pretty generic name > from > > > > what > > > > > I've found). > > > > > > > > > > Dr. Kim J. Burchiel > > > > > OHSU > > > > > Department of Neurosurgery > > > > > Portland, Oregon > > > > > > > > > > There was one more from the Portland area: > > > > > > > > > > Dr. ny Delashaw > > > > > Neurosurgeon > > > > > OHSU > > > > > 3181 SW Sam Park Road, L472 > > > > > Portland, Oregon 97201-3098 > > > > > > > > > > > > > > > No names of people who recommended him (guess ny could be > a > > > > girl > > > > > too - ? Life is so confusing nowadays :-) but at least there > > is > > > a > > > > > phone number, and appears last one offices from similar > > location > > > as > > > > > former. > > > > > > > > > > Perhaps you're closer to another state. I can't remember > where > > > you > > > > > said you were from - what part of WA... But, if you go to > the > > > ACM > > > > > site, you can find other docs, and find these as well - and > > even > > > > > click on the people who recommended them (and see if you can > > find > > > > any > > > > > of them with email addresses that are still valid - most/all > of > > > > them > > > > > I've written have been returned). > > > > > > > > > > ACM website - physician referral pages part: > > > > > http://www.pressenter.com/~wacma/usdocs2.htm#Wisconsin > > > > > > > > > > Don't be deceived by the " Wisconsin " in the name... it is > > > actually > > > > a > > > > > list of all states. There is another if Canada is actually > > > closer > > > > to > > > > > you: http://www.pressenter.com/~wacma/country.htm > > > > > > > > > > > > > > > > > > > > And, lest anyone think I'm just surfing ACM due to Tenacity's > > > > > experiences of late - nope - I've been on the ACM path a > > while. > > > In > > > > > fact, trying to pin down which doc(s) to send my MRI pics > to. > > > (And > > > > > I've delayed that process due to info received from , > to > > > > assess > > > > > all information I can get.) > > > > > > > > > > Had theories validated recently, when someone from Canada > > looked > > > at > > > > > my pics and said indeed I do appear to have Chiari. Now, > > whether > > > > > that will help with anything - that remains to be seen. And, > I > > > > know > > > > > of people who had ACM - but also had MSA - and still had the > > MSA > > > > > after ACM surgery. > > > > > > > > > > Is this what is meant by Alphabet soup? :-) > > > > > > > > > > I'm used to it, my name is professionally followed by: M.S., > > > > > B.C.B.A., L.B.P. and when my wife took over as my secretary, > I > > > had > > > > > to write out a page of over 40 abbreviations we use daily - > but > > > no > > > > > one outside my profession would know them. :-) > > > > > > > > > > Pablito Quote Link to comment Share on other sites More sharing options...
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