Re: medications and fluids, body postioning combined to help bp/hr

[Guest guest]

57/23 ! What do his doctors say?

-I am on 5 mg. of 3 proamatine (7AM, 11AM, 4 PM) a day and 3 florineffs

(AM).

-use a wedge for elevating my upper body and one for my legs. ones for

my side to keep me from rolling to a flat position

- use a reclining wheelchair - electric recline because it is too much

for people to readjust my position all the time. seriously- i can't

expect people to stand at attention to readjust my position. cushion

headrest. I stuck extra soft batting in my headrest. It feels much

better.

- i use a rollator with brakes and someone close behind me. when i can

walk alittle. then i sit , my legs get raised onto a chair and i drink

water and gatorade. fluids help my BP alot!

- i have 2 aides, alternating days , so my husband can work. one person

can not do it alone, even if they are not working.

-I have to drink alot of fluids ( about 90 ounces) slowly and almost

continuously and less pureed food to keep my weight on and from getting

impacted. The fluids keeps the bp/ hr , ect. at a better keel.

Ensure(2-3 cans daily) and gatorade (64 ounces), and water (plain old

water) helps my bp/hr, digestion, ect. issues. Boost constipates me.

regular ensure . The ensure plus makes me very sick and throw up, fiber

one is very painful for me, Extremely hard for me to digest fats and

some sugars.

-I wear waist high compression hose. 20/30 compression . we can't get

the 30/40's up. The movement wears my body out too much and I am out for

the count.

- recliner - ( 2 for the price of one from lazy boy) keeps me at my

best. sometimes my body physically can't wait for different insurances

to pass through. They break and I have back up. The doctor told my

husband at the time 'she needs one today'.

These are just a few things that I do to combat the BP/ HR, venous

pooling, and fatigue symptoms. I can't just pop my meds and go on. I

have to do alot of adapting,ect.

What does ur husband do after he takes his meds? What other meds is he

on?

have to rest now.

nancy

tischerb wrote:

>

> My husband was diagnosed with shy-dragers 1 yr. ago. We are gradually

> adjusting to a very different lifestyle and lots of meds. His B.P.

> goes down as far as 57/23 and then lights out!! Even after all the

> meds he is still having loads of problems. He is 60 yrs. young. He is

> on 7 midrodine tabs /day, and 3 florinef tabs. Anyone one else want

> to share wow their meds are working? Thank

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

[Guest guest]

,

Sounds like you are battling MSA well. A suggestion (if you are having problems

with constipation) is the take some colace (a stool softener) as a try.

Take care, Bill Werre

==========================================

>

>

> Date: 2002/08/25 Sun AM 10:15:21 CDT

> To: shydrager

> Subject: Re: medications and fluids, body postioning combined to help

bp/hr

>

> 57/23 ! What do his doctors say?

>

> -I am on 5 mg. of 3 proamatine (7AM, 11AM, 4 PM) a day and 3 florineffs

> (AM).

>

> -use a wedge for elevating my upper body and one for my legs. ones for

> my side to keep me from rolling to a flat position

>

> - use a reclining wheelchair - electric recline because it is too much

> for people to readjust my position all the time. seriously- i can't

> expect people to stand at attention to readjust my position. cushion

> headrest. I stuck extra soft batting in my headrest. It feels much

> better.

> - i use a rollator with brakes and someone close behind me. when i can

> walk alittle. then i sit , my legs get raised onto a chair and i drink

> water and gatorade. fluids help my BP alot!

> - i have 2 aides, alternating days , so my husband can work. one person

> can not do it alone, even if they are not working.

>

> -I have to drink alot of fluids ( about 90 ounces) slowly and almost

> continuously and less pureed food to keep my weight on and from getting

> impacted. The fluids keeps the bp/ hr , ect. at a better keel.

>

> Ensure(2-3 cans daily) and gatorade (64 ounces), and water (plain old

> water) helps my bp/hr, digestion, ect. issues. Boost constipates me.

> regular ensure . The ensure plus makes me very sick and throw up, fiber

> one is very painful for me, Extremely hard for me to digest fats and

> some sugars.

>

> -I wear waist high compression hose. 20/30 compression . we can't get

> the 30/40's up. The movement wears my body out too much and I am out for

> the count.

>

> - recliner - ( 2 for the price of one from lazy boy) keeps me at my

> best. sometimes my body physically can't wait for different insurances

> to pass through. They break and I have back up. The doctor told my

> husband at the time 'she needs one today'.

>

> These are just a few things that I do to combat the BP/ HR, venous

> pooling, and fatigue symptoms. I can't just pop my meds and go on. I

> have to do alot of adapting,ect.

>

> What does ur husband do after he takes his meds? What other meds is he

> on?

>

> have to rest now.

> nancy

> tischerb wrote:

> >

> > My husband was diagnosed with shy-dragers 1 yr. ago. We are gradually

> > adjusting to a very different lifestyle and lots of meds. His B.P.

> > goes down as far as 57/23 and then lights out!! Even after all the

> > meds he is still having loads of problems. He is 60 yrs. young. He is

> > on 7 midrodine tabs /day, and 3 florinef tabs. Anyone one else want

> > to share wow their meds are working? Thank

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe

> >

> >

> >

> >

[Guest guest]

I don't know how I can smile, but I take about 2 softeners a day,

ensure, miralax, and move. darn near everything. I am thankful for any

advice from here. yeah I know... ask/tell my doctors.

nancy

b.werre@... wrote:

>

> ,

>

> Sounds like you are battling MSA well. A suggestion (if you are having

problems with constipation) is the take some colace (a stool softener) as a try.

>

> Take care, Bill Werre

>

> ==========================================

> >

> >

> > Date: 2002/08/25 Sun AM 10:15:21 CDT

> > To: shydrager

> > Subject: Re: medications and fluids, body postioning combined to help

bp/hr

> >

> > 57/23 ! What do his doctors say?

> >

> > -I am on 5 mg. of 3 proamatine (7AM, 11AM, 4 PM) a day and 3 florineffs

> > (AM).

> >

> > -use a wedge for elevating my upper body and one for my legs. ones for

> > my side to keep me from rolling to a flat position

> >

> > - use a reclining wheelchair - electric recline because it is too much

> > for people to readjust my position all the time. seriously- i can't

> > expect people to stand at attention to readjust my position. cushion

> > headrest. I stuck extra soft batting in my headrest. It feels much

> > better.

> > - i use a rollator with brakes and someone close behind me. when i can

> > walk alittle. then i sit , my legs get raised onto a chair and i drink

> > water and gatorade. fluids help my BP alot!

> > - i have 2 aides, alternating days , so my husband can work. one person

> > can not do it alone, even if they are not working.

> >

> > -I have to drink alot of fluids ( about 90 ounces) slowly and almost

> > continuously and less pureed food to keep my weight on and from getting

> > impacted. The fluids keeps the bp/ hr , ect. at a better keel.

> >

> > Ensure(2-3 cans daily) and gatorade (64 ounces), and water (plain old

> > water) helps my bp/hr, digestion, ect. issues. Boost constipates me.

> > regular ensure . The ensure plus makes me very sick and throw up, fiber

> > one is very painful for me, Extremely hard for me to digest fats and

> > some sugars.

> >

> > -I wear waist high compression hose. 20/30 compression . we can't get

> > the 30/40's up. The movement wears my body out too much and I am out for

> > the count.

> >

> > - recliner - ( 2 for the price of one from lazy boy) keeps me at my

> > best. sometimes my body physically can't wait for different insurances

> > to pass through. They break and I have back up. The doctor told my

> > husband at the time 'she needs one today'.

> >

> > These are just a few things that I do to combat the BP/ HR, venous

> > pooling, and fatigue symptoms. I can't just pop my meds and go on. I

> > have to do alot of adapting,ect.

> >

> > What does ur husband do after he takes his meds? What other meds is he

> > on?

> >

> > have to rest now.

> > nancy

> > tischerb wrote:

> > >

> > > My husband was diagnosed with shy-dragers 1 yr. ago. We are gradually

> > > adjusting to a very different lifestyle and lots of meds. His B.P.

> > > goes down as far as 57/23 and then lights out!! Even after all the

> > > meds he is still having loads of problems. He is 60 yrs. young. He is

> > > on 7 midrodine tabs /day, and 3 florinef tabs. Anyone one else want

> > > to share wow their meds are working? Thank

> > >

> > > If you do not wish to belong to shydrager, you may

> > > unsubscribe by sending a blank email to

> > >

> > > shydrager-unsubscribe

> > >

> > >

> > >

> > >