Don't leave

[Guest guest]

I dont like to get involved in the controversies of this group, but here

goes.

We do not need to lose members of this group. There are not many people out

there with RP.

The only way we will be able to help ourselves is to share information about

our symptoms and our various treatments.

The foundation and the support report are secondary to this function.

I wish that those persons dropping out would reconsider. There is safety in

numbers.

Re: we need everyone's efforts

--- JHACHE jhache@...> wrote:

> I am very disappointed by the recent hurtful

> insinuations levied in this group. I happen to

> think that both groups, the Support Report and the

> RP Foundation both have a tremendous opportunity to

> further the interests of RP patients worldwide. It

> is not uncommon for more than one organization to

> work for the same goal....for example in cancer

> support/research we have many organizations all

> working in various capacities. The same holds true

> in rheumatoid arthritis. There's room and a need

> for everyone to stay involved in all of these areas,

> whether it's the various groups within RP, RA, or

> cancer, and to not feel pressured to pledge

> allegiance with one versus the other.

>

> Many differences of opinion are the result of

> miscommunication, not from self-serving or ulterior

> motives. We have very intuitive members in the

> support group who undoubtedly realize that this has

> happened in the RP arena. The sooner we all can

> move forward, for the sake of RP and all who are

> counting on our success, the better. There's a lot

> of work to be done and the members of the RP support

> group deserve the chance to work with both groups

> and to not feel that they are on " one side or the

> other. " There's a need for the unique skills of

> everyone. Unless the two groups lose sight of their

> true purposes, we are all on the same side.

>

> --Connie Hache

>

> CONNIE,I AGREE. SHIRLEY

>

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