Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 In a message dated 7/26/01 5:42:59 PM Pacific Daylight Time, lizwizz2000@... writes: << also been on a low dose of prednisone for over a year and am down to 2mg!!!!!! Next week I go cold turkey. I >> Liz.....YIPPEE!!! 2 mg.. That is great... So glad you are doing so well...Gosh it must feel good to be that low... I lowered mine today to 10mg..... a big mile stone. LOL Hoping to keep feeling as well as I am.... I'm really doing pretty good. Havent felt this good in a long time. Am only on the pred and Biaxin now and so far , so good. Keeping my fingers crossed that it continues. Will continue to decrease at 1mg every 3-4 weeks. The last cortisone injections he put in the nerve instead of the tumors. It has helped tremendously. I'm due back on the 7th for another one.. I am starting to get the pain more often and would go now, but he is on vacation.. LOL Keep up the good work Liz and know I'm thinking of you. Bet you've been busy. Let us know about any of your exciting adventures. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 - sorry to hear about - maybe you could beg her to go to the doc just for your peace of mind? How are the feet doing - I do hope the cortisone is helping. Dawn - please take care of yourself - next time you have a 'little' burn or a 'little' something else call the doctor, explin you don't want to be a nuisance but you just want to check it out! Ellen and Midge, great to meet you and read your posts. Also to the other new members whose names I don't know yet. Welcome to the group. My name is Liz, I'm a Brit,I am 58 years old. I work in Saudi Arabia but we spend our summers here in California. I have probably had rp since 1988 but have only been dx a few years. However since I was dx and put on methotrexate I have been doing so much better. I have also been on a low dose of prednisone for over a year and am down to 2mg!!!!!! Next week I go cold turkey. I recently started plaquenil in addition to the pred, and I think its beginning to kick in, because I havent had any hoarseness or breathing problems, despite cutting down on the pred. Watch this space......... I feel a lot better since I have been dx, although I have flares sometimes. This is a great bunch of peaple, and I tally agree with what Janet said in her mail. Love to All. Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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