We need everyone's efforts

[Guest guest]

Connie,

That was great!!! I for one would just like to say we all need to

work together for the groups and try to put differences behind us and

go on from there. This isn't a perfect world, and many of us are not

only fighting RP, but our insurance companies, doctors and our

families, so we need the support of our RP groups. For some, that's

all we have. We don't want to scare off any new members by having

them find that the group can be a stressful place to go for support.

No one ever said this life would be easy, but we all manage to get

back on our feet (eventually), and make the world a better place.

Love, Marilyn

[Guest guest]

--- JHACHE jhache@...> wrote:

> I am very disappointed by the recent hurtful

> insinuations levied in this group. I happen to

> think that both groups, the Support Report and the

> RP Foundation both have a tremendous opportunity to

> further the interests of RP patients worldwide. It

> is not uncommon for more than one organization to

> work for the same goal....for example in cancer

> support/research we have many organizations all

> working in various capacities. The same holds true

> in rheumatoid arthritis. There's room and a need

> for everyone to stay involved in all of these areas,

> whether it's the various groups within RP, RA, or

> cancer, and to not feel pressured to pledge

> allegiance with one versus the other.

>

> Many differences of opinion are the result of

> miscommunication, not from self-serving or ulterior

> motives. We have very intuitive members in the

> support group who undoubtedly realize that this has

> happened in the RP arena. The sooner we all can

> move forward, for the sake of RP and all who are

> counting on our success, the better. There's a lot

> of work to be done and the members of the RP support

> group deserve the chance to work with both groups

> and to not feel that they are on " one side or the

> other. " There's a need for the unique skills of

> everyone. Unless the two groups lose sight of their

> true purposes, we are all on the same side.

>

> --Connie Hache

>

> CONNIE,I AGREE. SHIRLEY

>

__________________________________________________

[Guest guest]

Dear Connie,

I'm a new member of the group and don't understand what has

happened. However I agree with what you said.

Ellen