Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Deb: We're all praying for you here. No! need to ask, it's already done. Just get home soon. Please!!! Love and hugs Vera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 You are in our prayers and thoughts daily, Deborah. Trust this nightmare will soon be over and and you will be home, again. Winifred Tenacity update #2 > I spent 3O minutes typing a letter only to lose it before sending it and now > I am tired and frustrated. So, this time, the note will be in factual > outline form.... sorry for the lack of fluff in the note. > > 1. I do have a type 1 Chiari Malformation > 2. It is causing no compression either this time or in the CT Spine with CSF > Flow study that I had done last November > 3. Dr. Milhorat oversees the center at Duke university that Dr. Fink > suggested. He is a very good doctor. > 4. Because of the results of no syrinx (cyst) and no compression, the > surgery was cancelled. > > 5. I wound up allergic to the CT scan injection and have broken out in hives > head to toe. Because of this I am on IV steroids and antihistamines. > > 6 The test that needs to be done is a lumbar puncture. > > 7. This test cannot be performed until 24 hours after I get off of the > steroids and I have to have a migraine headache at the same time. > > 8. Dr. Milhorat said that he does have an idea of what is causing my > debilitating neurological condition but will have to wait until after the > spinal tap to give us any answers. He said that he doesn't believe in > getting a patient worked up when it is not necessary or clinically founded. > > 9. He send blood work off to look for rare disorders too. > > 10. A second CA 125 was run with the value coming in at 34 this time. The > highest norm is 35. Dr. Milhorat told me that I am admitted as a > neurological patient and he does not want to call in a consult for this > problem because that would just complicate things being that this is a neuro > floor that I am on. He strongly encourages me to get an ultrasound of the > abdomen when we get back to Charlotte. Because the results are back in the > normal range, he makes the above suggestions. Had it come in high again, he > might have suggested something else. > > I think I have addressed all of the questions brought about. I'm not > looking for surgery or treatments just to have them. Heck, if anything it > feels like everything is back at square 0 with the exception of the fact > that I have clinical proof at to what this isn't: It isn't PD, it isn't PD+ > syndrome, It isn't the type 1 chiari causing the problems. I'll try to get > back online and let you know what it is when I get some more answers. In > the mean time, pray for a migraine so I can have my spinal tap and get out > of here. The food and decor is awful. > > Again, we thank you for all of your prayers and support. > > Hugs and Warm Fuzzies, > Deborah aka Tenacity > But for the Grace of God, Go I! > > > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Deborah, Great to have an update from you. I never thought I would say this, but here's hoping you get a migrane asap.Best of luck, look forward to hearing from you. w/ big ole' WV hugs.. Rose Quote Link to comment Share on other sites More sharing options...
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