Guest guest Posted August 25, 2002 Report Share Posted August 25, 2002 , The meds you list are fairly typical. Some doctors use Wellbutrin (Bupropion) rather than Paxil. We found Paxil seemed to be associated with a condition called " sundowning. " Also Seroquel can be used to help a patient deal with anxiety. However if you dad is getting satisfactory help from regular sinemet that's fine. We used mirapex, also apparently without success, although some have gotten help from it. You question seems to be directed more to issues of how the caregiver can continue to help with the patient. The answer is, not easily, unless the caregiver may be a true saint. Even then it's not easy if the caregiver is a small woman dealing with a very large man. This disease, perhaps more than some, robs you of your dreams and puts the caregiver's life on hold. In addition the lack of consistency from hour to hour, let alone from day to day, can be difficult. One way to help some is to seek consistant outside support from whatever source is available. Those sources may be governmental, providing help three to four hours of cleaning a week, or they may be hired out of personal savings and retirement funds, or they may mean depending on other siblings, relatives, and good friends. Finally you may have to think the " unthinkable, " that your mom and you can no longer provide the care necessary without seriously hurting yourselves. In that case you may have to consider some kind of nursing home. Whatever the situation, the caregiver needs to develop personal support from whatever sources may be available. As you are finding out, this e-mail group is one good source of support. Members are showing day by day that you can cope with this disease, and they are providing encouragement when the going sometimes get tough for those of us who are less than saints. Peg and Jim from Guam ************************ Thank you for responding. My dad is currently taking Sinemet and Comptan, 4 times daily. He also takes Lasix, Paxil, Casodex and Proscar (for prostate cancer), he takes Pepcid, EZ Lax, and occassionally, Ativan. The doctors have previously tried Mirapex, with no success. They also tried the Long Lasting forms of Sinemet, which seemed to create more dyskenesia and anxiety. He is now using his wheelchair 90% of the time, has ******************************** *** Peg & Jim *** # 29 Cruz Heights *** Ipan-Talofofo, Guam 96930-4736 *** USA *** *** Note: Guam is 15 hours ahead of *** Eastern Standard Time (EST). *** 14 ahead of EDT. ******************************** Quote Link to comment Share on other sites More sharing options...
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