Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Hi , so good to see you post... Boy, you sure have had your share of problems.....So sorry you had to get RP too...Glad you caught it early though. Your family sounds wonderful..... I would love the moose too....how much fun. I am C, live in Calif. happily married for 26 years, have 3 daughters age 26, 23, and 20 and one grandaughter age 4. I have been dx with RP for about 3 years but think I've had it much longer. I also have fibro, cfids, chiari malformation(my brain is falling off it's shelf) LOL aortic insuffientcy (caused from Rp) and Mitral Valve prolapse. I have developed Cushings syndrom from the prednisone and now have Sorgrens too. Boy, ain't life grand. LOL Have just found out that I have fatty tumors in my feet and am hoping that the cortisone injections help....don't want surgery...LOL a big chicken.. Walking is hard right now, but I am doing alot better than I was a month ago... I too am on disability.. Have been since 1997. I admire and look up to all of the ones that still work.... Don't know how they do it.. I try to keep as busy as possible, but there are days that much doesn't get done.. I'm so glad that you and your sister have found this group. You will soon see that we are just a big happy family...PLEASE feel free to ask all the questions you want.. We all learn from them... You and your sister can probably enlighten us on a lot of things. Hope you are having a good day... hugs C Quote Link to comment Share on other sites More sharing options...
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